Epilepsy Research UK and Epilepsy Action user survey: tonic-clonic seizure alarms

Epilepsy Research UK and Epilepsy Action frequently receive enquiries about tonic-clonic seizure alarms, but impartial information about the various 'makes' is hard to come by. Epilepsy Action supports Epilepsy Research UK's efforts to carry out independent research into people's experiences of using different tonic-clonic seizure alarms. The aim is to develop unbiased information document for both websites. We hope that in the future this will help people with their choices.

If you have ever used a tonic-clonic seizure alarm, or cared for someone who has used one, we would be extremely grateful if you would complete this survey.

epilepsy.org.uk/tonic-cloni...

7 Replies

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  • Thank you for including survey for others to complete. Regret, I have never used a tonic-clonic seizure alarm, as I doubt if these are even available in South Africa, where I am based.

    I would be grateful for a link to share on my Facebook Page if you are acceptable to my sharing the survey for others to complete.

    Kind Regards,

    Les

  • Hi Lesmal

    That would be great if you wanted to share the link on your Facebook page. It is a UK survey but I am guessing that’s not a problem. Here’s the link again: epilepsy.org.uk/tonic-cloni...

    Thanks.

    Cherry

    Advice and Information Team

  • Hi Cherry, I am based in South Africa. Please VISIT & LIKE the Page to check it out before I load the link... I would rather you check out the page first... Follow the link: facebook.com/EpilepsyMotive...

    I look forward to your response in due course.

    Regards,

    Les

  • Hi Les

    We’re happy for you to post the link. But we can’t post on your page. So feel free to go ahead with it and hopefully some more people will complete the survey.

    Cherry

    Advice and Information

  • Hi Cherry,

    Thank you! Link will be loaded!

    Les

  • Hi Cherry,

    When trying to load link, am told 'Page is not found'.

    Please advise further.

    Thank you.

    Les

  • Hi Les

    Sorry that didn’t work. Another way would be to go to the home page of our website epilepsy.org.uk and just follow the link.

    Hope that works for you.

    Cherry

    Advice and Information Team

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