ldn

[cunningham999]

can ldn help with fibromyalgia as I have cfs hugh

[JacquiRo]

What is cfs... sorry don’t understand ..

Healing hugs xx

[Stevejj in reply to JacquiRo]

Chronic fatigue syndrome I think x

[Mdaisy in reply to Stevejj]

Yes that is correct. There is a debate between the Myalgic Encephalomyelitis (ME) and CFS community as some say they are different, others put them together, others say I don't care what it is called as long as we get the help we need (recent PACE Trial Debate in Parliament)

I think the discussion is based on the fact that some people with CFS can recover but obviously not all and Myalgic Encephalomyelitis is a chronic lifelong condition. Plus people with severe ME (bedbound) think being classed as having CFS trivialises it and the general public think it is just 'tiredness'

Whatever they decide I hope the awareness and support of the Scottish MP helps to bring about research as I always have but more so now I've been recently diagnosed too. Having both isn't easy as gentle exercise is said to help Fibro but can make ME/CFS symptoms worse - so in a catch 22 at the moment!

Emma

[Stevejj in reply to Mdaisy]

Brilliant explanation Emma xx

[aud01]

Yes Steve it chronic fatigue syndrome .. I had it before diagnosed with fibro ..., i get phases of it where all I do is sleep and is IDN? Sorry for my ignorance xx

[JacquiRo in reply to aud01]

We can’t know all abbrs lol

I wish I could exercise with my fibro 😳

Healing hugs x

[Mdaisy in reply to aud01]

Low Dose Naltrexone

[aud01 in reply to Mdaisy]

Still don't know what that means will loom later .. have a party to get ready for. X

[Mdaisy in reply to aud01]

Is a medication Lots of info on the net for you to read if that helps and Hazel_Angelstar can talk more indepth about it if you're interested

[Mdaisy]

One of the Administrators Hazel_Angelstar is able to provide more information on LDN and also give you her experiences.

I notice your post is unlocked, on the whole members prefer to reply to locked posts. If you wish to lock it, please see the link below for more information;

healthunlocked.com/fibromya...

Hope this helps cunningham999

[Hazel_Angelstar Administrator FMA UK Staff]

Hi I've been taking ldn at 4.5ml for about 5 years now.

It doesn't take all my pain away but it does turn the pain intensity dial down and most days pain is manageable.

Happy to try and answer any questions

A good resource for ldn information is the LDN Research Trust

[cunningham999 in reply to Hazel_Angelstar]

I have fibromyalgia for 7 years . all the doctors can give is antidepressants. I have try cbd,5-htp,raw-thyrold and gels flexiseq,celadrin,ibuprpan helps very little my big problem is chronic fatigue & stiff muscles can LDN help me &I wonder can I get it thank you