Brain jolts?!: Hi folk, TLE here. So I’ve... - Epilepsy Action

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Brain jolts?!

Salut profile image
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Hi folk, TLE here.

So I’ve never had anyone else say they understand what I mean by a particular feeling so I’m throwing the analogy out there for all the over 40s and seeing if anyone else gets it!

when computers were massive and you had a separate monitor, there used to be a button on the bottom of the screen (I’m talking those massive box monitors) that if you pressed it the screen would kind of reset in a bouncy ‘doiiinng’ way??

Anyway, since being a kid that was the best way of describing the momentary weird sensations that I got, that I assumed everyone else did and would say ‘you know when you get that doing feeling in your head like a computer?’ and they’d be like ‘nope’.

Anyone get what I mean?!

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Salut
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Hi...! The short answer to your question is "No...I have never had brain jolts!" But I am interested in your analogy. I have recently had a tonic-clonic seizure which has meant that I have been having to explain to a variety of medical professionals the weird experiences that I have been having over the last 50 years. It is not an easy job and the analogies that I have found myself using often seem hopelessly inadequate to describe those strange and otherworldly sensations. I wonder how other people describe their experiences and I wonder if anyone has used art to express the virtually inexpressable. Art should be particularly good at doing this. I was trying to explain my sensation of flashing lights (migraine) to my neurologist and he showed me a picture of different types of flashing lights on his computer screen. I was immediately able to point to the one that I was experiencing. Words are often inadequate, we need art, video, sound and, preferably, smell and taste to explain ourselves...I can imagine your "brain jolts" experience even though it is not something that happens to me. Well put!

Salut profile image
Salut in reply to

Good point! I’d never thought of trying to paint it. When first diagnosed I tried to explain things and found myself saying ‘it’s like this, only not like this’ 😂 such intangible feelings. The same feeling I also tried to describe as that feeling in your stomach when you descend only in my head?!

I also get ‘rough’ and ‘smooth’ feelings - the rough if I had to draw it would be wire wool rolling between stalagmites and stalactites and the smooth is like running a rounded cornered dice through my hands. Strangely the smooth feeling is more uncomfortable. I know I need to sleep/take better care of myself when these crop up…

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