Hi, I´m a female patient of 42 years old and I want to say hi to this community.
I have been operated 2 times of Cholesteatoma in my left ear. The first was on December 2005, and the previous symptons were hearing loss (I only heard a strong internal noise) and dizziness. The surgery of my middle ear was successful, although I woke up with facial palsy during just a few hours.
The second one was on December 2015, exactly 10 years after. The previous sympton was a progresive facial paralysis on my left side. Initially I was diagnosed with Bell's Palsy, but the therapy didn't work and my condition got worse. After many exams, I was diagnosed with a Cholesteatoma in my internal ear, in an unusual area where my facial nerve was being compressed. When I woke up of this surgery, the paralysis was total on my left side. I couldn't close my eye, eat without spilling, smile, speak in a modulated way. My eye was killing me, because it was constantly dazzled and irritated. I couldn´t see normally.
A first neurological prognosis indicated my palsy was permanent, only treatable with cosmetic surgery. But I realized I was slowly getting better. How could be that possible? Look images of my progress here: bit.ly/1WLybJB
I looked for a second opinion, and a new ECM indicated my facial nerve was reinnervating the muscles of my face. Now I have symptons of synkinesis, I have some involuntary movements between the eye and mouth.
I'm still hopeful, I´m doing exercises and facial massages in front the mirror, every day. I know I will never recover a 100%, but any little progress is a gain for me. See some recent images here: bit.ly/1WejDDG
Please write a comment if you had or have a similar disease. Best regards for all of you.