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Functional Neurological Disorder - FND Hope
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Hi I'm feeling confused I suffered a stroke in 2003 and for the past 2 years have been told It was thought I had ms. After all the test I don't I have Fnd and the physio I saw who told me not my Neuro made me feel like I have made all this up . I now feel like I don't know what to do I know my symptoms are real and I don't want to go to see her again it's Xmas in a few days and I just don't know where to turn can you help me understand what is going on with me please x

4 Replies

Hi Sue , I know exactly how you feel . I have many problems including internal tremor in my body , including my jaw . Severe pain and I cannot walk without feeling I may trip . Muscle twitches in my face and legs . Neuro did Mri and said not MS . So he decided it must be FND . All I get is pain killers ! My memory has deteriorated too . I was healthy and went to the gym 3 times a week . I just feel lost , and even my some friends think I am making it up . The only thing that keeps me going is my little dog . Wish we had a specialist near to us that could help. Sorry I can't point you to someone to help x


No problem thanks for taking the time to reply hopefully chatting to others with this condition will be a good thing for me besides your symptoms hope that you are ok x


It is such a confusing condition to have. I don't even think medical professionals have reached a complete understanding of it yet. I too have been accused of faking my symptoms with a functional movement disorder- moving way too much in the first half of my body, and not enough in the bottom half, dissociative seizures and vision problems. It certainly does feel like I might as well have MS sometimes.

it sounds like you have suffered for a long time. but please don't loose hope. Our symptoms are real and disabling. Don't let her get in the way of your recovery.

all the very best.


Thanks for that you have shown me that I'm not alone in this anymore it means so much


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