can ldn help with fibromyalgia as I have cfs hugh
ldn: can ldn help with fibromyalgia as... - Fibromyalgia Acti...
ldn
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What is cfs... sorry don’t understand ..
Healing hugs xx
Chronic fatigue syndrome I think x
Yes that is correct. There is a debate between the Myalgic Encephalomyelitis (ME) and CFS community as some say they are different, others put them together, others say I don't care what it is called as long as we get the help we need (recent PACE Trial Debate in Parliament)
I think the discussion is based on the fact that some people with CFS can recover but obviously not all and Myalgic Encephalomyelitis is a chronic lifelong condition. Plus people with severe ME (bedbound) think being classed as having CFS trivialises it and the general public think it is just 'tiredness'
Whatever they decide I hope the awareness and support of the Scottish MP helps to bring about research as I always have but more so now I've been recently diagnosed too. Having both isn't easy as gentle exercise is said to help Fibro but can make ME/CFS symptoms worse - so in a catch 22 at the moment!
Emma
Yes Steve it chronic fatigue syndrome .. I had it before diagnosed with fibro ..., i get phases of it where all I do is sleep and is IDN? Sorry for my ignorance xx
We can’t know all abbrs lol
I wish I could exercise with my fibro 😳
Healing hugs x
Low Dose Naltrexone
One of the Administrators Hazel_Angelstar is able to provide more information on LDN and also give you her experiences.
I notice your post is unlocked, on the whole members prefer to reply to locked posts. If you wish to lock it, please see the link below for more information;
healthunlocked.com/fibromya...
Hope this helps cunningham999
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Hi I've been taking ldn at 4.5ml for about 5 years now.
It doesn't take all my pain away but it does turn the pain intensity dial down and most days pain is manageable.
Happy to try and answer any questions
A good resource for ldn information is the LDN Research Trust