how can you make your doctor belive h... - Fibromyalgia Acti...

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how can you make your doctor belive how you feel .I feel my doctor thinks i am fakeing .my illness i couldnt enen get out of bed today.

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freddie2
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vanilla profile image
vanilla

I don't think you can make them think differently, they all take a different approach. Might be best to try and see a different one? I got really lucky moving to my surgery as the first doctor I saw listened to me and referred me to a rheumatologist and she diagnosed me. It explained everything about what I'd been going through for most of my life, particularly from 19. I guess what I am trying to say is that don't take just one person's interpretation of how you are feeling but keep going. If you feel like you can't get out of bed then one is bound to take you seriously. Best of luck :-)

freddie2 profile image
freddie2 in reply tovanilla

Thanks for help .

freddie2 profile image
freddie2 in reply tofreddie2

Thank you.

julieevh profile image
julieevh

Firstly it is probably best to move to a different GP, is there another GP in the practice you could see? What about talking things over with the practice nurse?

Secondly get it all written down, explain your symptoms, what this means to you, what you are frightened of and any treatments you are thinking might be helpfull or that you might like to try.

Then if you want you can wither read what you've written down or else hand it to the GP to read.

Good luck

Julie xx

freddie2 profile image
freddie2 in reply tojulieevh

Thanks julie xx

Jeannie profile image
Jeannie

What makes u think he doesn't believe you. My experience is drs are reluctant to diagnose and this is the horrid part for patients. If u are quite sure u have the condition save up and pay private to see someone who specialises. I paid private the Dr then wrote to my GP with the diagnosis and requesting a referral to his NHS clinic so I see him via NHS- However I must say that having diagnosis has not changed that much - very disappointing. I have learned that ME/Fibro not taken seriously like MS. On a more positive note I guess GP has now prescribed all the meds other people seem to have been prescribed. Good luck - I remember how awful it is searching for a diagnosis. If u haven't already please look into thyroid - I got 10 years full time work once I was prescribed thyroid hormone but sadly I am experiencing another flare up. PS my doc very rude but has prescribed meds and made referrals. If your doc does not do this you need to change doctors. Ask people on this site for info on docs in your area

Gentle Hugs

Jeannie xxx

freddie2 profile image
freddie2 in reply toJeannie

Thanks for info xx

bumblebee57 profile image
bumblebee57

Hi. I think Julie has a point about writing it all down. that way, you can read it through more than once to see if youve missed anything, before you go to see your Dr. I did that,even though I have a good doc, just to make sure he knows how bad I feel, what I can cope with, or not, what my capabilities are and what a struggle it is for me just to get through another day. They dont actually SEE YOU struggling, but you do. Also I suspect that GPs are under pressure about giving out meds and referals to Rhumies etc, because of cost to NHS, also pressure from the government at the moment, with all this "get disabled people into work" bull****. Perhaps if enough GPs ignore us, we'll comply to this torture and struggle on even more. Keep up your fight freddie, MAKE someone listen and give you the help you deserve. Good luck. I hope you get there in the end, sooner rather than later.

freddie2 profile image
freddie2 in reply tobumblebee57

Thanks .

ladymoth profile image
ladymoth

Sadly, people don't like to 'bother' their doctors. Doctors are paid very well to bother, so bother them you should. Keep going back until you get answers or referrals - even write to your G.P. - sometimes better than trying to explain yourself during a brief appointment.

Disability is one thing, but having a disability that is also painful and exhausting is another, and I feel that this is what many doctors haven't stopped to consider.

They may see a person who can't move freely, and think 'Oh well, he/she could do a sitting down job.', but they don't realise the depth of exhaustion and pain that is going on, and this is what makes life so very difficult for fibro sufferers.

Yes, it's good for disabled people to work, but if they are sick and in pain as well, then it's too much to ask.

I do hope that you manage to work out a reasonable relationship with your GP. If you feel that it's not satisfactory, then look for another doctor.

Luv Moffy x

freddie2 profile image
freddie2 in reply toladymoth

thank you

westgate profile image
westgate

i keep my points i want to raise with my GP based around the criteria for claiming ESA / DLA. Most symptoms can be associated to something in there.

xx

cobweb profile image
cobweb

although I've been diagnosed with FM & been on coping skills at Rheumy clinic etc, since I

moved to a new area I just get told that it's my age - I'm 60 not 92!!!!!

It makes my blood boil

xx

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