BAT in the UK: does if officially exist

[Rickytarr]

I'm possibly headed for mcrpc and would like to have had a go with BAT.

However, it looks like the UK offers nothing to those who would give BAT a chance. Can't believe that all the work is being done in the USA by Denmeade et al.

Given the status of testosterone cypionate in most of the EU, desperate stage 4s only option is to navigate the risks of taking fake drugs the are faced by body builders.

Many belief that BAT will eventually be SOC but many of us can't wait around for years of trials to get there.

Has anybody in the UK had BAT under supervision?

I would like to think so but I doubt it.

[GreenStreet]

The lack of response may well give the answer. I have been looking too but have not found anyone

[GreenStreet]

Russ Thanks for this. I will keep in my back pocket for now. I had a preliminary discussion with my oncologist who seemed horrified by the idea

[Brysonal]

Hi from another UK poster. I am 8 months undetectable PSA this month and 14 months on hormone therapy. My bone scans are showing NED ( I had numerous tumours to skeleton 14 months ago)

Following SBRT to 3 mets, Lu-177 x 3, Docetaxel x 3, 20x VMAT to pelvic area, 2 Brachi boosts to prostrate and 3x OVM 200 cancer vaccine ( first in human trial) I have broached the subject of a hormone holiday this summer with my London. Onco.

He grimaced twice but did say it wasn’t a crazy idea.

Not sure I’m brave enough to bring up BAT but my guy is very SOC but has got used to me adding in other stuff he doesn’t approve of. First suggestion of taking things away though.

My Finland MO who recommended the early Lu-177 and Brachi boosts on top of SOC is happy to discuss a hormone holiday if I stay undetectable for 12 months and scans show NED at the point.

I haven’t mentioned BAT to him.

As I’m hormone sensitive I don’t know if it’s relevant

A castrate resistant guy on UK Prostate cancer Community forum who was out of treatments 3 years ago persuaded his uk Onco to liaise with USA and tried it but it didn’t work and he died unfortunately. I’ll try to find the link to his thread.

Good luck

[Brysonal]

oh yes Si_ness

community.prostatecanceruk....

[Rickytarr]

Thanks very much for your well informed reply. If I were in the USA it would be no problem.

I gave no given-up trying to convince a doc to contact denmeade for his proticol advice but

I doubt I will get very far.

GreenStreet is the only UK member to have an opinion thus far and he echoes what I suspected would be the response to my question. The closest thing I have to a bucket is the desire to leave my wife as much money as possible.

This stops me paying hundreds of UK sterling to a private clinic for basically a prescription of cheap generic drugs that includes metformin.

Anyone can buy 50 tabs at 1000 mg if metformin in Spain for 2 to 3 euros.

In 2013 I was introduced to a Consultant Oncologist after a year or so under a urologist. Dispite knowing what the answer would be I asked him if he would oblige me with a prescription for metformin.

He told me no of course and explained that if anything happened to me while on metformin he would have to explain in court why he prescribed the drug to a non diabetic.

I understood from a UK SOC perspective his point of view but I don't understand how a UK clinic can give me this same drug if I give them a handful of cash.

There are lots of private outfits in the cancer game in the UK and maybe they can dish out inexpensive vials of Testosterone for a large fee.

I feel bad for those in the USA and elsewhere who pay crazy money for medical care.

However, we have an amazing system in the UK called the NHS where we have grown-up with it being free for everyone who needs it.

Free in the sense that general taxation pays for it.

I think the STAMPEDE trial with metformin will report (I think) some time this year. That's a full 10 years after I, a G9 5+4 and desperately searching for ways to battle PC got an official knock back from the NHS.

Do we in the UK have to wait another 10 years for a BAT decision.

[Brysonal]

I’ve read through the PowerPoint on BAT

pccncalgary.org/n_bipolar.pdf

It’s old now of course but I am thinking if I do continue to a convo I could get it in as a ‘intermittent HT v BAT’ discussion!

I did ask him about metformin a year ago but he was keener to my cancer under control without and not completely against prescribing it. I think I’ll ask again at next consult

GP blocking my statins presecription atm. It’s tough to work full time and manage all this medical stuff for sure. My repeat on statins expired so need to go back to GP!