Stayin Alive with liver disease, how ... - Living with Fatty...

Living with Fatty Liver and NASH

8,231 members2,146 posts

Stayin Alive with liver disease, how do we do that?

nash2 profile image
nash2Partner
6 Replies

I haven't written about diet in some time and things have improved a bit for some people, but we have the next crop of victims of these crummy liver diseases on board, so a little information from the real world might be of value.

First, there is no cleanse, superfood, magic pill, talisman, or faith healer that will fix your liver. Beware of Dr Google as he might kill you after he takes your money. There are a few things that help some people marginally, but generally they just service hope.

My story might be of interest as an example of one approach. I was diagnosed with F4 cirrhosis in January 2015 with a Fibroscan stiffness score of 21.5. At the time they said over 12 was cirrhosis. I hadn't decompensated but the dust of that demon coming for me was visible. The advice from my hepatologist was unconventional, he was educated in Europe, and it was 3 tablespoons of extra virgin olive oil and 1 tablespoon of fish oil daily with a mostly plant based diet. lots of salads. No saturated fat and limited simple carbs like sugar. Adequate protein from white meats and plant sources. Sodium below 1,500 mg per day.

I had been a meat and potatoes guy with a passion for bread, which I had used with great pleasure to add 70 pounds of first class fat to my body. I was a typical American fat boy which caused my liver problem. My wife and I made the switch in our diet that day in the docs office. We went home, cleaned out our fridge and pantry and never looked back.

The result was I lost 70 pounds and my Fibroscan stiffness was 9.6, an F2, two years later. My hepatologist wanted to bottle me as I was one of very few of his patients who succeeded. He said if I persisted, something other than my liver would kill me one day. An odd thing to rejoice over, but my wife and I were really happy with that prognosis.

If you have ever tasted "good" olive oil, you know it tastes terrible when taken straight. It has a lot of polyphenols which are bitter. When they test oil, they suck it into their mouth from a special little dish. A great oil makes you cough at least 3 times. That much oil is too much for cooking, so I simply took it like the old days of bad tasting cough medicine, by the tablespoon. That's not enjoyable, but it was over with quickly and I was determined to manage my liver disease.

I think it helps to understand the chemistry just a bit. With the formation of scar tissue, inflammation is your enemy. If you can stop the inflammation, you will halt the fibrosis. Once you do that, you give your body's cleanup systems time to work on the fibrosis. If you can maintain an inflammation free organ, the body can reduce the amount of fibrosis in it over time. It is a slow process, so consider your dietary changes to be a lifetime commitment. The switch from saturated fats to unsaturated fats is a big part of that as the unsaturated are not inflammatory. The elimination of salt and alcohol are the other pillars of recovery. You want to do everything you can to reduce the workload of the liver. Let it rest and it will work hard to recover.

If you would like to read a more extensive discussion of our approach to food, here is a link to that material on our website.

fattyliverfoundation.org/li...

Day to day living can be challenging when dealing with a disease. Many people don't know what services are available to them in their local area. Finding those local resources in their local zip code is often a challenge for patients. We are developing a tool to help with that. Would you take a few minutes and examine our tool for locating local services? Just click on the link below: enter your local zip-code in the form: explore how the services available to you in your area are shown: and take the short survey. The elements above the zip code function are under development, so don't comment on those just yet.

fattyliverfoundation.org/we...

I will really appreciate it if you will take a few minutes to give us feedback. As patients ourselves, how to live in the best way possible while dealing with illness is important. Your opinion matters.

Written by
nash2 profile image
nash2
Partner
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Monicka profile image
Monicka

Hi Nash! Thanks for your update. It’s hopeful to hear that even very bad conditions of the liver can be reversed by proper lifestyle. I especially like your input about stopping inflammation and letting your body/liver work on fibrosis. For me joining this community was one of the most crucial steps toward the liver health alongside the change in eating habits of course. And I definitely agree it’s a matter of lifetime. I’m not sure what exactly was the condition my liver was in when I first realised that something was wrong. I spent a great deal of time here back then (still do) reading the posts and comments. I posted a few questions myself and was very grateful that you always addressed it in case no one else did. I keep fingers crossed for you and for myself and anyone struggling hard with their liver health. I hope we still be here a long time supporting each other🧡

nash2 profile image
nash2Partner in reply to Monicka

Thanks Monicka, I appreciate your kind thoughts. We are all on the same train and having a supportive community is important. None of us, especially our docs, know everything. I find the combined wisdom of the group very encouraging.

Cindyh1958 profile image
Cindyh1958

Wow that’s amazing and encouraging! Can you share which olive oil you use as I know there are so many low quality ones out there. Also I would love to get on board with your diet, any guidance in that area is much appreciated. Bless you with continued good health.

nash2 profile image
nash2Partner in reply to Cindyh1958

Sure, I use Apollo Olive Oil. I chose them because they try to maximize the polyphenols in the oil and win a lot best in class awards.

apollooliveoil.com/organic-...

There is a lot of info on our website RE our approach to diet

fattyliverfoundation.org/li...

Cindyh1958 profile image
Cindyh1958 in reply to nash2

Thank you so much!

Deborahkd22 profile image
Deborahkd22 in reply to nash2

I tried the Apollo oil after Nash2 recommended it. I’ve been buying it for at least a year and a half. It’s fabulous!

Not what you're looking for?

You may also like...

The New NAFLD/NASH guidance is out but how do we use it as patients? Here is an explanation and a suggestion from the Fatty Liver Foundation

The new guidance for managing NAFLD/NASH has been officially published. This is the official...

Collagen and fibrosis, do you know how that works?

Remember from prior posts, that fibrosis forms first as long strings that associate over time and...

Fatty liver, is it directly related to liver disease or not....

I saw my pcp on Tuesday. He tells me that fatty liver and liver disease are not that closely...

Can some of you comment on weakness with liver disease?

I am sort of on my own in tracking my disease. I have NASH with the start of fibrosis. I am very...

One of the groups most at risk of liver disease is long haul truckers. We have joined with the HTAA to help educate them about health risks

We are working with the Healthy Trucking Association of America, (HTAA) to help educate and support...