More tests

[Ronwyn]

Good morning everyone I hope

You are all doing better than I’am Lol

So I have been quite unwell this relapse well this time seems to not be getting any better and the months of being unwell is getting longer and longer with no sign of improvement .

So off I go back to see my doctor as usual with my big list of tests that I want done among those I asked for all my influmation makers one I particular my RF factor as I feel like my body is being attacked by influmation, as I suspected I was right so now I’m off to see a rheumatologist next week . What a circul I have been through . So the good thing is I also see my Neuro next week as well so I’ll be armed up with a shit load of questions.

So I say to you all don’t stop fighting for answers , push for tests a specially your influmation markers.

I seem to be doing more of the reaserching than my doctors so was able to know what tests I wanted done and if I didn’t ask for them the doctors would not have done them.

This is our health our lives they are playing around with and doing nothing is not helping us. I’ve become my own doctor in some ways all I do is reaserch to find answers , but why when I’m not the specialist I didn’t go to uni for years on end to learn this , we don’t give up on ourselves so why should those who are trained in medicine give up on us.

Again I say to all of you I believe you are sick , don’t give up never give up keep pushing for answers somewhere there are answers .

I will know more next week and fingers crossed maybe some answers but I’m not holding my breath as I’ve been through all this before .

Remember you are not alone we all have each other here for support .

Take care be king to your body get plenty of rest, don’t over do it , and remember it is not in your head so don’t let anyone tell you it is , the truth is out there .

God bless you alll

Ronwyn

[Chingona]

I agree with you 100%

If you leave it up to doctors to save you, you will be disappointed. Especially if you have something functional. The first couple times I was in the ER for seizures, they drug tested me!!! Seriously?! then acted shocked that I wasn't on drugs, insisted I wasn't eating enough? or maybe was I on diet pills, or drinking too many energy drinks? ( I don't and have never done either) Had one ER doc tell me I just needed to eat more... gee so helpful!

I've never trusted doctors much (gave birth at home twice, that's how much I don't like them!!) In the last year I've easily gone to dozens and I've had to learn to be more open minded and communicate openly with them, which has left me a little raw at times. They don't usually like what I'm doing (or the drugs I refuse to take) or how I'm managing but as time goes on they are starting to see that I am actually doing pretty well.

You have to be your own advocate, no one else will do it for you. Ask "stupid" questions, take up the doctor's time, and push and push. It's easier said than done I know because it can take many years to get answers. And you have to be willing to get second opinions.

I also believe my issues are inflammatory. Because why else would the keto diet (anti-inflammatory) and THC/CBD oil (anti-inflammatory) be helping me so much. BTW in my neuros notes his only comment on this was "patient smokes pot" HA!

I once read that inflammation is the root cause of all disease.

Ronwyn, Good luck at your appointment, I hope you get the tests you want done! The more information the better! I like your attitude!

Chingona