Daytime sleepiness

[Shermag]

Hi! I'm just curious if anyone else experiences daytime sleepiness even after full night sleep. I went to sleep specialist recommended by my neurologist. Anyone with movement disorder in sleep too???

[Dave_1]

Absolutely, one of the main symptoms for me personally, Fatigue +++++++++

Ironically the only thing that seems to help a bit is to exercise, not hard impact etc. I use Tai Chi and exercises called Qi Gong. Many can be done in the chair if needed.

One other thing I would advise is to try not to sleep too much during the day it realllllyyyy messes with productive night sleep. I do succumb a few times a week when the fatigue is just too overwhelming and would be counterproductive not to.

Have you had sleep studies done or would you possibly be a heavy snore.? In any case really hard to deal with. People think I am a drunk walking down the street, makes thinking straight very difficult.

Try your best to focus on the good things and pace yourself.

Best wishes

Dave

[Dave_1]

See Hippy Daisy post. Very common with FND

[Hidden]

Yes and yes, but take it as a normal day

[Borrow]

Yes, Yes and Yes!

Every day not matter what I do an afternoon rest/sleep is essential!

[FND_ Partner Administrator FND Hope Australia FND Hope UK Group Admin FND International Volunteer FND Hope]

We just posted a link to fndhope.org with information regarding a sleep study and FND. Please consider if it is right for you.

Be part of the FND change. Learn how you can participate in research.

fndhope.org/fnd-sleep-study/

[41273416a]

I am tired all the time, no matter how much I slept the night before. Before PSP I slept 5 to 6 hours a night and my energy level was very high. I worked full time as a registered nurse, and many days I needed to stay hours after I was supposed to leave and rarely was I ever tired as I am now. I so enjoyed using my brain at work, but now I sometimes do not recall my own name! Good luck with your endeavor. Mary B

[Switch1975__]

i get the same but i've put it down to a mixture of thing my depression and caring for my partner, also due to having a hiatus hernia that sometime act up and wakes me up.

So if i feel to tired during the day i have an afternoon nap which helps in away but sometime makes getting to sleep at night worse.

[Dave_1]

Read post on sleep studies project. Get involved and as I said to others on the forum, ASK FOR A FULL SLEEP STUDY WITH HEAD ELECTRODES AND BREATHING MEASRED AND RECORDED WHILE U SLEEP.

I am convinced that there is a link of some manner

Good luck

[tatiyana]

i struggle to sleep, feel tired all the time as i dont get no where near enough hours, sadly i have to deal with this alone, my doctor has refused to refer me, ( i have waited 6 weeks for a call back) so not bothered anymore, hope you feel better ish soon xxx