Diagnosed with FND in November
I am sure everyone on here will agree with me when I say “ STOP TELLING ME THIS IS GOOD NEWS!!!!”
Live in our Bodies and then feel how good the news is!
Angry: Diagnosed with FND in November I am sure... - FND Action
Angry
Written by
Chocolots
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7 Replies
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Hi chocolots, I was diagnosed in December, before that I used to call 'whatever is wrong with me' Jeff. I might as well still call it Jeff. Nothing has changed just because you have a diagnosis. The pain, feeling SO bad & all doesn't care about labels, it's still there. I was told it's a lot more common than you think. I've read it's a regular diagnosis with neurologists, if you get the right one.... Yet, draws a blank all the time. My whole world as I knew it has changed. It's like I'm in my bubble whilst everything around me carries on. It's going to be the people with FND who understand, not sure anyone else can take a moment to listen then put themselves in your shoes. Sorry I couldn't give you an upbeat reply.
Hi there, sorry you are having such a hard time too, I am finding it really hard to except my diagnosis
I find walking really difficult and have had to buy a wheelchair. Have you had any specialised physio therapy? I am hoping to get some soon, hope today is a good day for you
Hi, I've no plan of action yet, waiting on next neuro appointment but that looks to be a few months yet. If I were in your shoes I would be angry, wound up, frustrated and so on. I find it hard going from active to pretty much nothing. For you relying on a wheelchair is another level. I also struggle with accepting diagnoses. Not helped by (in my opinion) lack of support across the UK. I hope you can find some comfort soon. Take care x
Hi Chocolots I know exactly how you feel - we are just left to get on with it, to be honest I am passed caring now
Hi There, it is so hard to get any help people can’t wait to get rid of us, I understand what you are going through don’t give up
I believe you are grieving the loss of your health. Of course you are Angry .. and rightly so. The anger is born of your grief. I to get very angry at times. My treating Professor told me that FND affects the emotional centres in the brain (frontal cortex, amygdala). This is turn causes 'emotional dysregulation' which, when i looked it up really is centred on the anger feelings. You are normal. Your reactions are normal. So that said, I guess it is about looking for ways to let your Anger have an outlet, without hurting yourself or anyone else. Sadly, as I am sure you proably know, not everyone is going to understand your Anger. So stick with those that do. Vent to thoset hat get it. Vent to those that understand you are going the gammit of emotions right now. You may also like to look up Elizabeth Kubler Ross - she was a globabl expert on grief and dying. Her insight and undersetanding of the grieving proces is amazing. I bought the Google Book in 2016 when I shattered both wrist bones in my left arm and came out the other end more disabled, completely destroyed mentally and emotinally, and grieving both the loss of my wonderful cleaning business, AND the loss of left wrist at the same time. The Anger was frightening. I never knew we could feel such intense Anger. The Anger turned me into a Stranger. I just did not know who I was. Elizabeth explains the role of Anger in grief, so well. I really hope it helps you. And the rest of it .. it is FND driven - it comes from the unconscious, without you even knowing it. If you want to talk about your anger, I'm more than happy to be a phone friend on messenger or skype. Hang in there. I understand very very well how difficult your situation is, and the depth of emotions you are going through.
