There is a lot of research going on about the patient journey and we have been asked to help the researchers contact people who have the disease. See below for a little blurb and a link. They need about 20 more people to complete the study.
USA: Is NASH a part of your life story?
Earn $150 for a 60-minute, telephone interview regarding your experience.
Please take a screener survey, researchers will assess your responses, and send you an invite via email if you qualify:
You are announcing this survey, 2 weeks ago, you were doing the same thing about another survey of NASH for a week of work and would be paid $450.00, I have not received a email or any correspondence after I completed this survey on where is my money is. I did this survey because YOU were posting it and YOU always seemed to be legit and honest and 100% of what you post & I look forward to your posts, I also had another administrator tell me to be careful bout surveys because they don't payoff, but I am writing this to you hoping that you don't know that people aren't getting paid. or at least not me...
I'm not aware of any that I've helped not paying. Thanks for the tip, I'll look into it. The ones I've participated in personally in the past have done what they said but I'm sure there are some that don't. There is a lot of interest in the NASH community this year as the various research companies are trying to develop drugs to treat NASH.
Thankyou for the quick reply, I finally got ahold of Maggie the go to girl for this research company that I applied with, and she told me what the delay was in issueing the checks so I will wait and see if the checks come through this time as she has described.
Just as an FYI I have agreed to take part and been approved for the ZS research. I assume you have vetted this organization Wayne. Let me know and thank you.
Thanks for asking Harrison. It is a real effort to learn more about the patient journey. I believe they are doing exactly what they claim though I do not know who is funding the effort. That is typical of this kind of research.
What a fabulous item .I have just told my consultant that she would have done better to make me aware of what can happen if fatty liver progresses .I was diagnosed with Alpha 1 Antitrypsin deficiency and steatosis both on the same day Just told to lose weight .I was to have follow up in 3 or 4 months .I wasnt seen for two years by which time i have top end stage 2 Nash
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