rheumatological experts wales?

[StreetPastor]

Hi there, I am going to see my G.P as I have all the symptoms of fibromyalgia. How do I find a specialist in either shropshire or Wales to recommend a second opinion to my G.P.

[Mdaisy]

Hello Streetpastor,

Please can I provide you with a link to the FibroAction website to our Fibro Friendly Healthcare Professionals Directory;

fibroaction.org/Pages/Healt...

I notice there is only one entry for Wales at this present time, however asking the community forum might provide you with some answers with others in your area maybe.

Lets see who else replies !

Best Wishes

Emma

FibroAction Administrator

[StreetPastor in reply to Mdaisy]

Thanks Emma x

[bbstport]

I thought that your GP would send you to a pain clinic and I was referred to my local one in stockport and the consultant there confirmed the diagnosis as I had all tests done previous with my G P. once confirmed I was lucky as my local hospital have been running fibro courses that last 6 - 8 weeks and is very useful.

hope this helps you

Belinda

[StreetPastor in reply to bbstport]

Thanks Belinda, that's good to know. I live in Mid Wales where they have closed all our hospitals.....I shall have a chat with my G.P. I have been in pain for two years, but it seems a cheaper option to guess & hand out pills rather than refer me on. Wales n.h.s is in big debt.... What tests did they do to diagnose you?

[KLR22]

I live in Montgomery which is on the Welsh/Shropshire border. I've heard of people going to see a Dr Askari about Fibromylgia, either in Oswestry or Newtown. I have an appointment with him in Newtown at the end of next month. He's an unusual character though. Where do you live? Karen

[StreetPastor in reply to KLR22]

Hi there, that's amazing info, very useful. I live near Caersws, not far from Newtown.

[KLR22 in reply to StreetPastor]

We run a local support group for people with ME, CFS and/or Fibromylgia. If you want to come along, we're meeting next month in Montgomery. It's informal but supportive. Karen

[StreetPastor in reply to KLR22]

Great, I am due to see my G.P. next week so will be in touch if officially diagnosed x

[KLR22 in reply to StreetPastor]

Good luck. x

[StreetPastor in reply to KLR22]

Thanks x

[Mdaisy in reply to KLR22]

Hello KLR22,

Please do email us at FibroAction so we can add your Support Group information to our Directory on the website. Would you also be willing to add the Dr you mentioned who you see for Fibro to our Fibro Friendly Healthcare Professionals directory with a short testimonial maybe?

This information would be great so we can inform people visiting our website and other community forum members in the future. Our email is [e-mail] should you wish to email us.

Many Thanks for reading

Emma

FibroAction Administrator

[KLR22 in reply to Mdaisy]

I can add our Support Group to your Directory although we set it up as an ME Group to begin with but we have more people who attend with Fibro than ME. I haven't been diagnosed with Fibro but am seeing the doctor I mentioned next month for the first time. I don't know if I can recommend him yet as two people who've seen him have given mixed reports. He's a strange character apparently but I'll see how he is with me and if he diagnoses me.

Karen

[KLR22 in reply to Mdaisy]

Do I just e-mail you with our support group details?

[Mdaisy in reply to KLR22]

Yes please KLR22, that would be FAB.

Also would you like an Awareness Pack to put posters up in your local GP surgeries & hospitals to promote FibroAction but also your local group as it has a business card size area to add local support group details.

Unfortunately we are unable to send you any hard copies of our information factsheets as we are a small charity. However, you can easily download & print the factsheets if you like;

fibroaction.org/Pages/About...

I run our local group with others and I 've printed copies and put in a folder which is available at group meetings should people want to read it, especially important if they have no internet access.

FibroAction information has the Information Standard Certificate (the same as the NHS) so you can be sure the information is evidence based and up to date.

I look forward to hearing from you

Best Wishes

Emma

FibroAction Administrator

P.S Have you seen our FAQ category?

healthunlocked.com/fibroact...

[KLR22]

Thanks for that - I'll take a look. Yes, an Awareness Pack would be good, thanks. We have got some leaflets which we put up where we can although our own surgery in Montgomery won't put any up for us!

Karen

[Mdaisy in reply to KLR22]

I have experienced the same I asked a surgery to put up local support group flyers. I don't know why they didn't, I am guessing it is because they would be overwhelmed with support group flyers ! At least I hope that was the reason !

[KLR22 in reply to Mdaisy]

I think our surgery won't because they don't want to encourage us and our illness beliefs! The doctors there don't believe in ME as a physical illness although I'm not sure about Fibromylgia. It's a shame as places nearby have put them up - Boots, Morrisons, etc. I've been ill with ME for nearly 18 years so I'm used to the scepticism now but it can still rile at times.

[StreetPastor]

Quick up date. After two years of pain etc.. I went to my G.P and asked if I might have fibromyalgia. He said yes and has referred me. How come I had to find this by accident on the Internet, when I have been telling my G.P's and Hemotologists my symptoms for two years.....My Doctor also said that it has been found to link in with an intolerance to medication, which is what I've been saying since starting treatment for essential thrombocythemia....Moan, moan I know, but really, I have been treated like a fraud. In fact I was also told until recently it was thought to be all in the mind, till they scanned fibro. Patients brains and found the nerve part was different.

[TheAuthor]

Hi there

I hope that you are as well as can be? I am so sorry but I do not live in your area but I wanted to wish you luck for when you visit your GP. I sincerely hope that you can find some resolution to your issues.

Good luck

Ken x

[StreetPastor in reply to TheAuthor]

Thanks Ken