Hi,
So I’ve been very very silly and went down the dark tunnel of Google and I’m now terrified that ivf won’t work for us because of my endometriosis. A lot of what I read says that women with endo basically have lower success in every way and now I’m scared. I just wondered if anyone has had success with ivf and endometriosis? For reference I have blocked tubes which is why we need ivf too
Hey lovely, step away from Google!!
My sister had really horrific endo, and had to have a couple of cysts drained between IVF rounds, her endo meant her tubes were also blocked.
She has a 3 year old and a 7 month old, both through IVF! It can be done!!
Good luck x
I know!! I had a moment of weakness 😂 It’s horrible looking at Google, everything says you’re pretty much doomed if you have endo! It’s so good to hear that your sister has been successful it really does give me so much hope 💖 Thank you so much xxx
Hi lovely,
As you know step away from google 😂 we are all guilty of it me included!
I have endometriosis on my womb along with endometriomas on my ovaries and pelvic wall.I had surgery to remove a cyst 11 years ago which over time other cysts appeared. My first checkup for IVF I was 35 and my AMH was 6.8 they advised for me not to have surgery as they were concerned it would further reduced the AMH and were going to put me on a long protocol but in the end it was decided I had a short protocol.
My first round I got 9 eggs of which 5 fertilised. The frozen transfer worked for me. Wishing you all the best and I hope you get your BFP
People with endo are definitely not doomed so please keep the faith! I know it’s hard but I really hope you get you BFP soon xxx
I’ve been doing so well lately with not googling anything like ivf success rates and things like that but I just had a weak moment 😂 I definitely won’t be doing it again but it makes my heart so happy hearing other success stories with this horrible condition! Xxx
I wish I had been warned by my doctor that the op could potentially reduce my AMH - which unfortunately it did…. 😞 it went from around 3/4 to 0.9 last time I was tested. I have another blood test slip to so I can test my AMH levels again before my search for an IVF clinic but have been putting it off as I’m scared to see if my AMH has stayed the same or decreased further! Have lost all hope like ziggy you read all these stuff on Google that the chances are so low and some clinics won’t take you on if you have a really low AMH so it’s really hard! Also started smoking again which doesn’t help because of the stress ! 😞
Hi lovely, I am sorry to hear the op reduced your AMH. I have seen ladies on here though with very low AMH and have gone on to get pregnant so fingers crossed the same is for you. I have even read where some ladies AMH has increased after taking certain viramins/meds might be worth taking a look or asking on the group as I don’t have any experience of these particular vitamins. Have you had any rounds of IVF yet you waiting to start with a clinic? xx
Hey hun, Aw thanks for your reply.
Thanks I’ve just got myself in a rut just need to get my head back in the game!
I have spent so much money on vitamins and gels too 😓. I haven’t booked any rounds of IVF yet. I think I just need to build up the courage get my AMH tested again and book a cycle for 2022!
I’m 34 so been advised with my low egg reserve needs to be sooner rather than later.
Xxx
No worries lovely!
It really is a rollercoaster of emotions but for me personally I felt starting ivf meant I had control of it as I had had enough trying naturally and getting that disappointment every month, it was draining.
Just remember be kind to yourself and when you feel strong enough get the bull by the horns and get a cycle booked in. This forum is amazing so I never felt alone in how I felt and what I was going through. If you need an ear feel free to message me.
I wish you all the best and I hope this is your year
Lots of baby dust to you xxx
Yep - success story here! Only 1 tube and working ovary with endometriosis but couldn't conceive naturally so 2 rounds of IVF and 5.5 years later we are 36 weeks pregnant. Good luck 🤗 Xx
That’s amazing, congratulations!! It gives me so much hope! 💖💖
Hello many congratulations on your pregnancy 🙏🏻🙏🏻 Did you also have to have surgery first? X
Thank you 😊 that's really kind! Yes, 3 excision laparoscopies in total and 2 full cycles/egg collections ICSI. Even with low AMH for my age, my clinic got my protocol spot on & I responded well. So grateful 🙏 xx
Thanks Lizzie for coming back I to have endo and also had icsi for two rounds but reading here more than likely will need to have cysts removes before transfer
Wishing you loads of luck & a speedy recovery if you decide to go ahead with your surgery! Xx
Thank you Lizzy ❤️ And wishing you heaps of luck with your pregnancy 🙏🏻😍 xx
Hi it can happen!
I had severe endo partial bowel resection, cysts removed and lost a tube. I am now pregnant but I had my endo removed before my ivf. Would it have worked if we had not removed it I will never know but I did it this way round because my pain was so excruciatingly debilitatingly bad. We can get there!
Lots of luck 💕💕💕
Thank you so much and congratulations! I had my first surgery in June but it hasn’t really helped with the pain 🥺 I’m hoping my consultant will be able to give me a more accurate idea of our chance at success, sending you lots of love ❤️
You’re welcome!
I really hope it all works out for you because it’s worth the wait no matter how long that may be 💕💕 xx
Hi lovely I remember feeling exactly the same and just thinking it would somehow stop me ever getting pregnant. My endo was severe and rectovaginal so all over bowel etc (the worst for fertility I read) so just assumed the worst. We tried for 2 years naturally and had two ops but IVf worked first time for us 😊 I think it bypasses a lot of the fertility issues caused by endo. Good luck 🤞 xx
Aw I’m so glad it worked for you! Endo is so scary on its own without all the fertility stuff thrown on top! Thank you for your reply it makes me so optimistic when I hear other people have had success who were in the same position as me. Sending you lots of love 💕
Sever endo here, on womb, bowels, back, tubes and everything, and and IVF worked first time! Google is nobody's friend!
That’s amazing! Congratulations, I’m definitely going to stay away from Google from now on ❤️
Hi ZiggyandBC, I’m in the exact same position as you, I also have endometriosis which has caused blockages in both of my tubes so ivf is the only way of getting pregnant for me. I’m awaiting an operation to remove my tubes and the endo before we do the ivf as advised by my consultant to have the maximum success we can. I’ve been feeling quite down lately about it all as I’m 34 this year and want children sooner rather than later and with covid putting routine operations on a back log (been waiting 8 months already) it’s starting to get to me, but after seeing this post and the replies I’m feeling much more positive about things. I send you so much goodluck and positive vibes and hope to see your success story on here soon 
Aw good luck to you too! I was waiting 7 months for my first laparoscopy last year so I know how frustrating it is, fingers crossed it won’t be much longer. Sending you lots of love 💕
I’m currently going through IVF for the first time and just wanted to say, I know how you feel and thank you for writing this post! I have severe endo, 2 laps over last 2 years and large 14cm cysts removed. Plus, blocked tube.
I too, am guilty of Googling recently and feeling so deflated by the statistics but these success stories have really brightened my day.
Thank you all. Just goes to show, this forum is the best place to find your support not Google x
This forum has been a game changer for me, it’s helped me so much! I’m so glad my post has helped you too 💕 sending you lots of love and luck on your journey xx
Hello Lovely!I would like to give you some hope! I suffer from severe endo almost everywhere (i.e.: USL, POD, bladder, ureters and had a pararectal nodule and bilateral endometriomas), in addition to adenomyosis. It has been a very a very long journey for us and I don't have my baby yet, but I am currently pregnant after IVF. Because of my age, we decided to do egg collection first and before any surgery because the consultant was worried that if they removed the endometriomas in both ovaries my ovarian reserve would be badly affected. So, we did EC first and then I had to have excision for endometriosis surgery because I just couldn't live or function in such excruciating pain. When I had my MRI they also thought I had a complex hydrosalpinx and they said that would affect implantation, hence the surgery too.
Please please don't lose hope and I am here if you have any questions or want to chat x
Hey, thank you so much for your reply and huge congratulations on your pregnancy! It’s amazing to hear other ladies success stories and it gives me so much hope! I had my first laparoscopy back in June and they found both my tubes blocked and removed an endometrioma so Ivf is the only option now 💖
Good luck! Sending lots of positive vibes and baby dust your way and if you have any questions, just ask :-)🌸🌸🌸
Hi Ziggy,
Yes, I have stage 4 endometriosis. It’s pretty extensive with my uterus tethered to my bowel. I had no idea I had it until I underwent a laparoscopy to assess my tubes - the endo was so bad they couldn’t access them! Because I’m asymptomatic we decided not to treat it before starting IVF. I had a successful cycle on my 3rd round! Good luck with your IVF! Happy to answer any questions you have! ☺️
PS- I’ve been down many dark Google tunnels myself in the past! 🤦🏼♀️
That’s amazing, congratulations!! I need to start coming on here when I get the urge to Google because this forum is so much more helpful! Sending you lots of love ❤️
Hi! Just wondering if you did anything different for your 3rd round? I'm also at the same point xxx
Heya, I did so much googling when I first found out I had endo about a year and a bit ago. I only found out as I was having investigations for secondary infertility. I have a 4 year old daughter and am 2 days away from testing to see if my frozen transfer has worked. My first transfer failed but they always say it only takes one egg! IVF is so much more advanced now and it’s quite common for people to go through it with endo and they have slightly different medications so as not to make the endo worse. I have stage 4 endo and have had two surgeries within the last year and a bit. I still have my bowel attached to my uterus but they’ve said that shouldn’t have too much of an impact on the ivf! Anyway we shall see! Got to try and stay positive! I’m sure everything will work out for you. I’m always on here looking at success stories to give me hope to keep going. Sending positive vibes your way xx
Hey! Good luck for your test day, I’ll have my fingers crossed for you! I’ve been doing really well with not googling these last few months but then I just spiralled and I was feeling so hopeless. Google really is awful but I’m thankful for this forum, it’s helped me so much! Xxx
Thank you 😊 really wishing you every success on your journey. It’s so tough what we have to go through! I’ve definitely been on this forum more this round than last when I was googling every symptom I had. It’s definitely more helpful coming on here. It’s so easy though to go down that google rabbit hole! Sometimes I try and leave my phone in another room in the evenings to keep me from doing that! Have been doing lots of jigsaw puzzles as a distraction which has actually been quite calming and helpful xx
So while I don’t have endo your comment about googling resonated. In my case I’m 39, 40 by the end of the year and possibly going to miscarry. Googling has just made my depression and anxiety worse and I’m working with a faith based fertility coach and she said to me: who do you believe- google or God? Now I know not everyone is religiously inclined but what I’m trying to say is that googling just makes things worse when we’re looking for answers or rationalization. So much so my husband has banned me from googling because it’s such a dark hole. I almost wish we were pregnant in our parents time when there was no google or social media. Also the same coach said to me that google also tends to amplify a certain point of view that may not be applicable to so many women.
Googling is the worst! It always makes me feel worse and most of the time the info is outdated anyway. My partner has also banned me from googling 😂 He’s told me to just take to him when I want to Google so he can distract me so I’m going to do that form now on and stay far away from Google! Sending you lots of love on your journey xxx
Seriously. Through googling i diagnosed myself with a blighted ovum to explain why my pregnancy was not progressing as it should and the kind ladies on this forum said umm no, if you have a yolk and sac it’s not a blighted ovum. I wish you lots of love and strength.
There’s no guarantee with ivf endo or not. I had mild endo but had surgery to correct it and it still took 4 rounds of ivf before I got pregnant and we used donor eggs on that last round
Hey, congratulations on your pregnancy. It’s such a scary journey and not knowing where we’re going to end up is so difficult. Sending you lots of love 💕
Hi! I hope it works for you eventually.My second round ivf after the first unsuccessful one has just been cancelled because I was diagnosed with Endo.
I would like to know exactly how your team of doctors are managing it.
I was perfectly alright during my first ivf. It was my husband that had low sperm count so I don't know how ended up with Endo.
I had surgery for endometriosis (didn’t know I had it) conceived naturally once and with ivf once after both resulted in early miscarriage but unrelated they say. I’m now heavily pregnant with twins after my third round so it absolutely happens!A friend of mine also had to have ivf endo and blocked tubes one in particular they almost removed, she got pregnant with her first round of ivf and has a beautiful little boy! And an absolute miracle she has just found out (11 months after having him) that she is 7 weeks pregnant naturally!! And she looks to have ovulated from the side of the badly blocked tube and baby had implanted on that side also so it looks like that poorly tube has still done it’s job 🥰 amazing!!
Good luck honey, Google is a nightmare at times just remember everyone and every circumstance is different! X
I just want to say a huge thank you for your post! I found out I had stage 3 endo and a large 7cm endometrioma last year after routine investigations as we hadn't been able to conceive in a year and a half. It was a real shock as luckily for me my pain is managable - I always thought I just had heavy painful periods.
Another year later and I've had a lap to remove the cyst and unstick my ovaries from the pelvic wall. I think I hoped that would be the fix and things would happen for us then. But now I'm looking at starting my first IVF cycle in May. In our first consultation the consultant scanned me again and said she could see another endometrioma, which felt like another blow and could only clearly identify one ovary. I'm worried now that this will all interfere with my egg collection. Like you I just want some positivity. When things have come so far from how you imagined it's hard to stay hopeful.
But this thread and all you lovely ladies has been amazing this morning! It's so nice to read positive stories of others with endo going through IVF! I'm going to try and stop over thinking and focus on these messages! Xxx
Hey! Aw I’m so glad it’s helped you! Your situation is really similar to mine! I also had an endometioma removed last year and on my consultant scan they saw another one 😅 I felt like crying! I couldn’t believe it had come back! I’m also looking at starting our first cycle in May! We have our paperwork appointment later this month and then we’ll know if we start in may or June. Feel free to DM me 🥰
0.26 amh, severe endometriosis and ivf success 
Severe endometriosis with IVF 
IVF success that ended in miscarriage
