This is my first time posting on ANY forum. I desperately need some advice.
I am 31yrs old and was diagnosed with TLE in my teens. I have a son of 5 years and I feel I cannot cope. My family does not understand my epilepsy and no matter how much I try to explain to them what I am going through, I hit a brick wall. I am battling to keep with life and I feel completely helpless. I am so alone in this and feel like the world just does not understand what I go through on a daily basis.
My TLE affects my moods and my sense of logic goes when it starts playing up.. My jaw locks and my head spins out of control. I started with Neurontin recently and I have to keep increasing my dose as it wears off quickly. How can I get people t understand without driving myself mad??