Ongoing Headaches/anxiety

[sguthrie]

Hey all,

I have had Hippocampal Sclerosis since the age of 8 months and am now 41. I had surgery in 2017 to eradicate my seizures which were occurring on average 3 times a week. Since the operation, I have only had one due to being trialed off medication.

Apart from escaping the ongoing seizures, I have not escaped the anxiety, fear and worry that it will one day happen again.

I have been putting up with a headache that has not disappeared over the course of 2 weeks despite the painkillers. My doc said "oh you poor thing, have you tried panadol?" and was then asked what do I think. Of course I was not happy with this.

Has anyone in my situation - approx 5 years after surgery, experienced ongoing headaches or is it just me being worried again?

[EpilepsyAction1 Partner Epilepsy Action]

Hi Sguthrie

Communicating with people on here and through other social media, is a really good idea. So I hope you hear from others in this community soon.

If you don’t, as well as managing the HealthUnlocked community, Epilepsy Action has other ways for you to contact others. These are:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

There is also the Epilepsy Surgery Friends Facebook network where people share their experiences of surgery for epilepsy both before and after.

facebook.com/Epilepsysurger...

From our experience, in most case people find it helpful to talk to or contact people who understand what they are experiencing.

If you wish to talk to our helpline team and you live in the UK please do phone our freephone helpline 0808 800 5050.

Our helpline is open Monday to Friday 8.30am until 5.00pm, and Saturday 10.00am until 4.00pm.

Regards

Diane

Helpline Team

[Hidden]

You need to consult your neurologist, if possible a neurosurgeon too. Forget your general physician. Headaches after brain surgery should not be taken lightly.