Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,704 members • 66,770 posts

pip assessor

while at my swimming session I got talking to someone who is training to be a PIP assessor so I said I have PIP mainly for my fibromyalgia to which she replied...

while at my swimming session I got talking to someone who is training to be a PI...

PAULINE15

•29 days ago

73 Replies

Sorry can't spell.

Has anyone become naff at something they were good at before Fibro? I used to be really good at spelling, And now??? 💩💩💩💩💩 I'm actually very...

Has anyone become naff at something they were good at before Fibro? I used to b...

Debsdelight72

•15 days ago

44 Replies

Worn out

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for his exercise . He was supposed to be going to a care home for a rest for 2 weeks...

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for hi...

Africanmonkey

•7 days ago

20 Replies

Carbamazapine help!

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trigeminal neuralgia. Honestly feels like Jaw is splitting at hinge. Anyone else on...

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trig...

Lovecavatese

•8 days ago

21 Replies

Sending birthday wishes too Mo Mo

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time giving advice and support here on the forum, lots of warm hugs Yassytina xx

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time ...

Yassytina

FMA UK Volunteer•24 days ago

36 Replies

Feeling very down today

Hi everyone, I'm just looking for some support today after feeling so alone with everything and trying to manage living with this condition. I live alone...

Hi everyone, I'm just looking for some support today after feeling so alone wit...

Seascapes31

•1 month ago

43 Replies

Medication

Does anyone know if there is a different medication rather than codeine as I am on a high level now and I am really very tired. Unable to do anything.

Does anyone know if there is a different medication rather than codeine as I am ...

Africanmonkey

•2 days ago

9 Replies

Medication.

After going to the doctor's yesterday I was told that if you are on amitriptyline it can cause dementia, has anyone else been told this. I'm quite concerned as...

After going to the doctor's yesterday I was told that if you are on amitriptylin...

Chancechance

•14 days ago

24 Replies

PIP application any advice

I have reduced my hours at work due to my Fibromyalgia. A friend suggested I should apply for PIP but I am still working. Has anyone successfully managed to...

I have reduced my hours at work due to my Fibromyalgia. A friend suggested I sho...

nellie_deany

•16 hours ago

5 Replies

leg pain

hi I’ve been suffering with really bad calf cramp and spasms for around a year now doctors put me on pramapexole for restless legs. I used to feel it on and...

hi I’ve been suffering with really bad calf cramp and spasms for around a year n...

Paula1jj

•20 days ago

25 Replies

Back from hospital

hello everyone, I hope you are all as well as you can be. I would like some advice please if anyone can help. My medical history is fibromyalgia,...

hello everyone, I hope you are all as well as you can be. I would like some adv...

Wumm

•4 days ago

11 Replies

Coming off Duloxetine, trialling Venlafaxine

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I send my love to you and wishing you to have a better day very soon! 😘 I've been...

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I sen...

misspicky82

•25 days ago

26 Replies

Getting nervous

I’ve had a text message this morning from DWP. They’ve arranged a telephone assessment for my PIP application at 11am on 2nd August. It’s good that things...

I’ve had a text message this morning from DWP. They’ve arranged a telephone asse...

Gulfstream_Maggie

•4 days ago

10 Replies

Can anyone help

hi had fibro now for about 6 years used to be on smitryptylene but came of that. I’ve been getting constant headaches and fuzzy feeling on my head. Any advice...

hi had fibro now for about 6 years used to be on smitryptylene but came of that....

Bar123ney

•8 days ago

14 Replies

Heat Wave

I’m learning that not only can I not handle cold but, can’t handle heat either! So happy we have AC. I’ve not been outside today except to water some plants...

I’m learning that not only can I not handle cold but, can’t handle heat either! ...

ratoncita

•6 days ago

12 Replies

PIp and other help?

Hello everyone. Does anyone know if you are entitled to other benefits whilst receiving pip? Thankyou

Hello everyone. Does anyone know if you are entitled to other benefits whilst re...

Bertjolly

•24 days ago

23 Replies

Had cortisone injection

Went to St Luke's yesterday was in and out. First attempt missed. Second didn't really hurt just more intense pressure.The Dr was very nice and friendly. It...

Went to St Luke's yesterday was in and out. First attempt missed. Second didn't ...

Smilesalot

•1 month ago

28 Replies

sleeping tablets

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wondering if they might help in anyway always been against them but had enough...

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wond...

dolphin21

•1 month ago

25 Replies

Any one else?

I've started drawing again, A bit rusty still, Helps with the depression, This is what I think my life in Giraffe looks like 🦒🦒🦒🦒

I've started drawing again, A bit rusty still, Helps with the depression, Th...

Debsdelight72

•27 days ago

23 Replies

prednisolone and fibro

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatica recently and it’s really helping with my Fibro . Now I know it’s not really...

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatic...

Molliesmamma

•13 days ago

16 Replies

pip updates

Hi All, Looking to see if anyone has done this before I got rewarded the high rate of pip on both components I’m in the stages of requesting my ill...

Hi All, Looking to see if anyone has done this before I got rewarded the hig...

10x10

•1 month ago

24 Replies

Telephone PIP assessment tomorrow

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those who are having a bad day, I'm sending lots of hugs to you all 🤗🤗🤗🤗 So I...

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those...

misspicky82

•21 days ago

19 Replies

Struggling to manage fibro flare ups

Had alot of stress and upset in my life recently and it's caused a massive flare up of my fibro to the point i had to purchase a walking aid as my left leg has...

Had alot of stress and upset in my life recently and it's caused a massive flare...

Pinklover89

•2 days ago

6 Replies

What the chuff

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for some time now, I really need a trim and colour, What with the silvers poking...

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for s...

Debsdelight72

•14 days ago

15 Replies

P I P decision

Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a...

Hi, any advice please , to help my decision for PIP. Its just been turned down....

Taylor68

•22 days ago

19 Replies

Crying sometimes and worrying about jobs...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes and worrying about getting a job i am trying the hospital and places near me...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes ...

fibrogirl41

•14 days ago

14 Replies

Just wondering if anyone else is experiencing this too?

Hello everyone, I hope you are having a better day. I’m not sure if this is a fibro thing or something else? I’ve had fibro and CFS/ME for over 30+yrs but this...

Hello everyone, I hope you are having a better day. I’m not sure if this is a fi...

Sarahvit

•10 days ago

12 Replies

Exercise anyone?

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in November 2021. I have today thought I would start 20min light exercise for mobility...

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in Novemb...

JessFM

•11 days ago

12 Replies

Happy Friday to everyone🤗

I want to wish everyone a good weekend. I'm in a lot of pain but my Fibro friend's have been cheering me up..Love to you all, Hugs Dawn 🤗

I want to wish everyone a good weekend. I'm in a lot of pain but my Fibro friend...

Smilesalot

•4 days ago

7 Replies

sacroiliac Joint Disorder

Hi everyone, after several visits to the doctors and not getting anywhere i found on my doctors notes ( that I’ve recently aquired) that the pain ive been...

Hi everyone, after several visits to the doctors and not getting anywhere i foun...

Bailey13

•25 days ago

18 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

FAQ - Benefits information - Start here

Report to the mods any issues with posts

Contacted by an admin - our method of editing a post

Making a new post rather than replying - a video

How to make a good post or question?

Latest poll

See all polls

What changes would you like to make in 2020 to improve your health and quality of life?

Vote

About us

Up to 2.7 million people in the UK live with Fibromyalgia (Fibro) & the awareness of this condition remains ve...

Support us!

We are 100% dependent on voluntary donations & fundraising, this means your generous contributions will help us continue to provide information & support to people living with Fibro

Please Donate here