Help for Carers with FND

[LEEJUNFAN]

Hi everyone!

Is there a support site for Carers of loved ones with FND?

It would be nice to correlate with others as this is an isolating condition for both people involved and having contact would be very helpful especially for those who's families don't offer much help.

Best Wishes!

Tony & Kim

[Bluecat99]

I totally agree. I'm not aware of anything particularly for carers as such at the moment, but I think that the support groups that FND Dimensions are creating may include carers. For my family, it has been a total change in lifestyle, and my husband has ended up doing everything that I used to do, as well as working full time. It would be good for him to meet others in a similar situation.

[LEEJUNFAN in reply to Bluecat99]

Hi there!

Thank you for your response.

If I may leave my e mail address then it would be nice to perhaps converse with each other from time to time.

Always good to share as they say.

This is my e mail:

[e-mail]

Best Wishes

Tony & Kim

[Bluecat99 in reply to LEEJUNFAN]

I have sent you an e-mail!

[Rachh8]

Like bluecat I don't know of anything but maybe a general carers support group might be easier? Alternatively maybe it could be you could start one?

[shurdygirl09 Moderator Volunteer]

Hi Tony & Kim Yes there is a Support group for Caregivers .Its Called FND Hope Carers/Caregivers (https;//facebook.com/groups/6322134...?

[LEEJUNFAN in reply to shurdygirl09]

Hi there!

Thank you so much but we don't use Facebook but I may try it out and see what happens.

Best Wishes!

Tony & Kim

[Switch1975__]

the only carers support group i know myself covers all carers/ caregivers in the uk are the following carers .uk , career center sunderland.

they have sometimes been my life line as even though i have dissociative episodes im a carer to my partner how has bowel cancer and other health condition. but they are only a phone call away . hope this helps .

as they are there for all carers young and old .

[Seaotter2020 Volunteer FND Hope]

Yes on Facebook ! FND hope has a website strictly for carers. Go to the main Facebook page and you should find it there. Otherwise Email me [e-mail] anfpd I will send you a link.