i suffer from FIBRO never felt pain like it before and tryed loads of meds still no joy! Am uk? it's so annoying!!!!

[mandy2]

hurts all over head to toes!!! worse in cold weather!!!

[angel93]

i know wat u mean atmo my legs back arms screaming out in pain and dont have any pian killers that can stop it people just tell you to get on with it, it cant be as bad as your saying it is, your only young but they dont have a clue pain had me in tears today. have you tried wearing layers helps slightly

[clarkey]

Hi , I am new on here , I have had fibro for over 13 yrs , I started a support group 16 months ago , best thing a friend of mine & me done , I am on pain patches & amitriptyline at night , I really feel for you , its not easy but talking to others is helpful . take care . from clarkey

[JulieWilson]

Hi Mandy, you have just discribed lots of us with F/M. PAIN IS THE NAME OF THE GAME. You wake up wondering what part of your body hurts the most.Will I manage to do much today? Yes, then you pay for it the next few days. I have just joined this site & it helps me reading all your stories". I am not imagining this"

I am now on morphine (slow release) ,citalopram (anti dep ) & gabapentin (muscle relaxer ) . These help at times. good luck & keep in touch. You're not alone...........

[lolly1970]

I know just what you mean, sometimes even the guiders in my fingers and toes hurt! Its difficult for others to grasp that you can literally have pain in any and every part of your body. Co codamol and a hot bath can sometimes give relief on the bad days, especially if its the cold getting to you. Take care xx

[kim1970]

Hi ya i just joined, i was diagnosed after yrs of pain 3 yrs ago, now seeing rheumatologist but not going back til april for results of tests. WTH though can i take for this awful pain?? hips are the worst and as a hairdresser its hard!! Have had amitrypyaline no joy, on sertraline and co codomol at mo but again nothing just feel light headed.

[Betty67]

Hi

I have found a cocktail of drugs helps best rather than just one, I also rely on hot water bottles a lot. Two years ago I took out my life savings and went to Malta for a month (on my own) and apart from being very lonely it was wonderful to be able to go for gentle walks and just to enjoy life. Still planning how I could spend more time there.

Jacqueline

[Hidden]

Hi Mandy. I'm UK too. I haven't found any joy with NHS. Their hands are tied. But I'm having alot of success from a clinic in Reading (and Oxford) He uses acupuncture, bio resonanance and skenar (google Rosedale clinic). I'm not completely pain free all the time but since going to this clinic a year ago I am A LOT better. I also have an avoidance diet which seems to hit the nail on the head... If I eat the foods I should avoid the pain quickly returns. Stress obviously makes it worse too. I use a wii fit to work on yoga and posture in my own time and within my own energy limits. Good breathing exercises are very important. I also take magnesium and put epson salts (magnesium) in a hot bath.....also good pain relief. My sensitivity to the prescription drugs they offer makes it impossible for me to follow NHS guidelines.

Hope you find your own way to find relief soon

stepper x

[chorley]

Hi Mandy, I am in the uk and was diagnosed with Fibro about 18 months ago, it took the doctors ages to work out what i had, so i have been suffering for just over 2 years. i am taking medication 3 times per day, at the moment i am on 100mg of TRAMADOL & 100mg of PREGABALIN, in other words 300mg of each every day, the tramadol is working for the pain and the pregabalin stops my body from jumping. However we are still trying to get the correct dosage and thats going to take time, the only problem i find is now i am always very sleepy and drousy.

Hope you manage to find the right meds to help you out.

CHORLEY

[matty]

i take 300mg of tramadol a day and it does nothing. ive tried everything there is and nothing works for me. we need some big names to come out and help us with this fight

[clarkey]

HI , I have been reading some of these stories , looks like we are all in the same boat , I also live in uk , devon..It is very interesting to see how some of you are coping . best thing I did was to get together & talk with others like myself .

[Mdaisy]

scientiacme.org/pdfs/Boomer...

hi peeps check this power point out with useful info and if you are having trouble with treatment from GP and need more support ask for a referral to FMS Clinic Guys London . They really helped me