seizure monitor for child: our 7 year old... - Epilepsy Action

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seizure monitor for child

dandelioncupcake profile image
3 Replies

our 7 year old has possible epilepsy-the process of diagnosis is proving to be lengthy but that’s looking like the most likely outcome.

The paediatrician has recommended we have a camera or alarm of some type for potential night seizures so that she can go back to her own bedroom.

Has anyone found or used a good alarm? There are so many, obviously we want to minimise false alarms but catch seizures if we’re not present. Any advice or review would be great.

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dandelioncupcake profile image
dandelioncupcake
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3 Replies
Lbone25 profile image
Lbone25

Hello

We called local council and The filled a bed alarm for seizures

Heart12345 profile image
Heart12345

The Nightwatch armband from Holland was the one we went for as my grandson was 4 when diagnosed it is expensive though. We also live in Britain but to have it shipped in was difficult because of new Brexit regulations. I’m not sure if it still stands.

We also just purchased a week ago a second wearable as a back up, the embrace 2 for the wrist in the UK as he is older now and it can be worn from 6 yrs old. We are yet to try it so fingers crossed.

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Dear dandelioncupcake

It’s a worry for parents that their child may have seizures during the night.

We can't make recommendations for specific alarms for people but we have information on our website about different mobile seizure alarms and apps that might be useful for people with epilepsy. We list stockists for different types of alarms and information on how to choose one. Before buying it would be best to check with the supplier that the alarms would be suitable. And maybe talk to your daughter's epilepsy consultant or nurse.

epilepsy.org.uk/living/safe....

We are also often asked for feedback about alarms and monitors, but it is rare that people tell us about their experiences with these products. If you are looking for feedback about different products you might be able to ask others through our talk and support, Discord , Facebook , twitter

Talk and Support virtual groups epilepsy.org.uk/support-for...

Talk and Support face to face groups epilepsy.org.uk/support-for...

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Regards

Diane

Epilepsy Action Helpline Team

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