I’ve had various neurological symptoms for a number of years, no neurologist or doctor has seen or been able to tell me what could be causing these goosebumps. I feel a tingle they appear in small clusters lasting about 30 secs, only ever on one side of my body at a time when they first started they were on my right thigh every few minutes for a week or two at a time then can stop for a few months and perhaps happen just once or twice in that time then back frequenlty again, currently mostly happening on my right lower leg. Have also appeared on my left side and once on right arm. Any ideas?
Patches/clusters goosebumps - Functional Neurol...
Patches/clusters goosebumps
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Hi thanks for your reply, definitely not Keratosis pilaris they appear for only 30 seconds or so at a time and I can feel them appearing with this mild tingle as if I were getting goose bumps in random places and look down and that’s what I can see. They don’t appear to correlate with any temperature changes or emotional stimuli. I’m going to change the picture i up loaded to give a better view of the random pattern. Yes when I first got it I had a continuous twitching of my big thigh muscle for days then when that stopped they started to appear.
Did you ever get an answer for this? I have the same issue and have had mri on brain and spine and neck. nothing came of it. let me know.
do you suffer with head shoulders and neck, tightening and tensing? I do most evenings and I’ve been told I have fibromyalgia, but I think it’s just a copout because I don’t know what else is wrong with me. I’m experience in these tingles and now muscle twitching a lot more.
I have the same thing as well but on my left arm.
Hi There,
Reaching out to see if anyone has received a or cause for this or can shed some light on it.
I’m a 26yo female, along with the patchy goosebumps, I have been experiencing these for the last few years along with some other really strange neurological issues that I never had before such as:- visual disturbances (similar to migraine auras, but no pain), erythromelalgia, raynauds, horrible widespread nerve and joint pain, skin sensitivity, nausea/ vomiting, tingling, dizziness, Chevoski’s sign, numbness and tremors.
I have have a myriad many specialists and nobody is able to pinpoint a cause.
Any insight would be greatly appreciated.
-G
Patchy goosebumps
Sorry that you’re struggling! Someone mentioned to me it could be something called Jacksonian seizures so I'm pushing to see someone who specialises in epilepsy. Not sure it’ll bring answers but feeling a bit hopeless after suffering for 8 months/ after banging my bed super hard.
Hi - have you seen a neuroommunologist? Goosebumps could be seizure activity - and many of the other things can be related to neuromyelitis optica (NMO). Check out this paper - casereports.bmj.com/content...
Also autoimmune limbic encephalitis (LGi1) and autoimmune epilepsy can cause that - as part of either seizures or dysautonomia. Please see another paper.
“Seizures of autoimmune epilepsy are most commonly focal temporal lobe seizures but seizure onset is often seen elsewhere. Flushing or pilomotor (goosebump) autonomic seizures often occur (especially when there are antibodies to LGI1, Hu, and Ma).4,8 Facial brachial dystonic seizures (FBDS) that affect the ipsilateral face and arm are a distinct seizure type described more fully later in this article. “
practicalneurology.com/arti...
I am a 50 year old female. I also present with patches of goosebumps. I can often feel them coming and they last less than a minute. They started 2 years ago and I thought it was an allergic reaction of some sort because it happened as I was handling tomato plants. At first, it only occurred on my left arm but then it also started happening on my leg. I mentioned it to my general physician but she quickly dismissed it. I continue to think there may be an environmental component as it happens more frequently in spring and summer. Here is a picture.
Patches of goosebumps on arm
Ok...this is weird. Day 2 of these goosebump patches ...left arm only. Weird patterns. Comes and goes. Googling brought me here. I've been growing tomatoes from seed (in my windows) and just started transplanting them! Yesterday when it started I was handling at least 20 plants without gloves? Coincidence?
Left arm
in reply to Gardener_22
Hi, has anybody had covid before this started, or while it started?I have the exact same thing since I got covid a few months ago, and it keeps happening since.
Gardener_22 in reply to
Yes, I had covid in January 2022. But it just started.
Anotherfrog in reply to
Mine started about 4 years ago, and it just happened in the last half hour, but I haven’t had Covid yet.
I got the same patches popping up. Creeps me out. Are you still getting these "goosebumps" 😝
Did you find an answer to yours? I’ve been having these for a few weeks randomly. I do suffer from severe anxiety so no idea if that’s related
I read that it could be a thyroid / endocrine disorder causing odd neurological responses.
I used to get these goosebumps more often but yesterday had them for the first time in months and I had a marinara dance for dinner last night l. Could this be tomato related?!🤔
It’s parasitic
can you please elaborate? How can I get rid of this its driving me crazy I bought ZUMA an all natural anti parasitic but I feel like I need something stronger.
And what type parasite is it?
I was diagnosed with epilepsy in the end. Auto immune encephalitis was ruled out through various tests too though.
which test confirmed your epilepsy? Did you have other symptoms?
I had a blood test for AE which was ruled out. I was diagnosed with epilepsy from the goosebumps. The AEDSs have taken my symptoms away. I was told it’s either autoimmune encephalitis, sensory migraine symptoms or epilepsy. I’d already had a lumbar puncture so MS was ruled out
hi!
I was wondering if you ever found any answers? I have all of these symptoms as well and my Drs have no idea.
see a neuro who specialises in epilepsy and ask about pilomotor seizures, autoimmune encephalitis and sensory migraine symptoms.
It’s a parasitic infection. There’s a lot of people dealing with it rn. It causes neutrophilia, eosinopenia, basopenia, epileptic episodes, sinusitis, high RBC’s, iron deficiency, high platelets, extreme fatigue, vomiting, vision issues, respiratory distress, GI and digestive issues, etc.
what kind of parasitic infection?
Do you also get heart palpitations and high heart rate? Your symptoms sound very much like POTS. I have POTS and got diagnosed with raynauds, hyperhyrosis, ibs etc and turns out they were individual conditions, but one condition that affe ts the nervous system called POTS..
Just wondering if you have seen a doctor for this ? I get this on my right arm and it looks exactly the same. I can feel the tingle and see the small patches of bumps them I can run my hand over them and they go away. So weird
Have you found out any more info on this?? I get this exact same thing on my left thigh!!
I get it on my right arm also! Comes in random intervals.
Did you find any answers? Did they stop?
I get this exact same thing, the tingle and then the patches of goosebumps, usually on my left arm. It’s been happening more frequently lately and then it can be a long time where it doesn’t happen. I decided to google it today and that’s how I came across your post. I’ve never asked my doctor but maybe I will at my next appointment. Have you found out anything about what is causing it?
Did you ever get any answers about this phenomenon? I get this too, but was just told it was psychological.
Can you please elaborate on anything else they told you? How does your mind cause this phenomenon? Super curious if you went into it any further with a professional to explore? And might be able to share? I can't seem to see how it could manifest and from reading comments and my own experiences, many also feel the tingling and can't control it as it comes and goes and moves around the body (mind even dies it on the scalp) but the mind is a tricky beast to understand the complexities of how it all works! Thanks and hope you're well.
Same exact thing happens to me only there for like 30 seconds and in blotches sometimes in both legs once i was poking ny legs everywere i poked the goosbumps would blotch in the same place
I just began experiencing this today. Same story as everyone else. I first begin to feel a tingle on my leg, I look down and I see the goosebumps form in random patches. They are larger than when I am 'cold' and they last just about 15 seconds. It's been happening randomly all day long. If anyone visits a doctor, please share!
Hey there did you ever find out what this is? I have the exact same thing!
Hi all, just another person here with the same thing wondering if anyone ever got any answers.... thank you!
I didn’t get any answers, I see neuropsychiatry and two consultants said they hadn’t seen it before. They basically said it must be just part of FND. So no satisfying or informative answer unfortunately.
I have answers 
I started getting this after a traumatic event in 2016. After many brain scans, lumbar punctures and blood samples, I was diagnosed with epilepsy in October 2017. I was put on lamotrigine for a short amount of time but had a severe allergic reaction which caused anaphylactic shock. I was then put on Keppra which caused depression. After a long discussion with my neurologist we decided that no medication is best. The seizures are called partial focal seizures with a sensory effect. There is nothing that can be done to fix it and from experience, no medication is best. Hope all goes well.
Sounds like you've had a tough journey, I'm so sorry :(. I'm wondering, are your seizures detectable?
THANK YOU.
Hi there! Thank you for providing your experience with us!!! I was wondering if in the process of diagnosing did you have your genes looked at? If so did you have an alerted gene on an ScN gene? They are specific to epileptic markers and many different appearances resulting in often rare or uncommon gene mutations. Also how it's passed down (mosaically or broadly). Just curious as I've been experiencing this since a car accident and I'm wondering if it's related. Thanks for your time if you're able to respond!!
Have a good day!
Mine have been since hitting my head! I’m wondering if that’s triggered seizures. Did you find out any more?
I read that it could be a thyroid / endocrine disorder causing odd neurological responses.
Similar to someone above, I’ve now been diagnosed with epilepsy - that’s what my goosebumps have been all along!
What other symptoms did you have?
just the goosebumps. Patches. Started on one side then a few times on the other side. Felt a bit weird after but probably the anxiety. AEDs have stopped mine
I've experienced the exact same thing for a while now. Lately it has been happening more often and sometimes I feel the tingly feeling but I do not get the goosebumps.
Anyone every get a definite answer on this? I started getting the same thing on my thighs, but now it just will randomly happen on my arms, legs, and once my stomach. I hate the sensation!
I agree! It makes you wanna jump out of your skin
I also have this and I really want to know the cause 😞 I can touch my legs and get patches of goosebumps! Has anyone got an answers on this please?? I've had an mri to rule out MS and my neurologist has no clue, she has never seen this and I feel as shes giving up on me😣 help!
My husband just noticed the same thing on his left arm today. They left as soon as they came, but he's so paranoid that I thought I'd google. Does anyone else come across anything that might explain this weird phenomenon?
Softball2020 in reply to
I have googled this and have never found an answer. I've spent prolly 100 hours online trying. I've had this for over 9 months. I'm also paranoid. If I brush up on anything I get a patch of goosebumps in that spot. I get a tingling feeling first. Please let me know of u guys find anything out. Thanks
I’ve been experiencing this for a few months now. I am a migraine sufferer and stopped all of my medications October 2019 and detoxed off of everything that is been taking for the last decade. These bumps seem to be a new side effect from the possible neurological damage that the medications have done. I also have electrical twinges everyday all over my body. None of this is particularly bothersome like the migraines are, but it’s something I’ve noticed and curious about. I know I’ve poisoned my body from a decades worth of different medications. So this is possibly the outcome of frying my neurological and electrical system?!
I also suffer from chronic migraines and get lots of strange neurological symptoms with them. It’s hard to know what is migraine and what’s not as I get these sensations and symptoms very randomly as well. Hard to know what the medications are doing although I very much rely on triptans to lead a reasonably normal life.
Hi there, did you get an answer to what this was ?
Have you found out what this is, because I have same thing going on and it worries me so
I have been experiencing the same symptoms! The random goosebump patterns (accompanied by tingling) started on my right arm last year, were appearing on and off for couple of months and then completely disappeared. (March-June)I did brain and both cervical and thoracic spine MRIs to rule out the MS (i also visited 2 neurologists), my vitamin D level was a bit low but since then i’ve been taking supplements+ i’m sunbathing. Just now, I had the same pattern appearing on my right thigh for the first time! and it was more intense than the arm one, lasted for about 30 sec. What I do have is- scoliosis and kyphosis of the thoracic part of the spine (genetics in my case), my neck is also curved a bit to right, and due to curvature of the thoracic spine- 2 thoracic discs have starting bulging out on the right side. (Beginning phase of discus hernia).. Other than that, I’m a 26 yo female, leading a very healthy life, recently started doing exercise for my spine, former smoker, I’m not taking any medicines, nor do I have any kind of pain. Still, these sudden goosebumps got me very panicky and now I’m thinking of redoing all of the MRIs. My guess it that tingling and patches have something to do with the bad posture, curvature- pinched nerve etc, at least in my case..
Have they checked the alignment of your cervical spine at all? Atlas subluxation can cause nerve damage over time, and it can take as long as 10-15 years for symptoms to pop up.
I get the same thing and I’ve also been diagnosed vitamin D deficient. I wonder if there’s a correlation?
My dr said it could be a vitamin deficiency too!
Also, I noticed that goosebumps appear mostly when I’m stressed out or when I’m suppressing bad feeling, stress. Btw, I also had the right thigh muscle twitching for the past month prior to goosebumps... Anyone else have some news?
I have experiencing the same symptoms as well. I also start having thigh muscle twitching. I went thru difficult past few months and been struggling with anxiety. Neurologist had no clue.
I have twitching everywhere so the time (even down in ALL THE MUSCLES in my last parts) weirdest and scary things!! I was dx'd with benign fasciculation syndrome (bfs) which is benign twitching. What if it's my body's reaction to an subtle epilepsy and electrical misfiring possibly from trauma! Only had it since a trauma. Hope you're well and yours went away!
Hello all!
I’ve been experiencing those random goosebumps on my leg thigh.
I had them for first time many years ago, and they’ve just come back a week ago.
Let’s hope we can find out why do they occur!!
I also suffer from migraine.
Hi, ME TOO. I’m glad you got a picture, because it’s fleeting and hard to catch — but that’s exactly it. I am also quite interested in the fact that you describe it as happening in episodes — frequently for a couple of weeks, then going months without. Same here. I have not identified any triggers. I am not particularly stressed lately. 11 years ago, I had a bike accident with mild concussion with brief amnesia, along with a minor injury at T10. I also sometimes have unilateral flushing — that happens always on the right side. The flushing I’ve had for about 10 years, whereas the goosebumps only started a year ago. In my previous episodes of patchy goosebumps, I kept getting it only the left arm - the last couple of days, I get it on the right arm and leg. I have had brain MRIs as a research volunteer, and there was no abnormality noted.
Mine were also after a head injury. Did you find any answers?!
I've had the same thing with tingly skin starting then patches if goosebumps. I also get hypersensitive to slight touch and movement and a feeling like I have static electricity on my skin. I've had a nerve conduction test, blood tests, seen a neurologist and dermatologist but no diagnosis as yet. It can suddenly start and last for days/weeks with this tingling in arms,legs and face then just go again . I find it totally consuming and makes my existing anxiety disorder alot worse. Any one any new ideas aboit these symptoms? It doesn't always start when I'm anxious btw , in a way I wish it was anxiety causing it at least I would know.
No but I'm doing everything to try to figure it out. Many people have the filtering in common: 1. Twitching along with patchy tingly goosebumps (can be bilateral and occur mostly on arms and/ or legs; some people experience it on trunk and face/scalp.
2. Quite a few had trauma to their back/spine at cervical or thoracic levels).
3. I've read it's an electrical signal issue (a form of mild epilepsy (partial focal seizures with a sensory effect) found on the genes discovered in people with myriads of kinds of epilepsy and found by looking at genetic mutations on certain genes. And it occurs at base of the hair follicle where there are little muscles that contact and erect posing your hair out and even causing hair growth. Weird.
Please let me know what you've found!!!
I know this might sound crazy but I’m on high dose heart meds previous resting heart rate 170 for my panic disorder and I get random symptoms and these are similar to one. It doesn’t always feel like panic at all. But the various symptoms can spazz out. I get a flush or chill then tingle or pinch in a patch of goosebumps mine is also only on my right side
I only recently (about 2 weeks ago) was put onto Beta Blockers for POTS, it’s happened 5 times over the last 12 hours, exactly described as above. could it be a correlation to the medication??
I have experienced patches of goosebumps on and off for about 5 yrs now. I was diagnosed a year ago with POTS. Did you know POTS is neurological? Maybe they connect. I also had non convulsive "silent" seizures as a kid and was told i grew out of them. Im thinking whatever this is, its def neurological not psychological. Ive been researching A LOT and when I saw you mention POTS it lit a lightbulb!!! Somethings got to give! I want answers too.. calling dr next week!
hello, i also have the tingly skin and then the goosebumps patches. I mostly have them on my back left leg and arm and knee. I also have hashimoto thyroiditis. It can be a symptom of anxiety? or dry skin? i am a very anxious person.
Hey. I have been getting these same patches for over 25 years now. Have seen numerous professionals thru the years to no avail. The sensation is so bizarre but real. It started on my R forearm then my L forearm. Eventually it started happening to both legs from the knees down. Just last week it happened when I was driving and I was able to take pictures.
have you figured out anything? Have you been tested for epilepsy?
Hi, did the doctors tested you for any kind of autoimmune disorder and check any vitamin deficiency?
Wow. I’m also glad you Got a photo! They are so hard to get as I’m always too late! I have had this for a year now, I am so glad it’s not just me!!
I just searched this because it happened to my 14-y-o daughter tonight at the grocery store. She has been having very odd symptoms that we are still looking to diagnose. She has what appears to be MCAS and the beginning of Raynaud’s. She has had elevated ANAs for the past 5 years and tested positive for SCL-70 (scleroderma) twice but two years apart. She has no autoimmune diagnosis except PANDAS and she was diagnosed as well with Lyme disease and 4 co-infections (mycoplasma, ehrlichia, babesia, bartonella). She has been in treatment with a functional med nurse practitioner for the past 3.5 years and she got a lot better but now she’s having new weird symptoms pop up. She has had Dermatographia since she got sick at age 9 and I’m starting to suspect cold urticaria. She’s also had the balls of her feet swell up and the soles of her feet peel. Just mentioning all of these things in case there are any similarities with others. But we are still pretty puzzled. I caught a good picture but not sure how to post it here?
I REALLY hope that you get to see my response. I just got these goosebump patches for the first time today. I also have MCAS and cold urticaria. Yesterday I worked myself too hard at figure skating and I got the urticaria patches on my face, and today I have been having histamine issues, as well as the goosebumps popping up. It could definitely be an MCAS, histamine, or neurological response that’s causing these!
hey! Any update? Did you figure out a cause?
I have the same symptoms, starting 2 weeks ago , I can feel it in my left arms the most and both legs. I am planning to go to my doctor, but this is so hard to explaining and believe... I feel alone in theis journey.. I hope someone can help
Hi Everyone,
I just started having the goose bump symptom. It started about a week ago. I would have a rush sensation on my left leg and then what I thought was goose bumps. It was so quick that it looked normal when I looked at it.
The last couple of days, I've really tried to catch it. It's multiple times a day with this feeling almost like hairs standing up on my leg, then a patch of goose bumps briefly appears and then disappears.
It seems like no one has a diagnosis or idea what is happening?
Is there a link? Maybe anxiety, hypothyroid or something else?
I have thyroid issues, but otherwise healthy. Maybe some anxiety when I experience things like this. Enough so for me to look it up.
Thanks!
K
I just started with this same thing on my left thigh! Did you ever find out any more about it?
I was concerned about this because it happened about 4 days after getting the covid vaccine. My doctor said that it would not cause the sensation that I was having.
Doctor is thinking that it’s coming from my low back and to try physical therapy for awhile.
I just started that yesterday so will give
that a try to stretch out muscles and see if there’s some nerve compression.
I’ll update as I go.
I actually have a similar case, I had Covid back in December (I’m relatively young and healthy, just crazy from health anxiety). One thing I’ve noticed is a lot of weird neurological signs, I still have phantom smells (plastic, random foods, burnt toast/hair, rubber) few times a week. This has been going on (from what I remember) at-least a year or two. My parents have said they have it happen to them so I never felt too concerned.
The other thing is when I stand up after sitting (from 30 minutes to hours) for too long, when I do stand up, depending on how fast I move, how long I sat, and the day, things that happen are head starts to pound and feel full, almost lightheaded but heavy (?), sometimes it feels like all the blood drops from my head to my feet, my legs feel heavy, my vision will be spotty or black, my nose feels full of water (still able to breathe), and a few times my body has gotten full goosebumps (or specific sides) or it feels like my body fell asleep like how your foot falls asleep, and the aftermath where it feels like every nerve is my body is shaking. I’ve never fainted, never passed out, blacked out, etc in my life, never fallen over or anything, it happens in under a minute (sometimes takes a minute to occur). This happens often.
And the real reason I’m here, the goosebumps or brain-shivers. **I have no history of migraines, seizures/epilepsy, I’m not professionally diagnosed with any mental disorders or underlying health conditions, I’m seemingly a very healthy person, never had any emergencies or trauma except getting my head slammed into the black-top and a football beamed at my head, that’s about it** This happened a few times tonight actually, my house is kind of cold but I’m underneath blankets, the right side of my body (arm, side, and leg) had goosebumps or chills almost, they happen and quickly go away, I don’t think I have spotting, I never exactly checked since this sort of thing USUALLY happens at night (along with hypnotic jerks which are also crazy and interesting). And I had my head sort of feel tingly or “chilled” for a second. I notice this a lot when listening to music, the weird one is it almost always happens when I watch something I love or find exciting and it almost feels like adrenaline but not quite. I’ve only taken notice of this recently, I know it’s been happening for a while. I have a weighted blanket which since I got it, I feel like that’s made it more common. I’m honestly terrified, I swear I’m the biggest hypochondriac and fear that I’m too young to die. We can’t afford doctors (and these things I listed don’t ruin my life, if anything the anxiety is worse than the weird symptoms). I read up on it and there’s quite a few forums that have people explaining this who also have no clue, some (a lot) associated it with their epilepsy, a few said dysautonomia. I said a LOT in this reply, I’m sorry, I wanted to out out what concerned me.
To conclude: I did have Covid in December (2020), only had a sore throat, fever (above 100), body aches/chills, raging headache for the first day, everything after that was phantom smells and messed up taste, lasted about a week, pretty mild. I DOUBT my case has any correlation to these things because I think I’ve had them before Covid, but I read that some people suffered neurological damage or disturbances from their case, but since, it’s been strange. If you read this, I’m sorry and thank you! If anyone figures out what these goosebumps and sensations are caused by I’d love to see some other opinion to ease my mind. Same with the standing up and feeling an out-of-body experience.
Hi - you should consult a doctor that specializes in autoimmune neurological disorders. Covid can cause Autoimmune encephalitis and post viral syndrome. Not sure if you have had a work up for that. But here’s a good website to explore and has a list of doctors that may be able to help.
No ideas but I have been getting the same thing for 7years. I chaulk it up to the nerves going haywire. I call them bad goosebumps as the ones I get hurt. They go off like awirewojks. Start off light and spread. If you come up with anything let me know
How are you doing now?
Hard to see, yes, but it happens when I start doing certain vigorous movements, which makes me think it is nerve irritation. Anxiety? No way. This is bonkers that so many people experience something similar and no one has an answer. I’ve mentioned it to doctors & they kind of shrug and move on. I simultaneously have a kind of uncomfortable nerve feeling & can’t tell if it’s my back or hip. But I have hEDS & have unstable joints and a compressed nerve wouldn’t be a shock. My entire left leg is weak & I don’t know if it’s related but I’m like HELLO DOCTOR shouldn’t we find out??!
Leg with odd pattern of goosebumps on thigh
I just started with this same thing on my left thigh! Did you ever find out any more about it?
???
Goosebump patches
Hi, I'm new to this group. I came across it when googling goosebumps that appear and go. I experienced this for the first time about 3 weeks ago. I just happened to be looking at my leg because it felt like there was muscle movement or something when I experienced an intense tingling and watched as these bumps appeared and then went. Really bizarre! I actually managed to get a photo. My GP said it looked like hives. I know it wasnt. I was diagnosed with epilepsy 30 years ago and took meds for about 3 years after which time it went away. I've sometimes wondered if there was still something going on. For the last year I've experienced a lot of random shooting pains in my legs mainly but also arms and hands and am waiting for an MRI, I'm not really sure what they are looking for. I also have a chronic form of blood cancer called ET and am trying to find out if the symptoms are linked to that but I think not after seeing these posts. I have recently started getting the occasional tiny muscle jerk in my left inner thigh, I'm keen to separate these symptoms from the ET if I can. I hope this makes sense. Any advice ?
I had silent seizures as a kid. Diagnosed with POTS (Neurological disorder that affe ts your heart and cardio system) ive had these patches of goosebumps for about 5 years now. They were bad years ago then wrnt and started up again. They have always been on my right side (arm and thigh eg) i have even gotten them on the top of my head!!! Its so weird..a tingling sensation in my head. Im calling my dr tomorrow. I just dont wanna waste money for physicians to think im crazy.
I know it has to be neurological. But what is it and how will it affect me?? I have bad brain fog a lot, and an awful memory. I just turned 30 and I cant remember anything.. not exaggerating but it worries me.
I just want answers.
Hope your app went ok. Mine were recently confirmed as pilomotor seizures. I had autoimmune encephalitis ruled out too.
Hope your appointment went well! I know I am late to the thread, but when I read your response to this post; I have totally the same symptoms! Except I don’t have POTS.
Bad memory, often suffer brain fog, just 30, these patches of goosebumps on the right side in different places.
If you got any clarity from your doctors visit, please would you share what it was?
Do you guys by any chance have dermatographism or any types of allergies?
It switches between my left and right arms and I’ve even felt it in my left leg but have never caught a picture of it there. It starts off as a tingle and just feels like I’m getting chills on either one leg or one arm at a time. Never more than one. I have severe anxiety. This started at the beginning of covid in April 2020. I went to my doctors and all she had to say was, that’s so cool! But didn’t give me any other answers to anything. Hopefully we can get answers soon..
Did you ever get any more answers?
Such a relief knowing I'm not the only one experiencing this. Good to know it hasn't progressed into smth worse and no body died of it. I was experiencing this on my right tight very randomly today. Nothing triggered it and honestly I thought I was about to have a stroke or smth it was super weird.. but nothing happened it just went away.
I red ppl comments and I could relate myself to being very stressed at the moment and maybe a pinched nerve in my neck/back as i sit all day leaning forward at work and my back/ neck is always supper tense and sore.
I just started with this same thing on my left thigh! Did you ever find out any more about it?
I started with this same thing a week ago, and it is making me very nervous! I get this intense “tingling” sensation on my left thigh, and these huge goosebumps pop up, last maybe 15 seconds, and then go away on their own. I have been pretty anxious recently, but not more than in other times in the past. I fell 3 weeks ago (landing on my left knee) and originally thought maybe these weird sensations were related to the fall, but it would be strange for them to appear a couple weeks after the fall, when my knee is now recovered and the scrape has even healed! I read maybe getting checked for thyroid and B12....Other suggestions?? And, in your experience, do these tingling/goosebump spells ever go away on their own?? Or, once you have them, they stick around? Thank you so much for any advice any of you can provide! i was so relieved to find this thread and realize I am not alone!!!
How are you doing??!
This is a long shot, but does anyone have a problem with Visual Snow Syndrome? I’ve been having a lot of symptoms, and it is a neurological condition. I also get the goosebump clusters!
Hey, I have VS, why do you think it could be related? For as long as I can remember, I've had VS( it's a mild case i think) but the patchy goosebumps first happened in September 2020 then again half a year later... There is a chance that I didnt notice them before because they stay for only like a minute then disappear. I am 21 years old and i first noticed i had VS when i was like 9 or 10 not knowing what it was back then.
I’m 25, and I remember always asking my mom about the snow I was seeing as a kid but never connect the dots until I started getting a lot more visual snow symptoms in January 2021. I started getting my cluster goosebumps in March 2020. I just wonder if they could be connected because from what it seems, it looks like they’re both neurological conditions. I just posted in a visual snow group to see if anyone else might experience this as a symptom.
I would guess it’s a nervous system irregularity. Only reason I’d guess that it because years ago I was off and on crystal meth. Those goosebumps would do the same pattern on my left arm 2-3 days after I last used. Not when I was cold, but when I heard a song that gives you chills. Basically emotional/mental stimuli made the weird goosebumps happen. If it was external stimuli, then I’d have the goosebumps everywhere and not in patches, like normal.
32 y.o female with the same thing
Sx: parasthesia, weakness, numbness and muscle twitches started in 2016 within 48 hours after a Rhesus Macaque monkey bite and the various related vaccines
Hx: Multiple allergies, asthma and eczema. Born oxygen deprived. Severe bacterial tracheitis at age 8. Multiple concussions.
Rx: 40mg Vyvanse q.d for ADHD
Ix: Normal LP, EEG, EKG. Normal MRI with mild bifrontal hyperintensities. Brisk reflexes. Borderline low B12. EMG abnormalities
Other: Remitting/relapsing symptoms since 2016, complete recovery at points
Dx: originally suspected Gullian Barre Syndrome
Being worked up again with follow up MRI and sleep deprived EEG in 1 month. Will post diagnosis if received.
Goosebumps, left leg
Did you get a diagnosis?
I’m on 40 mgs of Vyvanse too since February, and this symptom of random goosebump clusters started a few weeks ago
We’re you ever able to get a diagnosis? I have your exact symptoms
I never received a diagnosis, but 300 mg daily of pregabalin have made almost all symptoms disappear. It took about 3 months but I’ve been nearly symptom free for a year.
Prednisone at a high dose also curbed symptoms immediately, but was taken for something else very briefly.
My MRI and EEG findings were normal.
Are you still taking it ? Or were you able to stop the medication???
Happens to me to, left leg. I do have a lot of food sensitivities and some migraines.
Goosebumps
And it’s 79 degrees right now. And one more thing. I had nerve damage on this leg from a compound fracture.
Same here, male 37 years, never got this before and yesterday I got it like 10 times in 12 hours (afternoon and night). Cluster goosebumps for 20/30 seconds, then skin back to normal.
The day before I I shaved my arms with a razor blade, so this is is probably linked to that (strange thing, I see that every photo here has a shaved skin, no hairs), but this is happening only in my right arm ( and it happened every time in the same spots). My father grabbed this photo.
Thank you everyone if you have new info! A hug from Italy!
Keratosis (on your left): I have it since 10 y old.
On your right, cluster goosebumps
I have this as well, have for 2 years now. Got an MRI, it’s clear.
Hi everyone, I've got this going on as well. I've not been diagnosed with anything, but have been dealing with health problems for a few years now.. I'm hoping to be tested for lyme/bartonella and heavy metal toxicity (mercury, specifically, from large old amalgam fillings). Anyone else suspect they might be suffering from either of those?
unusual patches of goosebumps along right thigh
52 year old female. This has been happening to me for the last 3 years. I suffer from migraines /cluster headaches and my legs get so painful at times like bad growing pains in them. I get tired really easily (could be my age though) and more often then not I feel generally unwell.
Patches of goosebumps
I have been experiencing a weird tingling sensation and then breaking out in random patches of goosebumps on my arms for about 11 years now. As I grew up on a wonderful diet of eating only hot dogs, I figured I had some weird neurological syndrome yet to be discovered. I now get these patches not only after eating hot dogs, but also after eating any kind of processed meats.
Has anyone here noticed a correlation to eating processed meats, like hot dogs or Spam, and then breaking out in these weird-feeling goosebumps?
I swear I don’t break out in these if I avoid processed meats.
For me, the first appearance of the patches (over a month ago, yesterday I got the second "appearence") took place after eating a particular type of Greek yogurt that, coincidentally, I consumed abundantly even 2 days ago ... here there could be a link
It happened to me again yesterday (about 40 days after first time), always on the same arm but in different spot ... The other time it happened to me the day after an hair removal to my arms, yesterday it happened to me while I was shaving my hair ... I think somehow there is a connection.
Yesterday I was in front of a mirror and I was looking with great attention to my body, I was able to "trigger" the issue moving the hair cutter in a discomfortable way were the hair were too long, giving me goosebumps. At a moment, I was able to trigger it even only by thinking to objects with holes that I hate (the name for this kind of phobia is "trypophobia").
Another thing: the first appearance of the patches over a month ago took place after eating a particular type of Greek yogurt that, coincidentally, I consumed abundantly even 2 days ago ... here too there could be a link
Been having the same problem on my left arm close to 2 years and I'm used to it now but it's always kinda strange.
I also have this! I was searching about it in hope to find an answer, when I saw your pictures and was like "that's it". Lol guess I will read on. Thanks for sharing your pic. I try and get a picture but it comes and goes so fast. Cheerio 😊
Did anyone ever get an answer. Had this for a few months and really worried about it. Only happens on my left thigh. Same feeling and then goosebumps for about 15 seconds and then it disappears. I can tell my dr thinks I’m crazy. No help there.
Photo
I think its alergic reacion cuz if it was stress id be covered in this 247 today i had kams tablets (valerian root) and i drunk it with camomile tea and not long afterwards i started feeling tingling in the right leg but didnt pay attention to it and only when i sat down in my pjs it came back and i recored it came and disappeared within seconds
I started getting these patches about 8 months ago. And they would always last 10 to 15 seconds. 2 months ago some of those patches decided to stay on my arms and chest. Dermatologist doesn't know what it is. In just one year I got diagnosed Psoriasis, with Hyperthyroidism, Hashimotos, Psoriatic Arthritis, bulging disk in lower and upper back, and Fibromyalgia. I feel like that stress was taking a toll on me and that is exactly when these patches started showing. My only advice is to try to not think about it. It will get worse with stress.
I have these goosebumps too and I know what causes mine and no one else has said the same thing and I’ve read every comment. I’ve been experiencing them only on my left thigh now but when it first started happening there was a small patch on my right thigh as well as heaps on my left thigh. Started about 1-1.5 years now (that I’ve noticed) and I feel like it’s getting worse with time. Every time I orgasm, they appear. As I get more and more intense they get more prominent. As I get less intense they dissipate. This happens before my eyes in seconds. As soon as I climax, they are at there peak and then they die almost immediately. I can’t explain how relived I am to know other people experience this but on the other side, I’m concerned no one has mentioned it happens when they are orgasming. I want to know why it’s happening and if it’s dangerous. I would be good to get researched on for this because I guess I can control it and do it on command.
If anyone can tell me if they have experienced this PLEASE let me know. I have videos of them coming and going.
I’m also going to start my own post with this because i am the only one here who can “control” or “bring them on” I guess.
Do you think it’s still the same condition as everyone else who has commented ?
Sorry about the photo quality, it was bad lighting.
Mysterious cluster goosebumps
Having goosebumps with arousal is normal response from your nervous system. If it’s one sided your autonomic nervous system may not be balanced. But if that’s your only complaint - it’s not a big deal. If you have other neuro issues- may want to consult a neurologist .
hey autoimmunie, they are clusters though, like everyones photos on here, not normal goosebumps. my doctor said its because of flight,fight, freeze or fuck.
I thought i was being touched by someone I couldn't see😳
!!!!!!!!NOTICE!!!!!!!!I have this! I haven’t seen a doctor about mine however have discovered a likely cause. I have scoliosis and only suffer from these goosebump patches on my left side. I have made a direct link to the patches appearing and certain positions I am in. The patches are caused by the pinching of a nerve. For example, I get the patches when bending a certain way to shave my legs or reaching to grab things. Although a pinched nerve is never a good thing, if the patches go away after moving out of certain positions or a certain amount of time I wouldn’t be overly concerned (especially if you suffer from scoliosis or similar conditions or are already aware of nerves that pinch). However if the goosebumps stay for a long time, you have no known conditions or pinched nerves that could cause this or you are at all concerned I would highly recommend talking to a doctor in neurology or even just your local gp to get their opinion!!
I have an Instagram page where I post and chat about my conditions including but not limited to scoliosis and pinched nerves every now and then and talk to people via if you feel the need to get in touch @chronicallygeorgialou
I’m always more than happy to chat
I have been experiencing the patches of goosebumps since 1998. I have seen a neurologist and had tests taken with no results or diagnosis. I gave up smoking in the year 2002 and noticed a decrease in the goosebumps, though after a while returned. This occurs on my legs, arms and I feel it on my sculp and face. It used to happen nearly every 15 -30mins (aged 30s) and drove me insane especially on the face and scalp. As years have gone on (40s) they have reduced dramatically. I believe to my own experience it was when I started to see a chiropractor/ physio and increased my fitness that they began to decrease. I think a lot of it was due to pinched nerves (well that was all I could point it too and my own opinion).
Hello! I completely agree! I have super tight hip flexors and have noticed a direct correlation between this and hip/back pain. Unfortunately I have it after I run, and I love running. But I took almost three weeks off from working out and didnt have it once. Hoping to see a physical therapist soon to figure out how to fix my muscles. My doctor said the same thing and that its NOT seizures unless I feel like outrageously diff/exhausted after. Also said it could be a vitamin deficiency but was confirmed not to be that by blood test. I also had a back x ray and nothing is wrong significantly. Definitely seems related to sciatica nerve issues and pinched nerves from a tight piriformous muscle for me!
Also happy to chat if helpful
Did you get medicine for the pilormotor epilepsy? Did it help ?
I have been experiencing these patches of goosebumps on my right forearm for a while, but it has been more frequent in the last few weeks.
I recently started taking Lexapro, so maybe that's related. Just a few moments ago I had the goosebumps come (for about 20-30 seconds) and disappear, then reappear a few minutes later. This was repeated about 4 times. I don't know if I'm just in my head too much, but I felt like maybe the back of my head was pinched feeling during it?
Let me know if you guys get any updates.
Weird patches of goosebumps on my right forearm
Update, they occur multiple times a day sometimes
they show up whenever I feel anxious
really weird
I've returned to this page after looking for answers 5 years ago when it first started. Several doctors have fobbed me off. It goes away for a while and then starts again. The main things I notice are 1. It happens more frequently in summer 2. It happens when I have an infection such as a urine infection 3. It occurs more when I am stressed.
Reading what others have said, the things I can relate to are - that it happens mostly on my left thigh. However, sometimes I get chills and they appear all over my body, but mostly on my arms and thighs, and I also went through a traumatic event when my partner committed suicide. Around 2 years after this, I abused drugs for around 6 months and have been a heavy drinker and smoker, and this is when it first started - now I am clean, apart from an addiction to sugar! - I was diagnosed recently with ADHD, hence the struggle with stimulation seeking.
A recent blood test has come back signifying possible liver malfunction and allergies - I'm due to do a breath test in 3 weeks and get my results in October. The reason I had the blood test is due to prolonged bloating, headaches, and fatigue. There are many things this could be so I will report back when I receive the results, but I'm curious to know if anyone else can relate to the drug abuse/ADHD part.
Seems like this forum has died out. Which sucks because nobody has answers and i just started experiencing this myself. I get this on my left forearm and on my left shoulder blade.
Things i can relate to your experience is
I am also a heavy smoker. And a sugar addict. I drink a lot of mtn dew.
I often get headaches & i abused Adderall for about 3 years and struggle with meth addiction for about 5 years now.
Do you struggle also with Anxiety? This might be something we all have in common…
Did you ever find out what this is? I am having the exact same thing on my right calf! Just started today. First felt a prickling sensation like something bit me when I was watering the garden. Hit my leg with hose water. All seemed good. About an hour later felt the prickling feeling again and looked at my leg and saw weird random bumps. They only lasted about 30 seconds and they went away. Just went to bed about an hour later, and turned out the light. Felt the prickling sensation again turned on the light and there were the bumps again. I videotaped them on my leg and then showed them fading out within 30 seconds. Super weird.
Color photo evening indoor lighting
hey! How are you doing? Any update?
I get these as well…very weird, reading through all the comments, things such as POTS, hEDS, MCAS are all mentioned. These are things that both Covid and the vaccine can bring out. Mine started after the vaccine. I was also diagnosed w POTS as well. Does anyone know if these things are all related? I’ve seen multiple neuros and none of them had any idea of what was causing the random goosebumps. I also have 5 biopsy’s for SFN and they were all negative.
Leg showing random goosebumps
I was diagnosed with pilomotor seizures in the end with these.
did medication help ?
Yes I have taken Keppra for two years on a very low dose and they have almost stopped. Confirmed as temporal lobe epilepsy. How are you getting on? I saw you’ve also been prescribed an AED
Doctor said it’s not epilepsy since EEG and MRI were normal. I’m now 2 weeks on Gabapentin. Had 4 days completely without those goosebumps. Yesterday a few because I was super stressed and anxious.
Did your EEG show abnormalities? Or the MRI ?
My MRI and EEG were normal (which can happen in epilepsy) but my neuro still suspect epilepsy so we trialled Keppra and it took the seizures away. After that, he confirmed the diagnosis. I’m on such a low dose that I do experience break throughs occasionally when stressed or very hot but so rarely. Glad you’re doing better!
I started having them too, first noticed in November 2022. First on my right tight, then whole right leg, sometimes right arm and now also left tight.as by others first strange tingling like electrical buzzing and then they appear for 30 seconds. Saw 3 neirologists so far, they have no clue.i m the one who demands this or that test done, cos they just say they have never seen smth like this, maybe its dermatologist field etc.
In sommer 2022 i got pretty sick with something that made me have naussea for 3 month, occasional vomiting and headaches.otherwise I had 3 pfizer shots done,was never covid positiv.
Im just curious that many started having these abnormalies in close timeframe to covid illness or vaccination
EMG ok, bloodwork for vitamins, ANA, lyme negative, waiting for EEG.
Cluster goosebumps
any updates on the EEG ?
Hi! Normal EGG,normal MRI brain and spine,all possible nerve tests also ok. I guess i did more tests than Dr even know can be done
but they think its migraine related, even when there is no headache.
Hi. Did you do the EEG prolonged so that it recorded the goosebumps? Do you still have it ? Everyday? Because that’s what I’m having since 3 months…
Hi, no it was the 1 hour eeg and i did not have a feeling of goosebumps then.spoke about this to one dr and she said that even if it would be epilepsy she would not suggest to treat it at all as medicine would have stronger side effects than my sensations. I am having every single day several episodes either on one of the legs or arms.in the beginning it was driving me crazy , now I already got used to this.after seeing so many doctors- the best ones from New York neurology departments i just understood nobody knows what it is.but its crazy rare as one dr professor in neurology told me he has seen it only once before .
thank you for your reply.
I am having it too, everyday. But it’s so hard to get used to the feeling. I just hate the feeling. My doctor also doesn’t know what it is. I guess we just have to live with it now ????
Hi everyone... Any update on them goosebumps? I have them for about 6 months now
omg I have been getting them on and off for years in my forearms, and the doctor doesn’t know what it is either and just flipped me off with a fight or flight? However when I’ve looked into it it is a sign of many seizures. The only things happen when I’m very tired. Haven’t really looked after myself or very very stressed or down. However, lately it’s been happening only mainly in my right leg in my calf and my shin just like you the doctors now thinking it’s my new medication but I really don’t think it’s linked to that
Any answers or options welcome
I’ve googled it and of course there is so many different things that it could be. The doctor doesn’t really know I’m just lately it’s happening on my arms and legs
Hi. I am experiencing those goosebumps since April this year. I have it every day probably 5-15 times.
I went to the doctor but she keeps on saying it’s my anxiety. I had several tests done, they are all negative.
Here’s what I’ve been checked for:
- Blood Panel complete
- Thyroid test
- Urine test
- Vitamin B12 and D deficiency test
- ASO blood test
- Stool test
- CRP blood test
- ESR blood test
- EMG of lower right leg
I just cannot believe it’s stress or anxiety. I have it when I’m relaxing and when I’m a little bit anxious. It starts everyday circa 30minutes after getting up.
I am healthy, 30years old, smoker, no bigger medical treatments or anything in the past.
It started around the time when I stopped taking St. John’s Wort for anxiety. I don’t take any other medication.
Maybe anyone else here with similar experience?
it’s strange isn’t it the last time I had it was on both forearms when my father was passing away and poorly a couple years ago I haven’t really had it much since. I started mitazapine about 6-7 weeks ago and I’m wondering if that is not helping either but it’s all down my right leg and is happening right now
I lowered the does to 7.5 mg so it’s very small dosage but I don’t want to stop it if it’s not that
This is my leg this morning and quite bad
maybe it’s also stress related?
I doubt that we all have undiagnosed epilepsy from what I read here…
same thing. I have them on left thigh and only once on right. Not on any medication but def high health related anxiety over the years due to unexplained symptoms. Had a pain in the back of my head for the last few years after covid vaccine that went wrong. Had Ct and mri which discovered borderline chari malformation which docs all say has no effect at all on my body as only very slight at 5mm. Food intolerances for years, aura with and without migraines and loss of vison at times. Tinnitus started same time as headaches. Patches on leg feel so cold compared to rest of thigh and doc said it’s pregnancy related due to nerve in my back. Will be interesting to see if it continues once the wee one is here. Scary to read how many people have this and epilepsy. Docs say it’s uncommon yet loads of threads on here. Hopefully they all disappear for us all. Body twitches all over my body for the last year so I’m guessing mine is brain related
I found answers. Have been dealing with those patches of goosebumps since 5 months. Have been checked for everything. My neurologist says it’s anxiety related and prescribed me 100mg Gabapentin (once per day at night). It calmes the nerves - goosebumps are reducing drastically since I’m taking it (so far I’m taking it 5 days).
Hope this will help someone. Of course check with your doctor first.
Thank you for this! I’ve had mine for about 5 months, too. This is really helpful!
Im supposed to take it now for 2 months and then check again with the doctor. Not all goosebumps disappeared so far - maybe 3 per day left (from 15-20 times) , the tingling went almost completely away and some patches don’t show up anymore. I’m now in week 2 of taking Gabapentin.
My epilepsy medication has almost totally stopped mine. It’s the lowest dose and I’m told that if I took a slightly higher dose they would go (trying to manage side effects though). My break through seizures happen when I’m really anxious or overheated
What medication are you taking and how much?
Keppra
Do you have any others symptoms than the goosebumps? How did they diagnose it ?
Just the goosebumps - same thing every time. A trial of AEDs paired with those symptoms (pilomotor seizures) confirmed epilepsy. It’s very rare and not many neurologists are familiar with them. I sought out one who knew what they were
Hi, not sure how active this thread still is but I’ve been experiencing this on and off since 2019. I saw a doctor about it but they didn’t know what it was and were dismissive. It’s been especially active recently and I decided to research the symptom myself. I get a tingly sensation and then the patches of bumps appear on my leg for up to 30 seconds and then disappear. It’s not particularly bothersome but it worries me that something may be wrong with me.
Patches of “goosebumps” on thigh
I have these goosebumps for a year now and no idea why.... I'm not anxious or stressed but I do have bad back so I was thinking it has something to do with that. It's just so uncomfortable and it comes anytime mostly when I'm relaxing (sitting or laying down)
Could be a focal seizure. I get these and I have focal seizures. I can feel it coming in the back of my head then these will pop up. Speak to your neurologist about epilepsy. You don’t lose consciousness with focal seizures
I started with this 8 months ago but it was after a c section and just put it down to nerve damage if anyone has had surgery. I only get it on my left thighs but it sometimes goes upto my hip and groin area.
I have a very similar thing happen, but on my left leg. I get random “patches” of goosebumps and I don’t think they’re from being cold. I can’t remember fully, but I think the first time I experienced them was during a panic attack and then I would get them randomly every few months. They also last for 15-30 seconds and happen multiple times a day and then won’t have them again sometimes for months.
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