I have recently been diagnosed with A... - Functional Neurol...

Functional Neurological Disorder - FND Hope

6,116 members3,374 posts

I have recently been diagnosed with AND. I was also diagnosed with 'convulsions' any advice for coping with the seizures?

Allyw profile image
3 Replies

I am 19 and recently diagnosed with FND and convulsions. To get me to fight the seizures my stepdad tells me 'fight it!' I'm not sure how to fight them or if it is possible. I'm looking for tips to fight them and live with my diagnosis. All of this suddenly came at the same time. I am at home all the time with nothing to do since my family is afraid of the seizures.

Written by
Allyw profile image
Allyw
To view profiles and participate in discussions please or .
3 Replies
EnglishIslander profile image
EnglishIslanderFND HopeVolunteer

Allyw, please do not be too worried, there are many of us in your position. YOU ARE NOT ALONE! You cannot "Fight" a seizure, just let them happen for now and learn about how they affect you. I'd suggest going to the website FNDHope.org which has been written and provided by FND sufferers to help us through this condition. If you scroll to the bottom of the Home page you will find a link to request joining the private Facebook group which is about 700 strong of FND sufferers, many of whom are around your age and you will find their support immensely helpful. We can help you through this and guide you toward the correct treatment and better understanding. Good luck and hope to see you. Duncan Peacock

kotovasv profile image
kotovasv

Hi Allyw, welcome to the FND family)) As Duncan already said, you can not just "fight it", because it is a medical condition and it does not depend on your mood or willpower. But you can try to manage it and to make your life with it as bearable as possible. Beside the immense experience of other FND sufferers at the FNDhope website and in the FND Facebook groups, you can find useful tips on managing this condition at the website neurosymptoms.org which is entirely dedicated to FND and related disorders. Good luck, there are many of us :-) Svetlana.

Allyw profile image
Allyw

Thank you so much for the help. I feel much better knowing that I had the right idea towards handling this. I didn't think I could really fight them, but I thought I would ask others with the same condition. I've always been one of those odd people that see this type of thing as a learning experience.

Not what you're looking for?

You may also like...

How can I deal with family and my seizures from FND?

I live with my parents. And they struggle to help with my seizures.'duck walk' and of course my...
Allyw profile image

I just got diagnosed with dystonia. Does that mean I don't have FND?

Yeah so my Dr diagnosed dystonia and I'm going to a movement disorder specialist later this month....
Jesdue profile image

Have DID and recently diagnosed with FND

So, we have been diagnosed with DID since 2007. Our body is 37. There are at least 11+ of us in our...

Struggling with new diagnosis and the debilitating symptoms I have!

Hello all, I have recently been diagnosed with FMD. I have uncontrollable jerking in my legs, I...
Graf67 profile image

Am I entitled to any disability benefits having now been diagnosed with FND?

I am self-employed and find that the chronic fatigue, cognitive issues and dizziness interfere with...
Reikiblossom profile image

Moderation team

See all
FND_ profile image
FND_Administrator
1fnd profile image
1fndAdministrator
hope4fnd profile image
hope4fndModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.