I need your help. Please consider thi... - Living with Fatty...

Living with Fatty Liver and NASH

8,266 members2,164 posts

I need your help. Please consider this request to help me encourage docs to treat us better.

nash2 profile image
nash2Partner
9 Replies

The Fatty Liver Foundation sponsors an annual survey of liver patients to gather information about the lived experience of members of our patient community. Many of us have been unhappy with the care we have received. Providers won't respond to any single voice but if we can present data as a group our voices carry some weight. If you are a liver patient, improving the way our care is managed should be a concern for you. Add your voice by taking our survey. It is by patients for patients and is not done for any business.

I know surveys are a pain. I hate them myself, but it is 50 questions and will take less than 20 minutes. Surely you can contribute that much to helping us educate docs about our experiences as patients.

Here is a link to the survey.

surveymonkey.com/r/CBYNMD7

Thanks

Wayne

Written by
nash2 profile image
nash2
Partner
To view profiles and participate in discussions please or .
9 Replies
Maxy6 profile image
Maxy6

Done.

ThyroidDeb profile image
ThyroidDeb

Done

Healing24 profile image
Healing24

All Done!!! 👍

TFNAugust profile image
TFNAugust

I took the silvery. I hope something can be done. There is not enough early intervention or help. Most advice is post diagnosis (late stage) yet the same advice would have helped stop the progression pre-diagnosis.

Micah6v8 profile image
Micah6v8

completed

WildnWooly profile image
WildnWooly

Completed. Thank you!

Jkf1 profile image
Jkf1

Done

Rosebud1027 profile image
Rosebud1027

done

monarchwhisperer profile image
monarchwhisperer

Done 😊 I'm actually glad that I took the survey because I've never been officially diagnosed by the countless providers I have seen. I just see it in my MyChart on CT Scans (I don't see it lol The radiologist reading the test does)

Not what you're looking for?

You may also like...

Will You Take Our Survey Seeking NAFLD/NASH Patient Voices?

Hi everyone, My name is Tiffany and I'm joining FLF as a Program Coordinator - I'm so excited to...
AfternoonCoffee profile image
Administrator

I need help from a few NAFLD/NASH patients who are willing to tell their stories and perhaps participate in a panel discussion.

I think you probably know that Madrigal is likely to have the first drug approved to treat...
nash2 profile image
Partner

I need your help, will you help us by taking our survey? Take a look at the link below for more information.

Announcing The State of NAFLD/NASH Care in America Survey This 2022 State of Care Survey is the...
nash2 profile image
Partner

The State of NAFLD/NASH Care in America 2023 is Live - We Need Your Voice

Hi community members,  Last year, many of you generously took the time to share your patient...
AfternoonCoffee profile image
Administrator

CBD OIL a triumph of hope over reason? What matters?

My poor inbox groans under the weight of CBD articles and pitches. I've hesitated to jump into this...
nash2 profile image
Partner