We must take special care to listen to those we trust. When this condition confuses everyone, we quickly learn that may be nobody. We trust nobody, really. How can we? Everything we are and do is contrary to what it should be. What is, isn't, and what isn't is everywhere.
Does that sound like a riddle? Then you must not have FND. We are an enigma, but never called one. We are instead called family secrets... crazy, eccentric, hypochondriacs. I can be fine 1 minutes and completely unable to remain upright the next. 1 step is normal and another will cause screaming pain with no cause. How easy is it really to trust people, when even the medical community has a difficult time admitting this isn't "all in our head". I am used to that look. The one that says I am wasting their time. The one that says a consult with a white coat is coming. The one that says over and over, this is not our field, we can't help you here.
Don't listen to those who would have you think it is your imagination. Don't let them place doubt in your mind about your capability to communicate with your own body. None of those people could understand what it is that we face, because they haven't tried to understand it. Don't waste your energy trying to force people to accept you. Accept yourself. Trust yourself. Listen to yourself.
Don't listen to the spiders. What is normal for a spider is always chaos for the fly.
'And now dear little children, who may this story read,
To idle, silly flattering words, I pray you ne'er give heed:
Unto an evil counselor, close heart and ear and eye,
And take a lesson from this tale, of the Spider and the Fly.' (Mary Howitt, 1829)