Hello fellow members,
Well, there has been much discussion around giving blood if you have Fibromyalgia especially as people with ME/CFS have been asked not to donate as from 2010.
Lindsey Middlemiss, Founder of FibroAction wrote to the Department of Health about Blood Donation & Fibromyalgia and received the following response 17.11.10;
Dear Ms Middlemiss
Thank you for your letter of 27 September, regarding the new restrictions for blood donation by patients with ME/CFS and their relevance to patients with Fibromyalgia Syndrome. Colleagues at the Department of Health have passed on your letter and asked me to respond directly to answer your query.
The change to the donor selection guidelines regarding ME/CFS came into force on 1st November 2010. The amendment has been made on the grounds of donor safety, to bring practice for those with ME/CFS in line with other conditions where individuals are permanently excluded from blood donation to protect their own health and other serious central nervous system disorders. This follows a recommendation by the UK Blood Services Standing Advisory Committee on the Care and Selection of Donors, and Joint Professional Advisory Committee (JPAC).
There is a separate entry in the donor selection guidelines for fibromyalgia. This is because unlike ME/CFS, fibromyalgia is not currently classed as a relapsing condition or a central nervous system disease by the World Health Organisation, but as a musculoskeletal condition. At present, a donor with fibromyalgia would be accepted as long as they were well at the time and did not have any additional features of ME or Chronic Fatigue Syndrome. I understand that most fibromyalgia patients report that their symptoms do not improve over time. Therefore the condition is classed as chronic rather than relapsing and as such at the present time does not attract a lifetime deferral from blood donation, although given the debilitating nature of the condition it is doubtful that there are many sufferers who are ever well enough to donate.
The Department of Health's independent Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) and the National Expert Panel on New and Emerging Infections (NEPNEI), monitor developments, both nationally and internationally, in conjunction with the UK Blood Services and the Health Protection Agency. All risk assessments are regularly reviewed, and if new evidence comes to light which means that risk assessments need to be amended, then this is done.
I hope this information is helpful in addressing your query.
Dr S M Barnes FRCP FCEM
Associate Medical Director - Donors
In 2011 the following was written by Dr Sue Barnes
Associate Medical Director (Donors)
It is recognised that there is some
shared features between ME/CFS and fibromyalgia. At
present, a donor with fibromyalgia (which is considered
to be a musculoskeletal disorder) can be accepted as long
as they were well at the time of donation and do not
have any additional features of ME/CFS
blood.co.uk/pdf/publication... (Please note PDF so please copy & paste link into brower to view)
I noted other countries have asked people with Fibromyalgia to stop giving blood, Australia for one.
Here if you have Fibromyalgia you need to state this & they will ask you further questions to assess eligibility according to blood.co.uk
Sorry, but we need to have more information for us to answer your enquiry. To give you an answer we will need to speak to you. Please call our Donor Helpline on 0300 123 23 23, Monday to Friday, 8am to 7pm as we may need to transfer you to the Referral Team who can deal with more complex issues
If you would like to give blood today or at anytime, please ring for more information before visiting any local centre to give blood as is stated above Blood donation can only be accepted as long you are well at time of donation and do not have any additional features of ME/CFS
What are your own personal thoughts on this subject?
I would in my beliefs advocate giving blood in a general sense however should we give blood having Fibro in your own opinion? Do you think we need to set a poll to find out general opinion?
Interesting debate for World Donors Day
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