urinary/bowel syndromes

[kmvalade]

I find it interesting that most every time I search on symptoms about urinary and bowel it speaks to incontinence and IBS. What about retention of urine? what about other bowel issues. They did a resection of of my bowel and all they could tell me was that it "died". the specialist said he called it "colonic inertia". that was is 1998. That wasn't even a known disease. Now 2015 and i'm having tests run for possible MS. My bladder stopped working which can cause kidney damage and i've been on a catheter since July. I'm going to have a procedure done in a couple of weeks that inserts a tube through my stomach to my bladder and I'll be peeing out the end that is outside my skin that is covered with a cap. Does this throw me out of the FND population?

[angelite]

Hi kmvalade,

These seemed fairly comprehensive sites :

medicinenet.com/urinary_ret...

ddc.musc.edu/public/symptom...

As to whether it throws you out of the FND population - I think it depends on what scans and tests show. If they can pinpoint a physical reason for the malfunctions then I assume you will get a 'proper' diagnosis rather than a medically unexplained category like FND. Hope the websites are useful.

Kind regards, Angela x

[kmvalade in reply to angelite]

thank you so very much.

[cathys20]

Good Morning, They call that incontinence issues when we have bowels that do not move properly and bladders that do not function properly. I too have both issues. They say I will probably have to start catheing soon. And I now take several medications to move the bowels, and even then it can be a week. Is if fnd? I imagine whatever that really means. Our brains are so complex and ours are misfiring, everything comes from our brain. I hope they investigate further with you. If they don't again know there are many of us. We are all here to help. God Bless, Cathy

[kmvalade]

Bless you too Cathy. Thank you for taking the time to share. Kat

[Danslatete]

I use a minicath 3x a day I have bowel issues. I have damage to my spine, although they say it could be from previous surgery not from the state of the spine now.

[kmvalade]

Thank you for sharing. I was so afraid when I faced surgery on my bowels back in 1998 that I would have to have a colostomy. After the surgery everything was "normal" (totally different from what I had been experiencing 1x every 3 weeks and go one for 3 days). Now I'm dealing with the a different bowel issue and am again concerned about having to have surgery for a colostomy. From what you shared it looks like options may have changed with technology since 1998. Perhaps it's your phrasing of "minicath". I love to sit at my computer and research...thank you for giving me something else that I can look into =) I wish you the best

[Danslatete in reply to kmvalade]

They're called. Actreen mini cath, made by Braun. They are tiny and took me about a week to master! Not at all painfull, mind you I don't feel much down there!

I have them because I don't know when my bladder is full and I was leaking. I was dreading the appointments with urology but it very down to earth friendly and very helpful.

Test are not too bad, a tad embarrassing but worth it.

Hope it eases your mind a little.

I have a neurogenic bladder, there was someone on here that sent me a great message and I really appreciated it.

I'm also waiting appointment with gastro for my bowel issues. Hopefully that can be fixed and I'll not have to carry spare clothes any longer!

[Sutta]

Hi sorry to hear of your problems. I too couldn’t empty my bladder for over 10 years and was fitted with a suprapubic catheter “through stomach into bladder”

This is why I think FND criteria needs more definition or another name for people like us. Supposedly FND criteria causes no physical damage so I question what it is we do have if it’s not ms.

Hope all goes well for you xx