severe seizure today

[andreasimonne]

experienced a severe seizure and ended in hospital for 6 hours - can't remember the ambulance trip or getting to hospital. Now need a walker to help with my mobility. My husband doesn't acknowledge my fnd diagnosis and has accused me of bringing things on myself - I feel so disrespected and upset is an understatement I try so hard to overcome my difficulties and the unpredicatability of my symptoms I wonder now why I am bothering at all

[FNDfun]

Bless you.

My experience of my FND doesn't include seizures (yet?) so I find it a bit tricky to comment on that area; however, I totally get the having to try hard to overcome difficulties, and the uncertainty, unpredictability and complete randomness of FND. I also know that the support of family and friends is so important to help us through this; I am so sorry that your husband is not being supportive - you are not bringing this on yourself, FND is very real and we seem to have no control over it. Do you have other family members and/or friends who are more supportive? I do hope so. Of course, you can always talk on here.

Hang on in there, and please know that none of this is your fault; also, you are not alone.

Take care.

[AjaStar]

My husband thinks I brought this on myself too and that I exaggerated my symptoms. When I was scared at the beginning and asked him to stay by me all the time he felt suffocated and trapped. He would go drink in the living room and listen to his music and play his guitar. I understood that he was also scared about my disability and didn’t know how to deal with it and how it changed our lives. But I was scared too and even though he still supported me, emotionally I felt alone in my torture. It’s hard for family to understand how bad it is for you or even believe you especially since you go to the doctors and all your tests come back normal. You have no proof that your suffering is real and out of your control. So come here and vent, we understand.