I'm new to this group and hoping I actually belong here. Not entirely sure.
I have chronic migraines of multiple varieties, (unilateral & bilateral, with visual aura, Vertiginous migraines, Drs also suspect I get cluster headaches).
I also have sensory processing issues (photosensitive, hyperacusis, acute hearing and tinnitus and phonophobia; all diagnosed even though they sound like they are the same!!).
Due to the vertigo I also now seem to have a balance disorder. I'm getting problems with sensation, my entire body, especially the arms and legs have had numbness and paresthesia for 13 months now (getting worse).
All my symptoms or conditions seem atypical which makes diagnosis hard and treatment, at this point, impossible. I'm on no medication as the last time they tried medication I ended up on 26 meds a day, and had a very bad psychological reaction! Didn't notice them helping either.
I've been requesting a support group referral from gps who say I'll get it once I'm diagnosed, and as soon as I'm diagnosed I'm told such things don't exist, so hoping this can be a support network for me. And hopefully I could offer support to others too.
In case thanks for reading. Wishing everyone spoons and good health~