Functional symptoms: Hi all Been to my... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Functional symptoms

Kittykatxxxxx profile image
5 Replies

Hi all

Been to my symptoms are likely functional /anxiety . Pins & needles numbness , bladder etc . What would be the treatment for this ? I don't feel any better for this diagnosis .

Thanks

Kat

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Kittykatxxxxx profile image
Kittykatxxxxx
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5 Replies
angelite profile image
angelite

Hi there Kat,

For a start- do you feel you are suffering from anxiety ?

If so, treatment for the stress/ anxiety eg. psychology /possible medication/relaxation techniques would be appropriate.

Perhaps you could give some more background on your symptoms/ onset etc. ?

Kind regards, Angela x

skifast profile image
skifast

It is called the Black hole , we all are or have been there several times depending on how long. I have been dealing with for 6 yrs and was just diagnosed in Jan. at Stanford Neuro Science Ctr. What is your geographic location. I am an advocate for FND and have helped produce "The Hidden World of FND" Their will be more to my story soon. I am compiling photos and footage. For 6 yrs and 200 plus Dr vists you do not need to tell me how frustrated or the anxiety events. I understand. it is something you have to learn to defeat in your mind. Use sports or and meditation for relief it does work. Also visulaztion. I am currently struggling to keep my vision and working on vision therapy while I am recovering from Achilles surgery from ski training for US nationals last Jan 22nd. My arms and hands barely function but I do not care!! I still have to wake up and enjoy what God has given myself as a task that can be done. I work on controlling the disenegration everyday with diet , attitude and exercise. It is not pretty most days but I WILL NEVER GIVE UP!!!!! I hope you fell better !!

sanyay profile image
sanyay

Since being diagnosed with functional disorder caused by stress and anxiety after 18 months of tests in January 2015 I waited for a second opinon with another neurologist and he confirmed the diagnosis in MY APPOINTMENT ON May the 6th. I was devastated and became more stressed and anxious and really depressed by it. FEELING UNABLE TO COPE WITH THIS I decided to pay and see a orthopaedic consultant to see if there was anything he could do for me, within 5 minutes he told me what was wrong and that I needed an operation on both hands urgently and he feels that I will make a full recovery. I was clearly put under neurlology who could not diagnose my problem so just dismissed it as being functional instead of it being a mechanical problem. I am now waiting for the operation but at least i know now that something can be done and also know i haven't got stress or anxiety

Newly profile image
Newly in reply to sanyay

Just read your story Sanyay and thank goodness you are getting the help you need! .. Why can't neurologists just say .. we've explored everything, can't find a diagnosis for you in this dept but maybe you should be in another dept rather than using FMD as a don't know diagnosis and FMD is .. as far as I can see nothing but a catch 22 situation. Should you dare to disagree then your not accepting it as a diagnosis and in there opinion never recover! but logically speaking .. people don't recover if they are not getting the operation or treatment they need and how ironic that everything & anything can fit in to a FMD diagnosis, and it's none specific! I'm glad you decide to fight and not just accept as gospel what two neurologist told you .. Good for you I say!

sanyay profile image
sanyay

I just wonder how many others that have been told it must be FND just be been left suffering in this way. I feel for everyone who has FND as it is a terrible illness to cope with but surely there must be lots of others who have been sent away and left feeling hopelessly distressed, depressed and confused by being misdiagnosed. My message is keep searching for answers.

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