seizure monitor for child: our 7 year old... - Epilepsy Action

Epilepsy Action

3,102 members1,180 posts

seizure monitor for child

dandelioncupcake profile image
3 Replies

our 7 year old has possible epilepsy-the process of diagnosis is proving to be lengthy but that’s looking like the most likely outcome.

The paediatrician has recommended we have a camera or alarm of some type for potential night seizures so that she can go back to her own bedroom.

Has anyone found or used a good alarm? There are so many, obviously we want to minimise false alarms but catch seizures if we’re not present. Any advice or review would be great.

Written by
dandelioncupcake profile image
dandelioncupcake
To view profiles and participate in discussions please or .
3 Replies
Lbone25 profile image
Lbone25

Hello

We called local council and The filled a bed alarm for seizures

Heart12345 profile image
Heart12345

The Nightwatch armband from Holland was the one we went for as my grandson was 4 when diagnosed it is expensive though. We also live in Britain but to have it shipped in was difficult because of new Brexit regulations. I’m not sure if it still stands.

We also just purchased a week ago a second wearable as a back up, the embrace 2 for the wrist in the UK as he is older now and it can be worn from 6 yrs old. We are yet to try it so fingers crossed.

EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Dear dandelioncupcake

It’s a worry for parents that their child may have seizures during the night.

We can't make recommendations for specific alarms for people but we have information on our website about different mobile seizure alarms and apps that might be useful for people with epilepsy. We list stockists for different types of alarms and information on how to choose one. Before buying it would be best to check with the supplier that the alarms would be suitable. And maybe talk to your daughter's epilepsy consultant or nurse.

epilepsy.org.uk/living/safe....

We are also often asked for feedback about alarms and monitors, but it is rare that people tell us about their experiences with these products. If you are looking for feedback about different products you might be able to ask others through our talk and support, Discord , Facebook , twitter

Talk and Support virtual groups epilepsy.org.uk/support-for...

Talk and Support face to face groups epilepsy.org.uk/support-for...

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Regards

Diane

Epilepsy Action Helpline Team

Not what you're looking for?

You may also like...

Focal motor seizure disorder

Has anyone else experienced or have more knowledge about this form of epilepsy? I was diagnosed by...

Trying to find some sort of alarm to make aware having a epileptic seizure, have JME, my last aura did not show on heart rate?

I have had JME for nearly 50 years, I have worn out various SOS cards and bracelets over the years,...
Adlon57 profile image

Epilepsy Research UK and Epilepsy Action user survey: tonic-clonic seizure alarms

Epilepsy Research UK and Epilepsy Action frequently receive enquiries about tonic-clonic seizure...
EpilepsyAction1 profile image
Partner

Seizure Types

Hey All, I was diagnosed with epilepsy September 2018, Controlled with Keppra & Lamogratrine, had...

Conscious seizure

I have had 2 really strange events in the last weeks and I don't know what happened. Are conscious...
Sandly1 profile image

Moderation team

EA-DT profile image
EA-DTModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.