Pacing

[little-queenie]

hoping to buy some sort of fitbit to help with pacing, any recommendations please?

[desquinn Partner Volunteer FMAUK Trustee]

are you meaning paces rather than pacing? xiaomi Mi band is quite good for steps and activity monitoring and good value.

[little-queenie in reply to desquinn]

trying to take some control over my symptoms, i have designed a new programme for myself and i think this may help pinpoint triggers. Dont get me wrong i am not as severe as some on here, but i would like some kind of normality.

[JayCeon in reply to little-queenie]

Sounds interesting to me as I've had a lot of successes pinpointing triggers!

I'm just exasperated at the moment that despite so much progress getting all pains and most wakers down, I still can't get enough sleep and energy 🥵.

Like LoneEra says: Keep us posted!

(Forgive me, your name-choice probable means something very different, but I absolutely love the album "Little Queen" by Heart...)

[LoneEra in reply to JayCeon]

Energy is my big issue too. I get wiped out so quickly...and find it hard to be enthusiastic as everything is an effort.

On really really bad days I can’t even summon the energy to turn over in bed to take my meds...which isn’t helpful! 🤦🏼‍♀️

[2pods in reply to JayCeon]

Surely Chuck Berry 's "Little Queenie", as covered by everybody. You can even hear it in the end of "Now I'm Here" by, yep, Queen.If nothing to do with that, I apologise.

😉

[athenadark in reply to desquinn]

I was going to suggest a mi band, I have the 5 and swear by it because it also covers menstrual tracking and all manner of things. It doesn't need charged as often [more than the 4 which I wore till it died of old age] as the fitbit and is only £30I also use mine to remind me to eat - a three hour alarm so it buzzes on my wrist. I would be lost without mine

[LoneEra]

I’d advise you to buy a cheap one (as Des suggested) to begin with. I’ve had one in the past and I must say I got bored of it pretty quickly! And if you look on eBay, the number of second hand hardly-used ones suggests others do too! (You can get bargains on there though) 🙂

The one thing I did find interesting on mine was the stress level monitor. I noticed that phone calls are a major stress trigger for me - I’m a massive introvert and prefer typing than speaking. So now, I often ask people to email or text me, rather than call, in order to reduce my daily stress.

I really hope your new programme yields results for you. Keep us posted! Xx

[JayCeon in reply to LoneEra]

"phone calls are a major stress trigger" - yep, LoneEra , me too! - altho I'm a mixture of extravert and introvert. I've got used to not reacting tho, when someone calls, unless it's a doc's practice. Especially after 6pm. I listen to the answering machine and call back or write when my pacing allows me. But most people have realized that anyway, including boss and colleagues. I also need to keep all my socializing/peopling down, more of course than before fibro. Question is if I can now find a new balance at work, keeping it down enough. Home office is easier...

[saluhouse in reply to LoneEra]

Hi. This is all very interesting. But me - I love to talk! Me and the proverbial hind leg of a donkey get on very well.

What stressed me out is isolation and loneliness. As I live alone - lockdown has been a challenge.

Family and friends are good, in that they do keep in touch. Otherwise I can sort of chat to you lot!

So thanks.

Xxx

[Thegreywitch]

I brought a cheap one to try off amazon. It does pulse, steps, sleep etc . 3 years on I have never looked back. I know if I'd over 9000 steps I will be sore the next day etc it was a good buy. Personally I would not but the very expensive ones, but we are all different.