Chronic Constipation 8 year old daughter: I am at my... - ERIC

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Chronic Constipation 8 year old daughter

Allyem1976
Allyem1976
25 Replies

I am at my wits end. My daughter has suffered with CC for 2 years. On Movicol since diagnosis. Been in hospital more than a handful of times for featal impaction. Is normally put on IV fluids and anti sickness as she continually vomits for up to 5 days during a bout of constipation. Doctors think the vomiting is caused by anxiety and stress and is probably physcosymatic not caused by being bunged up. I am a single parent. Her father and his partner hinder medical advice and can't manage her constipation. So I have had to get a social services referral to help my daughter when she visits. I have had to put up with verbal abuse and slanderous accusations from her dad regarding her constipation as it's always my fault not just "something she has" like children have asthma etc.. I work and she goes to school and both are becoming harder and harder to maintain. She's on 2 sachets of Movicol a day at the moment. We increase if she has failed to poo every other day. But even if she has poo'd a bit everyday we still get symptons and issues. Her diet is balanced. Lots of fruit, good with veg, good at taking on fluids.. cereal, 50/50 bread etc. I am literally out of ideas. Please help me. I feel like I am drowning.

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fedupmum

HI

its awful not knowing where to go or what to do , my son has suffered since around aged 7 and is coming 14 , hes has never vomited though. reading your comments I would think if she is that badly constipated 2 sachets are not enough . I did this many times 2 sachets never got good results and gave up , tried different things diet , stopping different food groups . syrup of figs and so on. He was blocked and constantly leaking , the smell was so bad but he blocked it all out and ignored the need to go. He would hide the soiled clothes and tissues he used to wipe it away ,

After being put under a different consultant she explained it in detail and around this time last year we started yet another disimpactation going up on the dose until he cleared out , once that happened I was told to keep the dose high and see how it went . we started with 8 a day .

Months after we still experienced leakage day and night , I couldn't see a end to it all. but she told me to keep going , it did slow down and the leaks became less. the last 4 months he has been on 5 sachets a day with one senna at night. For the last month he has been perfect even though not going every day .

So although every one is different I would say don't give up it isn't a overnight fix and the bowel needs time to come back to normal so they can feel the signal to poo .

its no ones fault though as you will see reading through this great site .

good luck x

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Allyem1976
Allyem1976
in reply to fedupmum

Thankyou. She's been vomiting again all day today. Pedatrian thinks this is physcosymatic vomiting caused by anxiety not constipation. She always says it's her fault etc.. which is heartbreaking. I always reassure her it's not. I think after this bout of vomiting has settled I will try 4 a day for a while and see how that goes.

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Robinia
Robinia
in reply to Allyem1976

Pls don’t feel alone, you aren’t. Your post made me cry. I’m also at my wits end. My son also has bouts of vomiting associated with his constipation and has been in hospital 3 times recently. He’s on 12 sachets currently. It’s taking a massive toll on his mental and emotional health as he has outbursts of anger where he loses control and attacks my daughter (who’s 5) and me, his dad (we are separated) and anyone who is there at the time. He told me the other day he wishes he was dead sometimes. He had a big outburst yesterday on the beach (we are on holiday) because my daughter accidentally headbutted him and as soon as he experiences extra pain (he seems to be in constant pain) it triggers a switch in his brain and he becomes extremely aggressive. He also has trapped wind, he can only fart upside down (odd I know) or when he’s in bed late at night. I think the most important thing is to have support. I’m phoning his hospital psychologist today as I’m so worried about him. I’m also going to phone his paediatrician and ask her to contact his paediatric gastroenterologist to try to speed up his appointment (he’s on a cancellation waiting list currently). He’s had school nurse support so I’m going to call them and see if they will go and visit him in school. He’s also under the local continence service who have written to the gastroenterologist on his behalf. And we now have a private chiropractor who definitely helps with the pain. I’m preparing myself mentally for the fact that he cannot continue like this and he may need something like a stoma. I hope you have some support and your daughter is under a gastroenterologist. My son developed gastritis, caused I’m sure by the high doses of pica sulphate he was put on following enemas (he’s had 8 or 9 altogether) and is on long term omeprazole, one of the symptoms is vomiting/reflux. I had to fight to get him referred to gastroenterologist and if I’m not happy with the next apptmt I will push for referral to GOSH or Evelina. Apologies for the long response. My heart goes out to you and I can honestly say it’s realky really hard to cope with, stay strong xxxx

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Frustratedmum1

Just to let you know I'm thinking about you. Take care

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Allyem1976
Allyem1976
in reply to Robinia

My daughter also has outbursts and moods and can be quite difficult at times. I am worried all of this is affecting her mental health. She always blames herself 😢 I am a single mum so I am also worried about my job and paying my mortgage. All this just adds to the stress. I will definately push for a gastroenterologist appointment. We are under the peadatrian but I think you are right about maybe the vomiting is from acid reflux when she gets worked up about not being able to poo as it's very frustrating. And like yesterday we had to cancel a day out so it's affecting daily life and her childhood. Its not fair on any of our kids. I just want to cry.

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Robinia
Robinia
in reply to Allyem1976

I think having the right specialist support is really important. I got my paediatrician to refer my son for clinical health psychologist at hospital coz of his pain and the impact on his mental health. I got the gastroenterologist through contacting PALS at the local hospital and getting my GP to refer him. PALS also helped me with getting his first apptmt brought forward. I’m cutting short our holiday now after taking him to hospital yesterday for 4 hours, nothing they can do here really other than another enema at another hospital 50 mins away. He doesn’t want that. So doing the big drive tomorrow and trying to get him admitted into the hospital where he gastroenterologist is based. The omeprazole has definitely helped my son. I also put him on a low fodmap diet and took out gluten and dairy for a time. Gradually reintroduced gluten but he mainly stays off dairy apart from the odd ice cream. Pls let me know how you get on. You can apply for DLA for your daughter. I haven’t done it yet for my son but I should have. I’m in the process of financially separating for my husband and that feels like a lot of paperwork already! Keep me updated on your progress via private msg on this site if you like. I do relate to much of what you are experiencing xx

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Allyem1976
Allyem1976
in reply to Robinia

Can I ask what is PALS? We are now in another cycle of not being able to poo and vomiting. Thankfully no vomiting over night and she had a good night's sleep. Gave her a dose of Califig to see if I can get it all moving quicker and she's managed one weetabix this morning which might push it round. She is missing first day of school and I am having to work from home which I cannot unfortunately do all the time. I didn't know I could register for DLA? I will look into that. Thankyou. I am just hoping we get some movement today. Love to keep in touch. Not sure how to private message. Be good to chat off here. Xx I hope you get your boy sorted out x

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Robinia
Robinia
in reply to Allyem1976

PALS is patient advice liaison service, based at hospitals, I’ve private msgd you on this site ☺️

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fedupmum
fedupmum
in reply to Allyem1976

bless her , the medicine is disgusting according to my son , so we always get the orange flavour and I add orange squash into the water (total ml ) he says that helps abit with drinking it . Sadly its a long process but eventually things start to return to normal . Not her fault at all its more common than you realise when you find this site. so much support and just reading others posts and comments can help you through it knowing your both not alone too !

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Frustratedmum1

Please remember you are not alone. Just remember people who don't have to undertake this issue find it hard to understand and grasp. Try to keep persisting and eventually they do start to get an idea it is a medical issue.

I have come to learn sometimes.it is better to keep them on a higher dose of movicol and keep them slightly loser. To be honest one of my mistakes was keeping the movicol to low. We are now on 7 with picolate.

My son has been sick a couple of times with it. It has tended to be when he has worked himself up and he was feeling to full at the same time.

My heart is with you. Just remember you are a brillant mum and you can just do your best.

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Allyem1976

Thankyou. I think once i have the vomiting under control again I will double dose her to move things round and then increase to 3 / 4 and see how that goes. I think the vomiting may be to do with anxiety. Getting worked up and frustrated over not being able to poo. I will try and push for a gastroenterologist appointment to see if they can prescribe something for acid reflux. I was on emeprezole before I had my gallbladder removed. I'm just worried about the phycological affects too.

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PMW300671

Dear Allyem1976. You and your dtr are having a hard time. We all know how frustrating it can be. The bowel /stomach and emotions are connected. You have heard of the saying ‘I had a gut feeling’. If my girl is worried or anxious her bowels get worse. Some Avenue u could try- continence advisor? Have u done this? Physotherapy- specializing in bowel. Helps with massage etc. her diet is good but something in her diet could b affecting her motility in the small bowel. Have u tried FODMAP?. Before u do any of this try and get her cleaned out. Make sure you use the Bristol stool chart so u can have a reference. It’s hard and time consuming but u can’t give up. My girl had bowel problems that I couldn’t manage for 13 years! We tried it all and now she never soils but she is on adult Movicol a day. Keep up the good work. Good luck

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Simpson79

Hi. Im not medically qualified but had same issues myself as a child. Recall 6 months of conscription..had prunes to stout beer. Tried the lot.lack of Iron. Fibogel. And lactolouse was prescribed.

Coffee which is known to have resultsof course if child is young then with caution but i was about 4-5 when this was an issue. Grown out of the stage by 10. But loads of fluids and odd shandy or stout or coffee worked. :-)

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LillyHarry2009

Hi, my son is exactly the same- and the same age. I don’t have any advice unfortunately but just want to say you are not alone 😊

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Ztoorawa

Hi allyem1976.

I just want to say that you are not alone and I feel what your going through . I am in a similar situation with my 11 year old daughter. It's coming upto a year. No medicine seems to be working for her now as it did previously. We have tried disempaction this time round and under instruction of the peadiatrian done 21 days on 12 sachets with just type 4 poos. No loose or watery stools at all. Changed her laxatives and tried them all. Lactulose, senna, sodium picosulphate, biscodyl, and docusate. It's as if her bowels have gone to sleep.

When she had a bowel movement it would trigger pain all over her body, especially her thighs and down the back of her legs, it's as if the pushing is pressing something on her spine.

Then she's in this pain a good part of the night, only sleeping at 3 -4 o clock, then getting up at 7 to go to school.

I've made a decision to stop all medication. Don't know if I should have but I'm going to let nature take its course. She's had 2 bowels movements on her own type 5 in a week. I've also started her on some food supplements that has high doses of your everyday fruits and pro and prebiotics. All natural. Sometimes I think we just need to take a step back... each case is different and in most cases movicol works when you get the dose right according to the comments on here but for my daughter even 12 isn't working. Still on the waiting list to see gastro at Manchester till then it's just trail and error. My daughter is like many on here being affected psychologically too. Says she doesn't want to live. That she can't do this any more.

Wish everyone the very best and hope our kids get past this and go onto lead happy normal lives.

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Allyem1976
Allyem1976
in reply to Ztoorawa

Thankyou for replying. The trouble is Alana gets impacted without any form of medication and we have 2/3 days of constant vomiting until the poo decides to move itself.

Unfortunately this means 2/3 or more days off school and I miss work. Two things that impact seriously on our daily lives.

There has to be another way. We all cannot continue to live like this.

If she's not using medication she gets blocked and if we use medication it boarders on runny/upset tummy and then when she visits her dad's house he does nothing but tell her off for accidents. And then when I intervene I just get a barrage of abuse from him.

It's just horrible for her emotionally and physically and equally for me. I am literally unable to cope anymore.

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Selvanr4
Selvanr4
in reply to Ztoorawa

Hello all!

I am a child health consultant practicing overseas. childhood constipation is becoming the public health problem throughout the world in recent times. The common causes are 1. use of highly refined food in the day today life 2.reduction in the use of whole grains 3.usage of dairy and bakery products 4. less sleep &more usage of electronic media 5. less hours of physical activity 6. Getting up late in the morning 7.avoiding the traditional diet of the geographical area .8.reduction in the consumption of liquids especially water.

all this lead on to reduction in the amount of fluid ,fibre ,activity ,sleep which finally ended up in constipation .so number 1 thing we should change is change in the lifestyle.- go to bed early ,get up early, do some physical exercise as per the age, drink plenty of fluids ,take whole grain products eat traditional food apart from taking the laxative- whatever the medicine you are prescribed for a minimum period of 6 to 12 months. the Bowel takesat least three months to get adjusted ,gets back its rhythm. then you need to increase the fluids,fruits, vegetables. Life style modification .

You can reduce the amount of laxative after atleast 3 months. after six months age of usage may be taperedas per the response.

one good book I will recommend for the mother's to read is the "INS and Outs of poo"

by us physician Dr.duhamel

available in the Kindle.

all the best mums

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mumofboys22

Hi I just read this and then I read this about Movicol, hope it helps xx

To treat constipation you can take two sachets up to three times a day, depending on how bad your constipation is. The contents of each sachet should be dissolved in 62.5ml of water before taking. To treat faecal impaction the usual dose is 16 sachets a day, all of which should be taken within a six hour period.

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Lemonjelly72

Hi my daughter had the same problem when she was small so use to give her warm orange juice with a bit of water ,prunes use to blend them and give her a few spoons or a medicine called LACTULOSE it was quite helpful.

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Selvanr4

Pl read the post

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Selvanr4

Hello all!

I am a child health consultant practicing overseas. childhood constipation is becoming the public health problem throughout the world in recent times. The common causes are 1. use of highly refined food in the day today life 2.reduction in the use of whole grains 3.usage of dairy and bakery products 4. less sleep &more usage of electronic media 5. less hours of physical activity 6. Getting up late in the morning 7.avoiding the traditional diet of the geographical area .8.reduction in the consumption of liquids especially water.

all this lead on to reduction in the amount of fluid ,fibre ,activity ,sleep which finally ended up in constipation .so number 1 thing we should change is change in the lifestyle.- go to bed early ,get up early, do some physical exercise as per the age, drink plenty of fluids ,take whole grain products eat traditional food apart from taking the laxative- whatever the medicine you are prescribed for a minimum period of 6 to 12 months. the Bowel takesat least three months to get adjusted ,gets back its rhythm. then you need to increase the fluids,fruits, vegetables. Life style modification .

You can reduce the amount of laxative after atleast 3 months. after six months age of usage may be taperedas per the response.

one good book I will recommend for the mother's to read is the "INS and Outs of poo"

by us physician Dr.duhamel

available in the Kindle.

all the best mums

Reply
Han24

Hello fort I’d join this group as I have no support from Pediatrics constipation clinic or dieticians so at a loose end my daughter is 8 and suffers with chronic constipation we was doing so well until few weeks ago when the soiling came back and today very mud like poop happened again we been so careful as she dairy allergy also so pretty hard on food wise also allergic to fish and cucumbers weird I know but every time I call drs all I get is up her movicol she on 4 packs a day already she having to have paracetamol every with tummy back and headaches but still getting kicked to the back of the list Iv tried pals which only made me two appointments which is this coming month I’m at a loose end now and don’t know what else to do I hope you guys can help me seeing as we all have this common situation with our babies xxxxx

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Robinia
Robinia
in reply to Han24

I would start a new post if I were you introducing yourself ☺️ And asking any questions you have X sounds like you were making good progress so hopefully what’s happening currently is a blip and with the right dose of meds you will get back to the progress you were making

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Hanmum

Definitely call the ERIC helpline (it can be difficult to get through but keep trying) or I believe you can send them an email? Speaking with one of the amazing volunteer consultants at ERIC was so helpful both practically (as they gave me fantastic, clear advice) and also therapeutic for me - to be heard, believed and understood.

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G288

I feel exactly the same as you , single parent of three children and my eldest is the one with the bowel troubles . Have been referred to pead who didn’t seem to know what to do other than prescribe laxido. I feel like it is More of a emotional cause because Of not being with his dad , rather than a physical problem or perhaps it’s the two Together . I just don’t know what to do anymore and he’s soiling his underwear several times a day . He’s 8 . Xxx

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