1st post ... need a rant ... and a rub out and start again miracle.

[MiMiBiBi]

These are all diagnosis I've received from my various consultants and my GP.

Funtional Nurological disorder

Epilepsy

Non epileptic attacks

Migraines

Trigeminal neuralgia

TMJ

Fibro

L5 back damage

Anxiety

Depression

CFS

Muscle spasms

Panic attacks

Clumsiness

Poor memory

Mobility problems

I'm pretty much house bound unless I've got someone with me. I'm now having to use a mobility scooter to get around. I'm only 33 I've got a 10 year old daughter I want something of my old life back. This has all exploded over the last few months after a bad epileptic attack which left me 'out of it' for over an hour which is very unusual for me (I've had epilepsy for years) The fatigue and back problems have been creeping up on me for the last year, but nothing compared to what it is now. Depression has been an issue on and off but I've always manages to get on with life until now. I've gone from working 39 hours in a very intense busy stressful job, which I handled no problem. Now I'm on long term sick wondering if I'll ever get back.

Thanks for listening X

[cgarff]

Oh my goodness MIMIBIBI that does not sound good at all, please get it out of your system.. FND has a fun way of screwing up all of our lives in one way ir another, or really in a million ways or another truth be told. None of us want this to happen, or expected it did we, yet somehow here we are smack dab in it, and it changes your life upside down. I got a cold over 81/2 years ago, and from there on out, craziness. I can say, I am seeing an up side again, thank goodness. But there are still lots of rollercoaster dips and hills here and there, and just like a flip of a light switch it can go from good to bad or vice versa. It's crazy. I have 3 kids, and for most of their lives I have been dealing with this. I feel bad for them, because it takes away from them in so many ways. However, my long term disability turned into loss of a job and federal disability now. It was a crazy fairly stressful job being a fraud investigator for a large credit card company, but that had been gone for 3 1/2 years now. Crazy How time flies.

Well my friend. I dont know if I am helping or not, it is late and I am rambling, try your best to relax, get some therapy if you havent done already, and dont stop till its someone you like. Drs as well. Keep your chin up and just love your daughter. And do your best to look on the bright side. We are all here to help rant to if you need it.

Cgarff

[salfnd]

Hi Im sorry to hear your feeling like this and its sad to say its normal, we have had our "Good" Life ripped from us and now we are left with a life that we dont want or know how to handle . It doesnt make it any easier when Dr or Neurologists dont understand what we are going through or what is wrong with us. We need to find those Neurologists that know about FND and then go from there but I know that can be easier said than done. Are you a member of our support groups? we have a lot of parents in there that have children with FND But also have it themselves so this could be a good way for you to connect with them, Go to our website Fndhope.org if you wish to Join. Please try to find something that you can enjoy, like if you had any hobbies or anything you enjoyed before becoming ill, write them down and try to find an alternative to that what you wrote down. Doing Mindfulness is also good for our brains and body, colouring, writing, Massages, swimming if your able to, Try and do something with your daughter as that is the biggest tonic to make you smile.. Good luck and Please remember to take care of yourself and listen to your body . Sally Admin and UK Patient Support Coordinator xxx

[RobertWT]

Well said oh great wise one of the 7th chakra.

None of us asked for FND. It is rather like an unwelcome visitor who passes wind incessantly, demands to be fed and watered and expects your entire attention. All of the time.

I like rants against this beast. I do so most frequently in the privacy of my daily journal. Hell, I can be so judgemental and self-depricating.

Who am I to moan? I have enjoyef my farting guest for only 20 months. I am coming up to a year since diagnosis.

This morning I went for the first session of physio with a new therapist. I spent 45 minutes conducting a learning session into FND it's statistically likely causes, my hundreds (yes) of falls, the abject failure of any neurologist resident in Ireland to do anything.

Oh heck. I didn't intend to waffle on.

The message is. Keep going. Fight for understanding. Add your stories and rants and keep the hope of a cure alive.

And have a great day!

Robert