Losing Dad and fibromayalgia

Hello everyone,I haven't posted any thing for a while as my dad was so poorly with PSP, 6 months from diagnoses he had a fatal fall ,backwards ,and result was aa severe bleeding of the brain.After 2weeks lying unconscious in hospital he sadly passed away.The funeral came and went and the clearing of his home. Then I crashed ,I spent 3 days in bed as joint pain prevented me from moving.My stomach has been terrible with the most horrendous twisted gut pain which caused sweat to trickle down my face.I am sick most mornings and that really hurts my stomach as I heave and retch so much with nothing coming up.Then I collapse back into bed till lunchtime.Gastrointestinal clinic say there is nothing wrong with me ,but my reply is this normal ??? Yes they respond.How the hell can being this poorly be normal.??? I suffer so much everyday that I get so down and with losing Dad I'm tearful most of the time.I can't concentrate on anything and even the telly makes me cross.Especially Jeremy Kyle,alday,bbhat noise and shouting first thing in the morning makes my headache.Just want peace and quiet as my ears ache !!.Looking back I really don't no how I got through the last 6 months,nursing Dad ,and general caring for him each day but my body is screaming in pain now.Just want answers as to why I feel so bad inside.? Surely gut wrenching pain is not normal.?Does anyone out there get this ,and how do you cope ? Advice gladly received. Xxx

8 Replies

  • I am sorry for your loss. Do go back to your GP and insist that you are listened to, they do love to put things down to your state of mind do not stand for it. The level of pain you describe is far from normal, if you are not taken seriously get another opinion. I hope you get the answers you deserve, do not be fobbed off. xx

  • sorry to hear of the loss of your father to psp it is a cruel illness my husbands father had it his was over a lot of years,the pain of your loss is still raw it is hard taking on the caring and takes a great toll on youhave exaushted your body and are now paying the price,take care xx

  • Hi millamoo,

    I am so sorry that you are suffering so much, and to hear also about the loss of your Father. May he RIP.

    I'm afraid I can't offer any advice about the stomach problems that you are having, but it certainly doesn't sound "normal" to me. It may well be a reaction to all the stress of the last 6 months.

    What you describe with the pain in your stomach is like what I had on 2 separate occasions. The painkillers that we take for our Fibro make us very constipated, and we deal with that through diet, and sometimes laxatives. I was stressed out over a few weeks and wasn't eating very well, and out of the blue, I got agonising pain, that came in waves, and the sweat was running down my face, and my hubby phoned 111, and in the end I was admitted to hospital. This happened twice. I didn't have any vomiting though. Lots of tests were done, and all of them normal, and I was advised to eat a diet of high fibre, and to take a laxative. It hasn't happened again, thank goodness. That's what happened to me though, and I think that you should keep asking the Dr to get at the cause of your pain.

    I really hope that things get better for you, as you've been through such a lot, and take care, and be kind and loving to yourself.

    Love & hugs.

    GP. 💚💙

  • Hi milamoo

    I have read your post with so much pain and sorrow for your sad loss and your struggling and suffering as a consequence. You are quite right that being so ill is not normal, and I can only assume (although I am not a doctor) that everything has built up inside you until you have finally let go and it has all hit you like a brick wall.

    I can easily imagine that you have not really grieved yet for the loss that you have suffered, and it may be best to ask your doctor for a referral to bereavement counseling? I want to genuinely and sincerely wish you all the best of luck. Please take care of yourself.

    All my hopes and dreams for you


  • Thank you Ken ,.your kind words are really appreciated.Life has been pretty tough and the last 2 weeks of Dads life were truly horrendous. To watch my dad choking on his own body fluids and not being able to help him was heartbreaking. He just kept pulling feeding tubes out from his nose ,even though he was unconscious, he flooded his own lungs.Was so right to visit the chapel of rest and see him pain free,but the pain of losing him is very much with me every single day.Will take your advice and make that appointment with my GP. Thanks again.x

  • I'm so sorry for your loss, I had almost the same thing happen to me an my dad that's when the pain came on an 1 year and 8 months later dr says I have fibromyalgia, that explains a lot.. Hope it helps to know some one is about where you are! I know it helped seeing your post just knowing there was someone out there that knows how I feel!!

  • Thank you.Before I joined this site I felt very alone and just couldn't understand what the heck was going on with my body.Being here ,we are able to share experiences and then you realise that we don't suffer alone.Sometimes just putting feelings into words can help.We are not alone.Gentle squeeze. Have a good day.x

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