Thank you lovely ladies that replied ... - Fertility Network UK

Fertility Network UK

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Thank you lovely ladies that replied to my last post. I was finally given a laparoscopy and all because of you

CatDV
CatDV

Just an update on the outcome of my last post.

As per your advice I ended up sending a letter to my gynaecology clinic explaining how surprised of their lack of knowledge I was after one of their consultant told me that she knows I don’t have endometriosis since my tubes showed open on the HSG. Also told them that I fell that my worries that I may suffer from endometriosis are being totally dismissed by all the doctor that see me. I don’t have debilitating pain but after 3 years ttc and with with severe period pain during the first days of my cyclye that only started a few years ago, together with mild but constant pelvic discomfort I truly believe that endometriosis can’t be discarded, that’s why I was trying to push for a laparoscopy.

Less that a week after I sent my letter I received and apology letter from the consultant that saw me earlier and was booked an appointment with the another consultant to discuss my worries.

This new consultant told me he believes my probability of having endometriosis is 50% and that he is more than happy to offer me a laparoscopy. This appointment was on The 12th of March and they said waiting list is 2 months.

I received a call from them today saying that they have a place for me on the 14th of April!

Thank you so much to everyone one of you that replied to my last post and provided such good advice. Wouldn’t have thought about writing a letter to them directly, so if it wasn’t for you this wouldn’t have been possible.

Sending my love xxx

21 Replies
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Well done for your hard work too! I hope it goes well, good luck!xx

CatDV
CatDV in reply to Cinderella5

Thank you 😊

I’m so glad you stood up for yourself. I had very minor endometrial spots removed during my lap and have fallen pregnant naturally twice in the year since, having not fallen pregnant in two years of trying before that. I hope it makes all the difference to you too. Maybe ask them to do a hysteroscopy at the same time just to check your womb lining. Xx

Thank you!! 😊

Great idea! Will mention that in my appointment before the lap!

Oh my love I was wondering how you got on. Fantastic news: endometriosis is always worth ruling out 😀 I’m so happy your new gynaecologist took you seriously 😘

I’ve had two laparoscopys if you have any questions or advice please feel free to ask me.

Make sure the gynaecologist checks other organs as wellAs pelvic; endometriosis can grow on many organs such as bowels: some endometriosis was left on my bowel so I’ve been referred to endometriosis specialist as gynaecologists cant treat complex endometriosis .

I am shocked and horrified by your gynaecologist lack of knowledge; endometriosis is a gynaecological condition. no words 🤦🏼‍♀️ glad you got an apology damn right 😉

All the best with it 💝xoxo

CatDV
CatDV in reply to jess1981

Thank you my lovely. Truly grateful for your always very knowledgeable words! You were crucial for this outcome 😊

Will do some research now about the procedure itself, but if needed will definitely contact you xxx

jess1981
jess1981 in reply to CatDV

Aww thank you 😀

It’s not as bad as it sounds xoxo

Hidden
Hidden

I’m so pleased you are making progress! My clinic wouldn’t do a lap and dye and said “if you are worried about endo, getting pregnant will help with that” implying I should just go with the IVF, get pregnant and stop asking questions. Well, after the miscarriage last week of our first fresh transfer, we have a follow up on Monday and I’m going to bring all this with me! I’m going on push for these tests before we continue with frozen transfers. I am really sure I have endo too and they just have not taken me seriously... good luck with your procedure! X

CatDV
CatDV in reply to Hidden

I am so sorry about your miscarriage. Have been reading some of your recent posts and really feel for you. 😕

This new consultant tried to persuade me to try IVF before the lap saying that a lap won’t increase my chances of a successful IVF and bla bla bla. I told him that I do now that, but what I am really interested is to increase my chances of conceiving naturally as so far we are inexplicable.

He agreed that what I said makes sense and booked me one.

Best of luck for your journey xx

Hidden
Hidden in reply to CatDV

Thank you CatDV. I seem to have had the same conversation with the consultant last time we met! They just want to push on with IVF and are seemingly unwilling to look into other avenues for naturally conceiving. There is something that is preventing us getting pregnant naturally and until we try all tests etc. they can't rule us as "unexplained" I'm going to push for this test when we meet as we are having a break for a while anyway before the frozen transfer. I don't just want to rely on IVF to conceive, especially when success rates are so low! Best of luck x

CatDV
CatDV in reply to Hidden

Totally agree!

Good luck to you too 😊

Hidden
Hidden

Well done, I'm really pleased to hear you are getting somewhere. I think many doctors don't take Endometriosis seriously. I was told by one hospital I didn't have it without anything other than a scan being carried out ( not even a trans vaginal scan either ) & that they would probably see me in the anti natal clinic soon after. A few months later I woke up after surgery to be told I have severe Endometriosis. I said to my consultant at the new hospital why didn't the other hospital find anything & she said they can't investigate every woman who complains of period pain! Shocking! Best of luck with everything 🤞 🙂 xx

CatDV
CatDV in reply to Hidden

It is without a doubt a very under diagnosed condition unfortunately. I hope I don’t have but I need to be sure as it may very well be exactly what is preventing me from conceiving.And I have many symptoms that match!

Thank you for your good wishes xxx 😊

How did the laparoscopy go yesterday? Hope you’re recovering well xoxo

CatDV
CatDV in reply to jess1981

Hi Jess and Joanna😊

So lovely that you remembered I really appreciate that 😍

I may write a post about that but just to keep you updated, the procedure it self went well. Surgeon found just a little bit of endo and has removed it. Can’t remember where though... still have to read my notes.

I had to stay overnight due to urinary retention (so painful! They had to catheterise me as emergency since I could not breath with pain)

Now I am about to leave the hospital with barely any discomfort in my abdominal area and feeling quite well. I have already passed urine without catheter twice and never imagine doing a celebratory dance after going for a wee 😂😂😂

Again, thank you so much for asking

Sending you all my love xxx

jess1981
jess1981 in reply to CatDV

Sorry you were kept in and had difficulties post op that’s not nice poor you.

That’s great you have answers ; that first consultant was so wrong 😉

Why it isn’t standard policy to check for endometriosis as part of infertility investigations I will never know 🤦🏼‍♀️

I managed to conceive naturally ( did miscarry but still progress) after my endo was found and treated and I hope you can too now 😉

Wishing you a good recovery.

Keep a close eye on stitches; if they look red , are very sore or weepy see a nurse practitioner or doctor ASAP; I ended up having an infection on my second lap as the the scab healed over the stitches on one incision; painful! Sometimes dissolvable stitches don’t always dissolve easily; my first lap I had to have one or two removed;it didn’t hurt.

Rest up; even tho the incisions are small the work they did wasn’t; lots of pulling organs about and removal of endo implants.i I was ready to return to work after 2 weeks 😊but don’t return till you feel ready.; it’s a very individual thing recovery.

Hoping you don’t need ivf now 😘 xoxo

CatDV
CatDV in reply to jess1981

Thank you my lovely Jess!

You always take your precious time to help me and so many other ladies. we are are all very grateful for that xx

Will take into account every thing you said and contact my GP is something is not looking good.

Sending you my best wishes for the endo you have in your bowels to be resolved as soon as possible.

Hopefully we will both have a baby in our bellies very very soon.

Lots of lovexxx

jess1981
jess1981 in reply to CatDV

You’re very welcome my love 😘

Frustratingly we have to do our own research and sometimes push to get answers. 🙄

Glad you’re under a better fertility specialist; makes a huge difference. I wouldn’t be seeing a endometriosis specialist if it wasn’t for my fertility specialist 😘

Thank you; I’m seeing the endometriosis specialist on Wednesday a cancellation appointment came up lucky hey ;they’re going to call me tomorrow morning before work to tell more details.

I’ve no doubt this year will be our year 😉 positive pants on 😉xoxo

CatDV
CatDV in reply to jess1981

Keep us updated xx

How did your Lap go yesterday Cat? :-)

CatDV
CatDV in reply to Joanna1701

Hi Jess and Joanna😊

So lovely that you remembered I really appreciate that 😍

I may write a post about that but just to keep you updated, the procedure it self went well. Surgeon found just a little bit of endo and has removed it. Can’t remember where though... still have to read my notes.

I had to stay overnight due to urinary retention (so painful! They had to catheterise me as emergency since I could not breath with pain)

Now I am about to leave the hospital with barely any discomfort in my abdominal area and feeling quite well. I have already passed urine without catheter twice and never imagine doing a celebratory dance after going for a wee 😂😂😂

Again, thank you so much for asking

Sending you all my love xxx

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