Epilepsy Action | HealthUnlocked

Epilepsy Action

3,023 members • 1,130 posts

Cenobamate

Hi all, I'm taking a high dose of Lamotrigine and it's not working so my neurologist has suggested Cenobamate. Does anyone take both and it's working or the...

Hi all, I'm taking a high dose of Lamotrigine and it's not working so my neuro...

•3 days ago

Covid booster UK

Does anyone know if we can get spring boosters for Covid? I got the autumn one because of epilepsy, but it looks as though neurological conditions aren’t on...

Does anyone know if we can get spring boosters for Covid? I got the autumn one ...

•3 days ago

Two medications & more frequent seizures.

My 15 year old daughter is on 175mg Lamotrigine twice daily & 750mg Keppra twice daily. She has been on Lamotrigine for 6 years but has only just reached the...

My 15 year old daughter is on 175mg Lamotrigine twice daily & 750mg Keppra twice...

•2 days ago

Colds and epilepsy

My husband has passed on his cold to me. I started with a tickly cough, now nose is bunged up, coughing is rattly, more so on the right side and head feels...

My husband has passed on his cold to me. I started with a tickly cough, now nose...

•1 month ago

Fix medicine supply chain or risk patients’ lives, warn charities

Charities and pharmacists are calling for a complete review of the medicine supply chain as shortages continue to put people’s health at risk. Epilepsy...

Charities and pharmacists are calling for a complete review of the medicine supp...

EpilepsyAction1

Partner•20 days ago

Benefit shake up

Hi, I dont know what other people are thinking but sunaks proposal has caused some distress, anxiety is coming through the walls for me, im unstable at best,...

Hi, I dont know what other people are thinking but sunaks proposal has caused so...

•14 days ago

Government plans could cut benefits for depression and anxiety

Government plans could cut benefits for depression and anxiety. The government’s plans to stop sickness benefits for some people with mental health...

Government plans could cut benefits for depression and anxiety. The governmen...

EpilepsyAction1

Partner•5 days ago

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Low carb for epilepsy

I've been having a chat with my epilepsy nurse about trying a low carb diet. She is happy for me to give it a go and says some people find it reduces the...

I've been having a chat with my epilepsy nurse about trying a low carb diet. She...

TheCoulerPurple

•18 days ago

new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

•25 days ago

new symptoms

Back in February I had to do another change in prescription for my epilepsy medication. Ever since I finished it back in March the eight week cycle I’ve had...

Back in February I had to do another change in prescription for my epilepsy medi...

•25 days ago

Lacosamide increase

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agreeing with me as each night since i go to bed with a terrible headache and this...

Last night was the 3rd night of increasing lacosamide. It doesnt seem to be agre...

•1 month ago

London Marathon 2024: Meet team Epilepsy Action

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5, and Nanw, 3, who have both been diagnosed with epilepsy. Learn more here...

Catrin Jones, 26, from Caernarfon in Wales, is running for her daughters Esmi, 5...

EpilepsyAction1

Partner•19 days ago

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About us

Epilepsy Action is a peer support community run by the Epilepsy Action charity. We are a community of committe...

Read more about Epilepsy Action

http://www.epilepsy.org.uk/

Freephone 0808 800 5050

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