Hormones

[angelite]

Can any of the ladies here correlate the worsening of certain symptoms with a particular time in their monthly menstrual cycle?My IBS (since 18) has always been worse at regular times and the burning tongue/dry mouth I am left with since illness is regular as clockwork.I had my hormone levels checked(though sadly not during a burning tongue episode) and was told normal and wondered if they were missing possible peaks and troughs by testing at the wrong time.

[moxie81]

Absolutely! I have the same thing happen with my symptoms. Actually, I had asked the same question in a facebook group last year and many of the ladies confirmed the same issue. So please know you're not alone

[Maia7 in reply to moxie81]

Here some info it's not about FND especially, but I feel that this info could be for FND as well. Still to little specific study has been done on FND.

The role of the menstrual cycle in affecting neurologic function in chronic disorders of the nervous system has received surprisingly little attention. Hormonal fluctuations are known to modify a host of physiologic and psycho-logic parameters in women. The purpose of this chapter is to review and explore the available literature on the effect of the menstrual cycle in patients with spinal cord injury (SCI) and multiple sclerosis (MS) and other autoimmune diseases. Traumatic brain injury (TBI) and stroke are other chronic neurologic conditions in which the menstrual cycle could affect neurologic function, at least on a transient basis. During the menstrual cycle, alterations in the systemic concentrations of hormones can produce direct and indirect effects on neurologic function. When superimposed upon the injured nervous system, these effects can be magnified and can result in changes in the functional abilities of patients and can worsen symptoms such as fatigue and spasticity. This is particularly true in patients suffering from MS. The time when this is most likely to occur is at the end of the cycle, when there is a sudden drop in the serum concentration of estrogen anprogesterone, and menses begins.

link.springer.com/chapter/1...

[MyBDay]

My movement disorder is significant worse when I have PMS and levels off again with 36-48 hours of my period starting. Does that help?

[angelite in reply to MyBDay]

Thanks, that's interesting. How did you come to be diagnosed with psy md ? I was told I had this when first ill due to a clear MRI and correlation in some symptoms. I was suspected of having Encephalitis for a while, as my white cells/lymph nodes were up for 5 months. My movement disorder slowed and stopped after 6 1/2 weeks, morphing into blood pressure drops/ circulation issues and adrenal exhaustion. I developed spasticity in the 5th month.I have several probs indicative of Acquired brain injury, now 2 1/2 years later but was put down as FND and no further tests or interest shown.

Can you recall any event such as a virus, surgery or head injury before yours began or do you have a reason to believe it is purely psychological ? Angela x

[MyBDay in reply to angelite]

My problems started 18 years ago and it took me until last year to get an official diagnosis put to it. That was the 6th neurologist. The 5th one left me with "there's just a lot about the brain that we don't know." I have been trying to piece things together as I've learned more. It started with an arm twitch and it now impairs every part of my body when it acts up. This is what I'm having trouble remembering at the moment, but, right about the time it started, I discovered a lypoma, or "fatty tumor," that had grown right over my spine. I had it removed. That part of my back still bothers me and I occasionally get bothered enough that I go see a chiropractor and that helps things. I also had an issue with medication that made things much worse. I am bipolar with ADD. I was put on an ADD medication and, about a week after, my symptoms went haywire. That's when I went from a few interesting twitches and verbal tics to absolutely crazy. I went off the ADD medication shortly thereafter, but the symptoms never went away. My last neurologist considered it primarily psychological, however. But how much can you know someone in one appointment? I've never had one who was really interested in solving the problem that is me. I am bipolar and have anxiety. I am on meds for that and not taking them makes my symptoms worse. But I definitely have symptoms even when I have no identifiable stressors. Hope that helps.