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Functional Neurological Disorder - FND Hope
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Any ideas what neurologist could be referring to?

Hi all, i recently saw a neurologist for a long list of symptoms which he said many are secondary and that the severe short sharp nerve pain i have been experiencing much more of recently he believes is not trigeminal neuralgia, and is caused by something much deeper routed than the trigeminal nerves.

Does anyone have any understanding of what could be deeper routed and causing this? because he has referred me for an MRI but this is not until 29th September and I was too scared to ask what he meant but it is driving me insane not knowing.

2 Replies

check out neurosymptoms.org and fndhope.org . See if anything there resonates with you. Especially check if you've got enough Vitamin B12 and Magnesium in your system, as these are both essential for nerve (and muscle) functioning. Many people with FND have benefited from taking extra B12, even when their levels are in the normal range, but in the lower half of normal.

The latest neurological thinking is that parts of the brain are highjacking never impulses and re-routing them to different parts of the brain, so movement, sensory input, etc gets disrupted.

Common re-routing problems with FND include

1. the movement centre of the brain receiving the impulse when an emotion is not allowed to be experienced fully as it arises, and

2. the emotional centres of the brain highjacking the movement centres of the brain, basically stealing all the movement signals and turning them into an emotional display e.g. crying and/or looking like your body might be throwing a tantrum instead of moving correctly.

Both of these common reactions are done inside the brain, often without your conscious awareness of it happening. Treatment involves

1. allowing emotions to be fully experienced and not squashing them down or suppressing them (e.g. because you are a 'good girl' or a 'good boy' or a boy being told to grow up and stop behaving like a girl. These kinds of suppression mean that these thoughts that you as an adult should be able to deal with (but couldn't as a child), get sent off to the movement centres and appear as seizures and other functional movement disorders. Traditionally, CBT, Cognitive Behaviour Therapy, has been used reasonably effectively with this kind of situation.

2. This one is a bit more tricky. Automatic functions have been highjacked, so you have to learn all over again how to do automatic things without the emotional centres highjacking the messages. Doing the normal movement but at a different pace can help. Walking backwards or sideways can help. Distracting the brain so it focuses on something entirely different can also help, e.g. counting backwards from a large number by some difficult number (e.g. 7 or 13 - mix them all up), or dipping your hand into very cold or very hot water.

More info on distraction techniques are at fndhope.org


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