What happens next? *possibly sensitive*

[Solly-44]

I’ve just got home from hospital after a 2 scans and a lot of waiting, and it was confirmed that we lost the baby today.

I didn’t think to ask any questions but of course now I have a million. The 1st scan confirmed no pregnancy where it should be, then later I was sent for another to check for ectopic because my hcg levels are very high and I had a really high heart rate but nothing was seen there either. I have to go back on Monday for a repeat HCG test but why? They’re 100% sure, sure enough to tell me to stop taking my meds so why? What happens if it’s not gone down? Is there any chance there’s a mistake and I should keep taking my meds? When do they let you restart IVF? I know it probably seems obscene to be asking that right now but I don’t have time on my side anymore xx

[CLDxxx]

Hey lovely, that’s a long day. You must be exhausted. I think I’d be tempted to stay on meds. They haven’t seen where the pregnancy should be so doesn’t mean it isn’t there. What are you thinking about meds? I think you need to have one period after miscarriage before starting again which I would agree with as I rushed to have mine before and still had some scar tissue so it ended up being cancelled xx

[Trying1234]

Hi Solly

I am so sorry to hear this, that’s really rough. Did they rule out it being an ectopic? I know when a friend had an ectopic they didn’t see it straight away. She had to have her hcg measured to ensure that the levels were going down.

I would go with your clinics advise because if it is ectopic the meds could keep helping the pregnancy to develop in your tubes.

I’m just so sorry you are having to go through this. Xxx

[KiboXX]

Hi Solly,

I’m so sorry you’re going through this, I think in this situation I would be asking exactly the same questions. Could you reach out to your clinic for a second opinion?

I would inclined to stay on meds at least until tomorrow and see how things are xxx

[Hidden]

I’m so sorry you are going through this. I had similar and was ‘pregnant in an unknown location’ for a while but I wasn’t bleeding and I think you are?

I don’t want to write what I am writing next but I feel like I should. I want to give you loads of hope but in my scenario they wanted another HCG to check it was all over and not ongoing. In my case it wasn’t over and I ended up having several surgeries but that’s very rare

Did they say what your HCG is? I don’t want to dismiss your chances without that

Sending you so much love - it’s utterly utterly shit xxxxx

[Lou9]

So sorry to read this. I’m really sorry to say that when I had my first ectopic, it was a pregnancy of unknown location as it didn’t show up on the ultrasound, in my case until it ruptured. I was told afterwards that if a pregnancy of unknown location is diagnosed I should have been kept in until they figure out what’s going on. I would definitely phone for advice.

I’ll keep everything crossed that your situation is a positive one. 💕

[FrancyItaly]

I am so sorry to read this, it’s horrible 😔 have they managed to locate the pregnancy? If the HCG is very high they should be able to locate the pregnancy. What medication are you on, is it just the progesterone? After the miscarriage (in uterus) is complete you could try again after 2 months, if you don’t have complications. You might feel a bit awkward to think about the next try already and while you still pregnant, it happened to me as well with my last miscarriage. I am not sure with ectopics though. For me if they told you to stop the medication it is for the best, but if you are not convinced call just to double check! Sending you a massive hug at this difficult time xxx

[BBHH1]

Sorry to hear :(It’s normal to FU with HCG to check if the miscarriage complete itself or not.

Also it seems your case unfortunately is not a viable pregnancy but it’s still unclear what is te situation. So may need to continue checking for ectopic or molar pregnancy.

You should contact your provider to ask the questions. You should not suffer even more from lack of information and the anxiety it causes..

Wish you feel better soon. Best

[MissSaoPaulo]

I'm so sorry hon, sending you big big hugs xxx

[Zyrafa]

So sorry to hear Solly. Sending you a big hug and best wishes, hope you feel better soon xx

[Leebee03]

I am so incredibly sorry to hear this and I can’t imagine what you are going through right now. Until you have a definitive answer, your head will be all over the place. I would say, if they haven’t ruled out an ectopic pregnancy, it may be best to contact the pregnancy support unit/ early pregnancy unit, as I feel you should be getting monitored daily. I don’t know how many weeks you will be at this stage, but I was almost 6 weeks by the time my ectopic showed on a scan and my HCG was more than doubling every day. Once my HCG got over 5000 they couldn’t give me medication for the ectopic and ended up having to get surgery, so the sooner they can find out where the pregnancy is, the better, or at least see sooner if HCG levels are dropping to suggest miscarriage. Blood tests should be done every 48 hours, so you might be able to push to get this and another scan done on Sunday. I know how slowly the time goes waiting on all these things and I am so so sorry you are going through this right now, especially after everything you’ve been through to get this pregnancy. Sending you so much love and hugs xx

[Corchi]

Gosh so sorry for all this anxiety. I would stay on meds till a third check up. Hang in there lovely xxx

[Cinderella5]

Hi Solly, I'm so sorry to see your update. It sounds like a pregnancy of unknown location. - PUL. They will have to check your hCG to check that it is reducing as if it keeps rising they may have to intervene. It may well drop but if not there are a few things they may do....rescan, laparoscopy or maybe even methotrexate will be given (same treatment for an ectopic). Its hard to say when you'd be able to try again until you know what you're dealing with. I'm fairly confident that if they cant even locate a sac on scan and you know your.dates it's highly unlikely to be a mistake. Massive hugs.xxx

[ki50]

So sorry to hear this Solly, as others have mentioned the repeat test is to make sure your hcg levels are dropping, which helps them rule out an ectopic. When I had an mmc they also asked me to return first in a couple of days and then a couple of weeks later for a further test to check levels had fallen pretty much completely. The hcg tests were done by the epu and they did a scan as well to confirm there was no viable pregnancy and to check for signs of an ectopic. I was advised pretty much as soon as I had the first scan and they couldn't locate a sac to stop taking the meds. I had to have the withdrawal bleed then one proper period and then started the fet round on the 2nd period. I felt the same, like time isn't on my side but it did affect me emotionally for a while, so with hindsight the break was probably a sensible decision. Sending you a big hug xx

[psalm18]

Solly-44, I'm so sorry you are going through this.