If you are a patient, caregiver, or someone who cares about liver disease. I need your help.
We are providing patient focused information in our upcoming webinar so the subject should be of interest to you, but there is a larger issue here. There are a lot of problems with how we are managed, as patients, by the system. For example, it makes me angry when I hear from people who first learn about their disease by being told they have cirrhosis. That just should never happen. Another concern is that people get all kinds of crazy advice from people trying to sell them miracle products that are not useful. Much of the official information isn't very helpful either, and a lot of docs don't study nutrition so good advice can be hard to find.
How are we to deal with issues like these? As patients we have to become better informed but most importantly we have to speak up. We can choose to just suffer quietly and hope things improve. Most people do that. Personally, I can't stand to be passive. I have cirrhosis because of a multiyear diagnosis failure. Many of you have had similar experiences with statements like fatty liver, no big deal. That annoys me a good bit.
I'm also here to save my life. If I can make the system move faster in any way I may get therapy that will let me not die too soon of liver disease. I'd like that.
So what does that have to do with you? We are the Voice of NASH but when I talk to companies or agencies about things that, as patients, we need, they always want to know how big my army is.
If you are in this fight, you need to be counted. Even if you can't watch this webinar live, sign up, you will get a link to a recording. Even if you won't watch it, get the link and send it to someone you know who is impacted by liver disease. Maybe it will help them. Even if you just want to say you agree and want someone to know, register. It is a free service and we aren't selling anything.
That's the story. If you care, help us. Click this link to register
