Feeling useless, isolated, generally annoyed

[Eggcustard]

I don’t normally write on here but I feel so down at the moment. After being ill for 10 years with various things and fibro badly for 4 years I’m really struggling.

I can only get out once a week for a few hours and that’s it. I am mostly in bed, can’t cook or look after myself properly. I’m dreading winter coming because I always get worse.

I just feel like I have no say in or control over my own life anymore. I can’t work, I’m in debt, waiting for pip tribunal because they don’t believe me. I don’t see friends often cos I’m too ill and it really affects my mood so I don’t want people to see me like that. The longer it goes between seeing people the more awkward it feels. I can’t do the things I want to do with my partner or daughter.

I’m up and down like a yo-yo, felt a bit better yesterday and had to go somewhere with my daughter (only there half an hour) and it will take 3 days to get over it. Don’t even have the energy to wash.

How do other people cope??

[Pjik]

Hi to me with fibro and other diagnoses it is much harder to live every day I have to try extra hard to accomplish anything I know how u feel u r not alone

[FionaP]

Feeling for you hun. I'm the same.

Bed almost 80% of the time, dreading winter, can't look after myself and home.

I look for anything in my day to make me smile and be grateful to be alive.

Watch any programme that makes me laugh now instead of the horrors I used to like. I found they brought me down.

After looking friends and family support some years back, common story. I take each day as it comes, happy if I have managed to complete anything fun like crafts or even a little reading.

I chat with a few friends weekly even if I only see them once a year. That's the way life is now. We can cry for what we miss or smile for what we have. My cat brings me most joy daily.

Hope you find areas of joy in your days

[Eggcustard in reply to FionaP]

Thanks for your reply and sorry you are feeling the same way. I’m usually quite positive despite everything but this week I’ve been really struggling. Think I needed to let off steam!

I’m finding when I have a flare up now and things are worse it really affects my mood then once I’ve slept a bit more I feel a bit better (feeling a bit better today). Sending hugs

[Eggcustard]

Thanks I’m feeling a bit better today after some sleep, needed to rant I think. Lack of sleep is and flare ups are affecting my moods more and more. Maybe it’s hormones too! Sending hugs

[Midori]

Oh dear, you sound like me! I can only get out once a week for a few hours, and it knocks me flat too!

This time of year doesn't help a lot either, as the weather gets cooler and damper, my aches and pains get worse, the black dog lurks in the vicinity and it would be so easy to fall into depression; but my strategy is to get angry with the Fibro, and tell it that it has taken enough from me and I won't let it have any more without a fight!

Hope it helps.