Questions re FND

[Swim-summer]

Hi I am new on this site and want any information on FND which my husband has just recently been diagnosed with. He has seizures daily which can last from 10 - 45 minutes. We are both struggling.

[Rachh8]

Hi I recommend as well as this site the FND hope Facebook page. Also two websites fndhope.org and neurosymptoms.org which have lots of useful information on it for you to get started on finding out more about it. This forum is really good too. However lots of people have different manifestations of FND and I don't get seizures so I can't really help on that but hopefully these sites will be of some use as well. Getting a diagnosis is half the battle. It might help to be a bit more specific as well. What is it exactly that you struggle with? Love and prayers.

[cathys20]

Good Morning, I am so sorry to hear that your husband has the seizures. Is he aware of what is happening when he is having them? I suffered endlessly with them when this first came on for almost 2 years, as many as 8 a day and yes lasting hours, they are horrible because we are aware it is happening. I was put on seizure drugs, Tegretol and Topomax for years, but now am on gabapentin and primidone. They all seemed to help tremendously. I have never been diagnosed formerly with fnd. I have a movement disorder called dystonia, both hemifacial spasm, spasmodic dysphonia, and paraxysmal dystonia. But I believe I have what most of the others on this site have which is an undiagnosed movement disorder that they have labeled fnd. Are you in the states? If so you could call and talk if you think it would help. Let me know, God Bless, Cathy