New to this site...I am grateful to have found it

[Blessings48]

Hi all...my name is Angela, I am new to this site. I was involved in a

Motor vehicle accident last year March 1. I was diagnosed with functional Neurological Disorder. I have numbness, burning, tingling sensations down my left arm and leg. I have lost some hearing from my left ear and loss some vision from my left eye. I have sciatic nerve pain every day, and back pain. I had just found out that I have 3 disc protrusions in the lumbar area of my spine. Also, I had found out that I have arthritis in the area of the disc protrusions....in which I didn't know I had. I was told by my doctor that the accident had aggravated the arthritis. I had to get a lumbar facet block injections just in April this year.

Now, I am noticing that my hair is shedding a lot in the center of my scalp also it itches so bad in that area. Is that common with functional Neurological disorder. I struggle everyday with emotions. Sometimes I feel like I am going insane...I am seeing a psychiatrist for my emotions...in which are up and down. I have been reading other people's posts on this site and I am so happy that I had found this site. I felt alone, and didn't know that there are other people with the same issues or different type of issues from this disorder.

I am seeing a neurologist at Mass General Hospital as well as a physiatrist from there. I live in Bermuda, and we don't have any doctors here that have any knowledge of this condition. So, my GP agreed to let me get continued treatment from my neurologist at Mass General...and she will work along side with him to help me with treatment.

Again...I am happy to have found this site so I can read other people's illnesses pertaining to this condition.

Thank you for having this website so people with Functional Neurological Disorders can share there stories.

Angela🌺

[Hopeful40]

Hello Angela

I was seen and diagnosed with FND at the Mass General as well for FND.

Hair loss was an early symptom I had as well. I know realize after stepping out of the conventional and doing the Western Blot blood test by Igenex that I have Lyme Disease and co-infections. Have you been accurately tested for this by a Lyme Literate Doctor to rule this out as the underlying cause?

The Center for Disease Control and coventional medical do not recognize Chronic Lyme Disease so the testing they give us is inaccurate unfortunately. Lyme can be dormant in ones body for years and a trigger event like surgery, illness, accident and many other things can have an effect on our immune system which then our body is no longer able to figt off these microbes causing one to become symptomatic.

Perhaps you may want to learn more about this. I now realize this would be a reason that our tests we are given are not showing anything then we are diagnosed with FND. Chronic Lyme is not recognized and the spirochetes hide in our cell walls and are very hard to detect with the testing. It also can effect everyone very differently because there are many strains of borrelia as well as co- infections.

May you find your answers to regain you health.

Kimberly

This is a very good resource for a better understanding.

rawlsmd.com/books/unlocking...

[princessabi]

I am sorry to hear about your accident and the lasting damage it has caused. I know it's hard, but don't give up hope. Remember to do things you enjoy like painting, gardening, just something that makes you happy. No matter how small it may be. Light yoga, breathing techniques, or just sitting quietly with calming music can help you have a better day. Remember you are not alone and you can always message us!!

My husband and I are researching everything we can think of to help our 9 year old daughter Abi with her PNES. We present our ideas to the dr, and when we feel strongly enough about what we have found, demand tests to rule out or help with her illness. It's hard because most Dr's don't understand this illness, so we really put in a lot of time so we do until we can find the right Dr.

Take care of yourself, we are all here for you!!