Im new here. Just diagnosed last week. Been told i have a combo of Dystonia & FND. Was given websites to look at and sent home.
I found this forum and i need someone to help me understand.
Symtomps come and go.
Usually they follow a period of illness that always involves swollen glands in neck or under arms. Followed by chronic fatigue. Loss of power in arms. Tremor on LHS. Confusion. Double vision. Vertigo and horrific pain and muscle spasms.
So the question i want to ask after reading sites is...
Am i making this all up? Half the sites say its a real thing although kind of newly recognised but alot of Docs either dont know enough about it or are dismissive.
Then other things i read seem to contradict completely by saying its pretty much a mental health problem and it can be cured by talking to a psychiatrist.
What do i say to people? What do i tell my work? Im currently on sick leave and am struggling to return without having to take days off as the fatigue is so debilitating. What do i do now?
Please help. Im confused and bewildered. Thanks.