Fibroscan

[99problem]

Well I finally got a fibroscan done and it showed a 4.8 kpa and a cap of 222. According to the folks at the research study I’ve done a good job at reversing my fatty liver . I’m a bit at a loss though due to my symptoms still being very much present . RUQ and back pain along with heat and dizziness intermittently . My Gastro is at a loss himself and has requested I get a ct scan . Could this be pancreatitis? I’m honestly just so confused and at my wits end with the pain and frustration . My question is how much can truly be seen with a ct scan ? Will they see liver or pancreatic issues if present ?

[lecc]

Hey, congrats on reversing your fat liver! Keep the fight up.

About the CT, it gives pretty clear images. So if anything is laeger than usual, it will show up. AFAIK however, inflamation itself is not something you can see with a CT.

What did your doctor say?

Cheers,

[99problem in reply to lecc]

Thanks for responding . My doctor said something to the effect that the ct scan would probably come back normal but we will try it anyway as mostly every other test aside from a biopsy has been completed . He really doesn’t want me to do the biopsy as it is dangerous and invasive . My hida scan and endoscopy a year back came back fine . I’m honestly hoping to find something (I know it’s weird ) because I just don’t want to feel crazy . I know what I am feeling .

[lecc in reply to 99problem]

I understand how you feel and it is not weird. If you find something you could rip it off .

Sending positive vibes so everything turns out ok

[99problem in reply to lecc]

That was hilarious 😆 thank u

[nash2 Partner]

There are a lot of things that can cause pain and it can be very hard to figure out. A CT looks at structure so it can see tissue but it can't look at pain or chemistry directly. It might be able to tell your doc some things that it is not but it sounds like you have made good progress and hopefully that will lead to less discomfort though progress can be slow and is very frustrating.

[Alterity]

I finalize my research study in 3 weeks. I have a series of 5 test, one being a biopsy . I can't wait to see what they say if I have improved that much. I think I have, however I do still have the stabling pain in my side, and some itching, but I was in stage 4 so it does feel like I'm better than that. I'm continuing the study with the real pill for sure for another 18 months. OSU asked if I would allow the information from the study be given to them as well, I said bill my insurance. I'd rather they have it too in case the liver turns on me, which we all know can happen at anytime, they will have everything they need to give me a living liver except for the donor of course. Good luck with your test, I do hope you are better and reversing your NASH

[Liberty82]

Your fibroscan results are similar to mine. We also have a lot of the same symptoms. I get the heat off mu liver in the mornings and after eating or taking any medication. Been 5 years going on now.