fnd and neuropathy

[paulina57]

I was dx with fnd a few years ago, also had dx of cfs and fibro, Ive got a break at t4 and syringomyelia,my symptoms are getting worse, bowels bladder, cognitive , reading writing speak etc, and neuropathy, my question is can fnd cause neuropathy

[skifast]

What we all have is the domino effect on our body which is devastating everyday to the point we can not control. I am constantly reinventing ways to rehab myself with sports diet meditation. It is very difficult as time goes on. Stay out of the black hole by keeping busy with a pasion you have for life and family, even though they do not understand all the time See "The Hidden World of FND" by FNDHOPE.org

[angelite]

Hi there Paulina,

This is a link I read regarding neuropathy and whilst there are many causes it also appears that some are never found:medicalnewstoday.com/articl... What symptoms of this are you having ?

Syringomyelia is often caused by Chairi malformation or a blockage in the spinal fluid circulation-is your break at T4 causing this ?patient.co.uk/doctor/syring...

As for FND I like to think it stands for Frankly No Diagnosis.It is not a specific illness like MS or Parkinsons but rather a collection of neuro symptoms of wide variety that doctors cannot or in some cases will not investigate further.A category to put us in rather than a 'Diagnosis'.Hope these websites are of some use to you and you can tally some of your symptoms with them. x

[paulina57 in reply to angelite]

my symptoms are chronic pain, fatigue poor mobility, bowels and bladder are very bad, emptying bowels with no notice, bladder only half emptying,numbness tingling, etc , all the fun of the fair really

[angelite in reply to paulina57]

Oh dear-not a funfair I'd like to have a day out at : (

Have your doctors told you the cause of the syringomyelia ? It would seem that a lot of your symptoms are attributable to this,depending on size and location.Have you been scanned and cleared of chairi malformation ? Had spinal MRI etc. ?What treatment for symptoms have you had ?

Depending on the type of damage to your spine,this can also give rise to symptoms :emedicinehealth.com/vertebr...

So a possibility of two main problems that would cause some of your symptoms.I would not personally be happy to have these symptoms dismissed as FND and would be seeking further explanation.

As you seem to be having cognitive problems also,I would advise writing/printing a list of questions/concerns to take to appointments with you,if you do not already do so.

If your bladder is not fully emptying you are at higher risk for UTI (Urinary Tract Infection )so be aware of the symptoms for this :

kkh.com.sg/HealthPedia/Page... and symptoms : nhs.uk/Conditions/Urinary-t...

I may well be repeating info you already know here but just trying to cover everything : )

So,my advice,back to docs,be in their face-get some answers !If you have a friend or relative that could accompany you it might be of benefit,to help you ask your questions and remember details of the conversation.

Best of luck, Angela x

[paulina57]

Ive seen a ns at walton and he dismissed my syrinx I havent got chiari, I was taken into A&E last week ans assessed as needing another mri full spine and back to neuro, and no I dont think Ive got fnd, it seems they label alot of us wrongly

[cathys20]

Hi, Sorry to hear all that is going on, when our health is a concern, it starts to take over our lives in the beginning. I Agree with one of the posts above, FND is an umbrella term for anything Neurologic that Dr.s cannot explain. It must be in our mind, well they have that right. I believe and have said over and over, a part of our brain is damaged, not transmitting signals to wherever correctly. For whatever reason, this damage does not show up on MRI's or CT"s that does not invalidate them. They are real. Someday FND will be called something else, most possibly brain damage, caused by a number of things. Trauma, surgery, injury, chemicals, whatever but it will be labeled as neurologic damage to the brain, the same as we see MS and Parkinsins and countless others.

I recently read in my dystonia news letter, that secondary dystonia, which I have, may have other neuro symptoms unassociated with dystonic symptoms. I took great comfort and give the Dystonia society Praise, for coming out and saying this. I firmly believe secondary dystonia, as does the DMRF believe, is a brain injury, and as in all brain injuries affects different aspects of the brain.

I am not sure what may be wrong with you, I do not have a lot of pain from my dystonia, or fnd, only during dystonic storms. I do have a lot of pain from my back, I have severe arthrosis stenosis of L3,4,5, this affects my back, buttucks, legs, and feet. And yes neuropathy is part of all of that. It is horrific, also believe this could be genetic, as both my mother, father, and brother all had severe neuropathy. So much the medical community does not know, but let us remember how many years ago, dystonia, was not heard of, fybromyalgia, countless others, it will take time, but they will get it right eventually, till then we support and encourage each other, we are not alone. God Bless, Cathy

[paulina57]

thanks guys, Im going for yet another mri to see if the syrinx is causing the problems, Im 57 and feel 97, struggling to walk today, but Ill keep going lol