After suffering for years and being constantly dismissed as anxiety, I finally got to see a neurologist. I had an MRI recently which didn't show much so got a referral from my GP to a neurologist. They said my MRI and all strength tests, neuro examinations are all fine. They told me about FND. It's the first I have heard of it after years of suffering and progressive decline in motor function, dizziness and unsteadiness. I have seen numerous Physchiatrists and doctors.over the years who have all diagnosed panic disorder and anxiety. I have explained countless times these sensations and attacks are NOT anxiety but they wouldn't listen. Finally I have seen a neurologist who has finally given.me a little hope. I am just concerned that their findings are going to be ignored by my GP and I won't get an official diagnosis. I tick every box for diagnosis and I'm keen to not get lumped panic and anxiety the rest of my life. I would welcome any advice and support.
Initial diagnosis and FND discovery: After... - FND Action
Initial diagnosis and FND discovery
Hopefully the neurologist can give you some help and relief Tomwyatt123. Fingers crossed 2020 will be an easier year for you.
Just been diagnosed myself with similar story. Just trying to get my head round it. It seems from what I can see FND is a catch all for people who's symptoms cannot be explained as tests are normal and that in some circles it's perceived as a mental health condition. At the moment I'm not sure if this diagnosis is a help or a hindrace. I've been offered Duloxetine. Considering that. Amitriptyline was good but I had to stop it as I have LQTS.
I have been offered amitriptyline as well. Regarding it being a mental health condition, I have done a lot of research and it clearly isn't a mental health condition. Anxiety isn't a mental health condition in my opinion. It is a fear disorder. My anxiety has never been so good thanks to course I did. But the neurological symptoms are worse not better. It is not mental health as far as I am concerned. I saw a good neurologist who explained it very well to me and expressed his frustration at not yet understanding the full cause and treatment.
