Is the safe to be on three different Drugs - Epilepsy Action

Epilepsy Action

3,103 members1,180 posts

Is the safe to be on three different Drugs

WoodyWoodhams profile image
5 Replies

I've been on Carbamazepine and Phenytoin for the pass 30yrs, which have stopped my seizers, but very now and then sometimes up to three times a day I get like a seizer starting and then goes off and I feel a bit groggy for a few hours and everything settles down, I spoke to my Neurologist and she want to start me on Levetiracetam on top of the drugs I am already on, and then in year or so lapper off the old drugs. is the safe?

Written by
WoodyWoodhams profile image
WoodyWoodhams
To view profiles and participate in discussions please or .
Read more about...
5 Replies
EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Phenytoin is a much older drug(1938) And carbamazepine is also pretty old. (1965) Because they are older, the doctors know more about long term side-effects. So it may be that your doctor thinks what is happening for you could be connected to these older medicines. It would never be ideal to be on three drugs but sometimes there is good reason. I am guessing your doctor wants to introduce levetiracetam (introduced in 2000) before reducing either of the others, to make sure you have the best seizure control at all times. If they are thinking of reducing the phenytoin it will need to be done extremely slowly.I hope that’s useful information for you.

Regards

Cherry

Epilepsy Action Helpline Team

marc37 profile image
marc37

Have you thought about having VNS treatment. If you do, you may be able to cut down to 1 - 2 medications

Marc

marc37 profile image
marc37

3 drugs is a lot. I am guessing you have refractory (drug resistant) epilepsy. In such cases vagal nerve stimulation is a very good option. It would possibly greatly reduce your seizures, and the amount of medication you would need to take

I did 25 years then had surgery

apache31 profile image
apache31 in reply to

the VNS implant or another type of surgery. please share.

Not what you're looking for?

You may also like...

Pure stress and tension! Epilepsy seems to thrive on it!

I have had Juvenile Myoclonic Epilepsy since the age of 14, I'm 65, when I bashed my head in a...
Adlon57 profile image

Soon to be mom

Hello, I’m a 25 year old pregnant woman with epilepsy and I’m on 2000mg of keppra a day. I really...
H199 profile image

Could Epilim and lacosamide/VIMPAT have something in common [type of medication?] that causes 'shakes',need to get some research done on it?

In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with...
Adlon57 profile image

Epilepsy?

Hi all, I'm looking for some clarity please. I'm waiting to see a neurologist 25/1 my symptoms...
Louie24 profile image

Elton John to the rescue

I have been doing some research on Epilepsy since seeing my ex boyfriend having tonic clonic...