Has anyone been told that Multiple Sc... - Fibromyalgia Acti...

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Has anyone been told that Multiple Sclerosis presents in many similar ways and we shoudl just wait and see how it develops???

nikewood profile image
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nikewood
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jazher profile image
jazher

Hi nikewood,

Its weird one as the symptoms are virtualy the same.

I have been dx with fibro for 4 years and in november things went wrong and i needed an mri to rule out MS. It turned out not to be but my friend has the exact same symptoms as me and she was told she has fibro and now is actually getting tested for MS as she has scars on her brain. She has been told that it could take a year or so to see how the ms is develpoing and to see if she has fibro too.

You could do with a mri if you think its ms, You would need the dmds stop another relapse if it was MS.

The early years drugs are the same treatments too.

hugs, kel xxx

jazher profile image
jazher in reply to jazher

dmds, mean disease modifying drugs. These are the drugs that are being used to try and lesson the relapses that someone with MS has. xxx

I personally have never heard that MS presents itself in a similar way to Fibromyalgia or vice versa. :) :)

roxyroo profile image
roxyroo

Hi, i wasn't told much. Only that i had fibro, and to add Gabapentin to the meds i was on. Prehaps we should ask for MRI scan, just to be on the safe side. Love helen xx

fairycazzie profile image
fairycazzie

I am awaiting a Brain scan as although all my symptoms mimic MS my neurologist said it is the 'pattern' that he would more or less go on, so he doing a brain scn to confirm. fibromyalgia is apparently CHRONIC where as MS can come and go .. thing is i have another condition which another does on here does and when you got so many symptoms and things going on it is difficult to pin pont i think, so it is all about ruling out aswell.

I take lyrica which can be used for MS and fibro and has been a life saver for me.

I also thinks it is which form of MS you have as there are different stages, which is what i keep on at because i know to my personal health this will not go away and my mobility although walking around and doing things does not mean i do not suffer day in day out unpredictably!! i can go through a phase with hands, legs, head, arms, co ordination, thinking blalance. and many many more things inc vision! .Ms is difficult to diagnose and they go on patients history aswell.

I have had a very rare form of Glandular fever EBV and was hospitilised for months as well as being pregnant. then i would go months or years with episodes of illnesses.

Complicated eyyyy i guess lol

I have read that Fm is a sister to MS. I will find it again and post it xxxx

Hi well i did not go to my GP for a yearas my best friwnd had ms and died of it at 37 10 years ago in may , and the rymptons she had when she 1sy went to se her GP were the same as i was getting but i broke down to my GP and she said no i have not got x ray eyes but i am 99% you have not got m s so i think that alot of the symptons are pretty similar but thats just from what my friend had love to you diddle x

BlueBunny profile image
BlueBunny

I have if you have a jarring sensation anywhere, I have a B12 deficiency (like the newly found/acknowledged vitD deficiency B12 is very much not supposed to be problem anymore) too and they symptoms from that go along with my FM check out b12d.org/ you may find it of interest, it helped me. Alway check with your doctor even if they may not be of much help with FM or B12 deficiency, might not be but worth a looksee :-)

xx

Lynfran profile image
Lynfran

Hi, Yes I have Psoriasic Arthritis, triggered by pregnancy, my Son is 27 now and you right the systoms are very similar, if not the same.

Now I have the Arthritis in most joints, jaw as well but there are systoms that are are FB and vissa versa.

As BlueBunny I take Vit D, am going to start Vit B as it has just been found to help FB, I also take Vit A and C, someone wrote to Family magazine for FB they had certain skin problems, hot burning skin like sun burn, rash and the feeling that insects well crawling on your skin, the vits do work.

They have brought out a vitamins supplement tablet out just for FB its called Zivadol, I have it I think its expensive at £18 per month, I have not tried it yet, as I take the above.

Has anyone out there tried it?

take it easy Lynfran xx

josieb profile image
josieb

I was told in 2002 that i was presenting early symptoms of MS. A MRI scan showed lesions throughout my brain which were inconsistent with 'normal' MS but were a concern anyway. I saw the neuro consultant annually and after 5 years he said that he was surprised I did not have full blown MS by now. The next visit (another year passed) and by this time I could hardly walk, he diagnosed FM (I has already self diagnosed myself months before). It may seem strange but I was delighted to finally have a diagnosis and it not be MS, and get the appropriate care. I have a friend with FM and her doctor never considered she may have had MS. I think it depends on the doctor/consultant you see.

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