FND / Newly diagnosed

Hi everyone and good afternoon,

I don’t really know where to start so I will just say a few worlds about my diagnosis, and introduce myself.

I have been seeing a number of neurologists over the last 8 years or so and was finally diagnosed with FND 3 weeks ago. I’m not really sure show I feel at present but I guess after a number of years I am relieved to finally have a diagnosis. My main symptoms include weakness in my legs, slow movement, poor memory and shaking in my arm.

I don’t know what the future holds but I am pleased to have come across this website and look forward to reading (and learning) from the various posts.

Thank you for listening

Kind regards

[Hidden]

Wow 2 months and not one reply? And to think I was advised to come here for support ?? Disappointing to say the least! I’m off see ya 👋

[headache24 in reply to Hidden]

Seriously???? We are all in the same boat Hidden. People will get round to messaging you when they can or remember too, I’m still struggling to navigate around the group.

[goatsnchickenz]

Hi Hidden,I was diagnosed with conversion disorder several years ago and re-diagnosed with FND last fall. I have found very little help. I've had to advocate for my needs on my own and have figured out my own coping skills which include a wheelchair, ear plugs and sunglasses.

[Donnaomalley123]

Hi I’m new to this site when reading your txt I can relate to you I also waited few yrs for diagnosis, I also have weakness to my arms and legs I move like Bambee but most time I walk on my knees and use chair outdoors

[FNDrunner]

Wow. After reading this post I feel so sorry that it took you 8 years to get diagnosed.

I’ve just joined this forum today after being diagnosed today, following a hospital stay for extreme fatigue and weakness.

I too have weakness in my legs and arms, but I can, with great effort, stand and walk (or shuffle as I prefer to say). But walking a short distance tires me out and I start to slur my words and become very tired (not sleepy tired, exhausted and weak tired)

It’s the slow movement and disconnect from

My brain is what is confusing me. My brain is at 100% but my body just does not respond!

Your post has been so helpful to me, I have just had a good cry. I’m not alone!

Thank you for sharing your story, I truly hope you get all the help to recover.